Re: Still Alive-Me To Barely

[Guest guest]

Pennsylvania pain laws state that all Pain Management Doctors have to do this.

But this Doctor is saying you missed an appointment (and he could have gotten

more money_ and that is on thee pain contract and when I told my doctor I had

go to the ER, he says you call me from the hospital bed and let me know whats

going on so I did and he would do telephone office visits as sd review meds,

adjusted what we needed, and he overnighted them. He traveled the world and he

would carry a satellite phone he could talk to us. I am still so sorry he

passed away last year, it was a huge loss to the pain advocate community and he

would call it bunk, when it was bunk

, I told him the same as the Cancer Centers of America which are renown

for alternative programs,treating the whole self, and since they are a cancer

facility they would manage his meds and there is a Brain Center at this one and

has some of the things he was looking for in one place.

To discuss your treatment options please call anytime.

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Home / Cancer Treatments / How We Treat You / Radiation Therapy / BrainLAB

Stereotactic Radiosurgery (SRS)

BrainLAB Stereotactic Radiosurgery (SRS)

Learn More About BrainLAB SRS: Chat with Us | Email Us

We use BrainLAB Stereotactic Radiosurgery (SRS) to treat cancers of the brain as

well as non-cranial lesions that require a high degree of precision, such as

those in the lungs and liver.

Despite its name, stereotactic radiosurgery is not surgery. It is a nonsurgical,

highly precise form of radiation therapy, so named because it carries the

advantages of surgery without being invasive.

Before treatment begins, the patient undergoes a CT simulation to determine the

exact location and size of the treatment area. During the simulation, our

radiation team performs a CT scan and creates the patient’s custom head mask.

A week later, treatment begins. Using the Trilogy™ system, a single dose of

precisely targeted radiation is directed at the cancerous lesion(s). The

treatment is typically delivered in one session and takes approximately 30

minutes.

Using BrainLAB SRS, our doctors are able to reach tumors deep inside the body

without the risks of surgery. In addition, this technology helps to reduce

radiation exposure to healthy tissue, which is especially important for areas

like the brain and lungs.

Advantages of BrainLAB SRS

• SRS does not require an incision, and it carries very little risk of

infection.

• With stereotactic radiosurgery, we can better focus the radiation on a tumor

so nearby healthy tissue is protected.

• SRS may be considered an alternative for patients who are not candidates for

surgery.

• The total radiation treatment course is delivered in one to five days rather

than the typical two to eight weeks.

Radiation Therapy

• 3D Conformal Radiation

• Accelerated Partial Breast Irradiation (APBI)

• BrainLAB SRS

• Calypso® 4D Localization System™

• Contura™

• Cyberknife (see Stereotactic Radiosurgery)

• Deep Tissue Hyperthermia

• External Beam Radiation Therapy (EBRT)

• Gamma Knife (see Stereotactic Radiosurgery)

• High-Dose Rate (HDR) Brachytherapy

• Hyperthermia (also see Local Hyperthermia, Deep Tissue Hyperthermia)

• Intensity Modulated Radiation Therapy (IMRT)

• Image Guided Radiation Therapy (IGRT)

• Intraoperative Radiation Therapy (IORT)

• LightSpeed RT

• Local Hyperthermia

• MammoSite® RTS

• Radioactive Protectants

• Rapid Arc™

• Respiratory Gating

• Radioiodine Ablation (see Systemic Radiation Therapy)

• Stereotactic Radiosurgery (SRS)

• Stereotactic Body Radiation Therapy (SBRT)

• Systemic Radiation Therapy

• TheraSphere®

• TomoTherapy® HI-ART

• Total Body Irradiation (TBI)

• Total Marrow Irradiatiionxxxxx c

,

I know I have sent this to you several times but I hoped you could go see what

this facility they could do for you as they have all the options for treatment

in one hospital Clinic setting and your medication will be provided for you and

they may know of new clinical trials as they do IMMUNOLOGY PROGRAM to build the

body up.

I am in a real mood about doctors that so not do lab texra ob our blood

chemistry, vitamin, and hormones, and most of us do have immune problems at

times due to the medications or other siorders we have It you ho theer let us

know The importance of knowing organ are healthy and teaching the patient the

importance of anti inflammatory diets and being acidic so that yeast cannot grow

in your Body. What a concept. The vitamin d does help and I ran out so Bob

brought me more. Wizh you well and glad you are back Jenn Benn

From the Cancer treatssessite.

• Trilogy Cancer

Learn More About Types of Brain Cancer: Chat with Us | Email Us

Types of Primary Brain Tumors

Primary brain tumors are tumors that form from cells within the brain. The

tumors are categorized by the type of cell in which it first develops.

There are over 120 different types of brain tumors (National Brain Tumor

Society). The most common primary brain tumors are called gliomas, which

originate in the glial (supportive) tissue. About one third of all primary brain

tumors and other nervous system tumors form from glial cells.

There are a number of different types of gliomas, including the following:

• Astrocytomas develop from small, star-shaped cells called astrocytes, and may

arise anywhere in the brain or spinal cord. Astrocytomas are the most common

primary CNS tumor. In adults, astrocytomas most often occur in the cerebrum,

which is the largest part of the brain. The cerebrum uses sensory information to

tell us what’s going on around us and how our body should respond. The left

hemisphere controls the muscles on the right side of the body, while the right

hemisphere controls the muscles on the left. The cerebrum also controls speech,

movement, and emotions, as well as reading, thinking and learning.

• Grade I: Pilocytic astrocytoma

• Grade II: Diffuse astrocytoma / Low-grade astrocytoma

• Grade III: Anaplastic astrocytoma

• Grade IV: Glioblastomas (also called glioblastoma multiforme, GBM, or grade

IV astrocytoma). Anaplastic astrocytomas and glioblastomas are malignant

astrocytomas that grow and spread aggressively, accounting for more than 50

percent of all astrocytomas. Glioblastomas occur most often in adults between

the ages of 50 and 70.

• Brain stem gliomas arise in the brain stem, which controls many vital

functions, such as body temperature, blood pressure, breathing, hunger, and

thirst. The brain stem also serves to transmit all the signals to the body from

the brain. The brain stem is in the lowest part of the brain, and connects the

brain and spinal cord. Tumors in this area can be difficult to treat. Most brain

stem gliomas are high-grade astrocytomas.

• Ependymomas usually occur in the lining of the ventricles, or spaces in the

brain and around the spinal cord. Although ependymomas can develop at any age,

these brain cancer tumors most commonly arise in children and adolescents.

Ependymomas are also a common spinal cord tumor.

• Oligodendrogliomas develop in the cells that produce myelin, the fatty

covering that protects nerves in the brain and spinal cord. These tumors are

very rare, and usually occur in the cerebrum. They are slow growing and

generally do not spread into surrounding brain tissue. These brain tumors occur

most often in middle-aged adults. They generally carry a more favorable

prognosis as compared to astrocytomas.

• Mixed gliomas have two types of tumor cells: oligodendrocytes and astrocytes.

This type of brain tumor most often forms in the cerebrum.

Other Brain Tumors

There are other types of brain tumors that do not begin in glial tissue,

including the following:

• Meningiomas (also called meningeal tumors) grow from the meninges, which are

the three thin membranes that surround the brain and spinal cord. These tumors

are usually benign (non-cancerous). Because these tumors tend to grow very

slowly, the brain may be able to adjust to their presence. Meningiomas

frequently grow quite large before they cause symptoms. This type of brain

cancer occurs most often in women ages 30 to 50.

• Pituitary tumors develop from the pituitary gland. Most pituitary tumors are

benign. They are divided by size into macroadenomas (greater than 1 cm in size)

and microadenomas (less than 1 cm in size). Arising from the pituitary gland

(master gland of the body), these tumors can over-produce a variety of hormones.

This overproduction of hormones typically causes symptoms, such as fatigue,

menstrual irregularities, and weight gain or loss, among many others. Most

pituitary tumors, however, do not produce hormones. These tumors, which are

common among 30-50 year olds, can still create problems when they become large

enough to push on the nearby optic nerves.

• Craniopharyngiomas develop in the area of the brain near the pituitary gland

(the main endocrine gland which produces hormones that control other glands and

many body functions, especially growth) near the hypothalamus. These brain

tumors are usually benign. However, they may sometimes be considered malignant

because they may create pressure on, or damage, the hypothalamus and affect

vital functions (such as body temperature, hunger and thirst). These tumors

occur most often in children and adolescents, or adults over age 50.

• Germ cell tumors arise from developing sex (egg or sperm) cells, also known

as germ cells. The most common type of germ cell tumor in the brain is the

germinoma. Aside from the brain, germinomas can form in the ovaries, testicles,

chest, and abdomen. Most germ cell tumors occur in children.

• Pineal region tumors occur in or around the pineal gland, a small organ

located in the center of the brain. The pineal gland produces melatonin, a

hormone that plays an important role in the sleep-wake cycle. These brain cancer

tumors can be slow growing (pineocytoma) or fast growing (pineoblastoma). Since

the pineal region is very difficult to reach, it requires a high level of

surgical expertise to remove these tumors.

• Medulloblastomas are fast-growing brain tumors that develop from the neurons

of the cerebellum. The cerebellum is the lower back of the brain and controls

movement, balance and posture. These tumors are usually found in children or

young adults.

• Primary CNS lymphomas develop in lymph tissue of the brain or spinal cord.

This type of brain tumor is usually found in people whose immune systems are

compromised.

Next Topic: Risk Factors for Brain Cancer

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I KNOW THE AMERICAN CANCER SOCIETY PROGRAM CAN HELP AS I WORKED AS A MEDICAL

SITTER AND WITH HOSPICE AS A

END OF LIFE VOLUNTEER. I have heard the cancer centers of America are great and

I wonder what they would do fo you .

Thinking of You Bennie

[Guest guest]

Bennie do you also live in Pa? Tami

> Bennie wrote:

> Pennsylvania pain laws state that all Pain Management Doctors have to do this.

[Guest guest]

I got lost ... all pain doctors have to do what?

[Guest guest]

> Tami wrote:

> Bennie do you also live in Pa?

Tami,

No, I don't but got interested in this by being a member of the American Pain

Foundation who lobbies for laws and different pain societies and my previous

pain doctor who passed away was the founder of the National Foundation for Pain

and was co founder along with Dr. Forest Tenent. He always had articles to read

in his office and had a library and I became curious.

Many Doctors have been prosecuted that were legitimate pain doctors and it was a

witch hunt and many of these societies have provided legal support to get them

off.

Stopthedrugwar.org/chronicle-old/295/aapshassman.shtml DrugWarFacts.com are good

reads but look at objectively. Another

www.naag.org/finding-the-proper-balance-walking-the-tightrope-bet...

Famous site and listed doctors

www.naag.org/finding-the-proper-balance-walking-the-tightrope-bet...

Http://deasucks.com/essays/docwar3.htm lists all the some doctors who have gone

to prison.

Every pain patient needs to read the Washington Pain Act that was enacted this

year that limits the amount of opioids a patient can be prescribed (unless under

pain management doctor) and the guidelines are ridiculous. This law was enacted

because Washington State has one of the highness opioids death. In other words,

drug addicts were shooting up oxycontin (which does not have additives and they

can melt it down and shot it up but the other opioids with tylenol can't )

The medical group that developed these guidelines, ex. pain-medication law in

the state of Washington

Earlier this year, legislators in the state of Washington passed a first of a

kind bill that changes the way providers can prescribe opiates to chronic pain

patients. This bill directs five boards and commissions to adopt rules

concerning management of chronic, non cancer pain. Thus far, it appears the

rules will govern how physicians and other prescribers maintain and update

detailed screening, history and treatment plans for most pain patients.

Additionally, a prescriber whose patient reaches a certain dosage level must

consult a pain specialist.

To learn more about the law, or to receive email notifications about pain

management prescribing rules, go to:

http://www.doh.wa.gov/hsqa/Professions/PainManagement/'

This website discuses some states with laws to deal with intractable pain

http://www.painpolicy.wisc.edu/public at/95apsip.htm. I was certified to have

intractable pain which is very important in covering yourself in getting

opioids. There are different kinds of pain and sometimes if you have intractable

pain (24/7) and it will never go away, a doctor will put chronic, non cancer

which puts you lower on the pain scale.

Here is the introduction to the Washington State Guidelines developed by the

Agency Directors Medical Group in 2007 and advertised and heralded at Doctors

Meetings, Seminars, and articles everywhere. This has caused mass panic among

doctors along with the more extensive tracking systems (I think I posted this

before). http://www.agencymeddirectors.wa.gov/opioiddosing.asp

Pennsylvania has adopted this plan in a article I had read and am trying to find

but here is the Pennsylvania pain guidelines

site:http://www.painpolicy.wisc.edu/domestic/states/PA/pambguid.htm

These websites list the state by state pain acts and information and are the

best: http://www.medscape.com/resource/pain/opioid-policies and

www.fsmb.org/pdf/GRPOL_Pain_Management.pdf

Now this is a lot of information but well worth saving and reading. That is why

I mentioned to in PA to go to the Cancer Centers for America as since he

had cancer he could get his neurologist there (they have a up to date brain

program), he could have his Pain management there, and alternative therapies

without the runaround he is getting. They have on line specialists that discuss

the programs they offer and deal with cancer from a holistic approach and I

called them once asking about treatment for a friend and the advanced treatment

and treatment plans blew me away and I was impressed. Everyone has to make their

own decision.

So I have rattled on again but hope that helps. I just quit my pain management

doctor of three years as she opened a laser hair removal in her office and was

demanding me to go for the graston technique to break up scar tissue ( metal

rods a chiropractor uses to roll over your scar tissue) when I already have a

myofascial release program and rapport and she stated I needed to stay on the

inflammatory diet but the endocrinologist stated I needed milk and dairy

products for Vitamin D.

I was trying to tell her the endocrinologist stated my Vitamin D level was

serious and put me on fifty-thousand units indefinitely and I was having tremors

from the deficiency and she was making me come in with my meds to count them i.e

withdrawal. I called a female pain management doctor at my old physician group

but this one was by herself and I wrote my history on a back of one of the forms

and explained I am not doctor shopping but need lifetime care. She knew my

endocrinologist and agreed we keep things the same until my vit d levels are up,

my other pain management doctor was going to take me off all meds and stated the

meds caused immune problem but I had immune problems before all the meds so that

boat don't float (as my Mom said)

Sorry Tami, didn't meant to write a book but I feel barely alive now with

vitamin deficiencies but I am not give UP YET. Big Hugs to everyone and the

barometer is changing and my joints are hurting we have had flash floods and

raining here in Austin Tx so everyone be safe.

Bennie