Re: Quiet in Here :-)

[Guest guest]

It was way too hot to be out in the sun yesterday, but we have a nice few days

to spend outside now. 

I don't know about everyone else, but I was quite miserable yesterday because my

back is acting up from top to bottom with spasms and nerve pain with sciatica.  

I'm not sure today will be a whole lot better, but I'm going to try to enjoy it

because the weather is perfect. 

If only we would have rain.

Jennette

Lyndi wrote:

>In 14 years, I don't recall this group ever being so quiet over a

>weekend before. Every time I pop in to see if there are messages to

>clear, there aren't any.

>

>I hope everyone has been out getting some sun and having some fun!

[Guest guest]

I have not been online a whole lot lately because most of what I say is taken

the wrong way or someone gets mad. So I am ready to give up and unsubscribe

from all the groups I am on because that way I cannot be anyone else's punching

bag or sounding board for nastiness.

Anne

[Guest guest]

I don't post much mainly because I get too many email to go through.

I spent the past two days inside doing things inside because standing hurts my

spine.

I'm 21 and have fibromyalgia. I also have a slipped disc in my lower back, a

slight bulging disc in my neck and a unknown neck/shoulder injury that I'm about

to start PT for. While both discs are slight injuries - the chemical irritation

surrounding them + the chronic inflammation I have causes me to be extremely

uncomfortable most of the time.

It's incredibly sad being a 21 year old who can't work. In addition to this -

when I do work I get sick. Even when I don't work I'll catch bronchitis or

similar respiratory infections 4-5X/year. Recently, I had pertussis for almost 4

months. When I do work - its worse. And I push myself to work and do my work

well - and it's worse.

My friends don't understand. They pull away because of it. It's unmanaged and

not under control. I can't really afford to be going to all these doctors all

the time and when I did - it was minimal to no help.

My only saving grace is my fiancé. He understands and tries to help and doesn't

mind that I can't work.

I apologize for complaining. I just - right now - need to have someone hear me.

I'm so tired of my friends, band mates and current business partner (recently

started an online shop on ebay intending to open a store eventually) pull away

from me because I can't be fun all the time. Because I'm always in pain. While I

don't complain constantly or every time in in pain - its a downer on their day

when I don't feel good.

You'd think decent friends would look past that, have some compassion,

understand and try to be your friend anyway.

[Guest guest]

I don't post much mainly because I get too many email to go through.

I spent the past two days inside doing things inside because standing hurts my

spine.

I'm 21 and have fibromyalgia. I also have a slipped disc in my lower back, a

slight bulging disc in my neck and a unknown neck/shoulder injury that I'm about

to start PT for. While both discs are slight injuries - the chemical irritation

surrounding them + the chronic inflammation I have causes me to be extremely

uncomfortable most of the time.

It's incredibly sad being a 21 year old who can't work. In addition to this -

when I do work I get sick. Even when I don't work I'll catch bronchitis or

similar respiratory infections 4-5X/year. Recently, I had pertussis for almost 4

months. When I do work - its worse. And I push myself to work and do my work

well - and it's worse.

My friends don't understand. They pull away because of it. It's unmanaged and

not under control. I can't really afford to be going to all these doctors all

the time and when I did - it was minimal to no help.

My only saving grace is my fiancé. He understands and tries to help and doesn't

mind that I can't work.

I apologize for complaining. I just - right now - need to have someone hear me.

I'm so tired of my friends, bandmates and current business partner (recently

started an online shop on etsy intending to open a store eventually) pull away

from me because I can't be fun all the time. Because I'm always in pain. While I

don't complain constantly or every time in in pain - its a downer on their day

when I don't feel good.

You'd think decent friends would look past that, have some compassion,

understand and try to be your friend anyway.

- Beth son

Sent from my iPhone

[Guest guest]

Anne, have you been harmed here?  I sure hope not.  There's no place for

rudeness among people who have the same issues of pain.  We all hurt and we all

suffer from everyone who doesn't know chronic pain personally. 

It's been a rough couple of days and I'm tired of fighting to " perform " and do

my fair share. 

I can only imagine how difficult it is for you and I believe you.

Love,

Jennette

>Anne wrote:

> 

>I have not been online a whole lot lately because most of what I say is taken

the wrong way or someone gets mad. So I am ready to give up and unsubscribe

from all the groups I am on because that way I cannot be anyone else's punching

bag or sounding board for nastiness.

[Guest guest]

Beth,

I began having neck and back pain in my teens and by 24 I was diagnosed with

Degenerative Disc Disease, Fibromyalgia and osteoarthritis. I am 57 today,

raised 4 children, have been married 3 times, this time is the last. Life is

what it is and I make the most of it but I'm slow and I am hurting in so many

places.

I sure hope they find a way to stop the inflammation and pain, a cure for you

and all of us with these issues.

Take care, oh, true friends will stick with you through thick and thin, we learn

who they are.

Jennette

> Beth wrote:

> You'd think decent friends would look past that, have some compassion,

understand and try to be your friend anyway.

[Guest guest]

No one has said anything to me here. But I also cannot take any pain meds

because I have 76 drug allergies. all found by trial and error.

Now I am down to IV Fentanyl which even when I went into the ER by 911 last week

complaining of severe chest pain and a headache. They gave me nitro which

quadrupled my headache as expected. I begged for 3 HOURS for anything for pain,

tylenol, ibuprofen with benadryl, fentanyl, anything. Finally after 3 hours they

said I could choose from tylenol and ibuprofen. I should have taken both but I

took the ibuprofen (its listed on my allergy list, which is why I take it with

benadryl) because does NOTHING!

I think I am dying of a broken heart because I miss my Mom so much.

[Guest guest]

Hi again! I hope no one has hurt feelings for writing about any pain medicines

they need to take. Bennie, you have been such a blessing to me with all your

insights on medicines and procedures over the years. So have many more of you

and I am grateful. The rest of the world cannot judge us as they have not

walked a mile in our shoes. I did have my occipital nerve cut in an attempt to

get rid of some of my pain. However, if it does not do that I will continue to

take all my pills because I want to live and participate in life as much as I

can. Without them, I would be screaming and unable to move. I am thankful for

narcotic medication and all the relief it provides us. I am hopeful for new

medications that may someday replace narcotics without all the side effects and

dangers of misuse and abuse. But until that day comes, I will never begrudge

anyone's use of them to relieve pain. I love all of you and please continue to

share when you can. Becky

P.S. Please can anyone tell me the best way to get dried blood out of my hair

and scalp? The surgeon left my head a messy mixture of hair and blood. He just

wrapped bandages around my head and sent me home with instructions to use baby

shampoo around the six inches of stitches going up the back. I had no idea they

were going to shave my head. I know that was stupid of me but was furious when

I removed the bandages and saw the mess. My favorite niece is getting married

Friday and I want to look decent. I am so embarrassed to go to a beauty shop

till I get a little cleaned up. But it hurts still to touch and rub on my head.

Thanks for any help.

[Guest guest]

Hi Becky,

How horrible! I have had several rounds of stitches or staples in my scalp over

the years. I know how sensitive it is just after the stitches are put in.

I have found that putting a warm wet towel or wash cloth on the area with a dry

towel around that. Then let it sit for 10-20 minutes. I then try to gently rub

the are with the wet cloth. Rinse everything out and repeat. The blood will

moisten and you should be able to remove it fairly painlessly. The other good

thing about this technique is it allows the area to rest between gentle

scrubbings. The blood will come out easier as it the area gets wetter. You can

also decide that you are done for the day, allow it to air dry and come back to

it tomorrow.

In my younger, more agile days, I would lay on my back in the tub and soak my

head. That works really well. But if I could get into that position, I'd never

get out of the tub these days!

Those hair stylists can do fantastic things. Consider looking at hats, hair

bows or large barrettes to help cover the area depending on where exactly it is.

Good luck,

> Becky wrote:

> P.S. Please can anyone tell me the best way to get dried blood out of my hair

and scalp?

[Guest guest]

--- Jennette wrote:

>

>

> If only we would have rain.

>

Hi Jennette, I'd gladly send our rain storms to you. It's been raining here on

and off for the last three days, and more due tonight. I may float away

soon,lol.

[Guest guest]

It is probably best that you have someone help you if you can lean over the

kitchen sink or tub, then they can concentrate on the hair and be gentle with

the incision. Besides, it is good to have someone take a look to make sure it's

healing and not getting infected.

Jennette

> Becky wrote:

> Please can anyone tell me the best way to get dried blood out of my hair and

scalp?

[Guest guest]

I just looked at our long term forecast. Highs in the upper 80's and up to 98

for the next 3 weeks, with a couple of decent days. No significant rain. Indiana

is in a drought and I expect there will be a lot of crop failures due to lack of

moisture. Things were looking good till the end of May.

Our trend has been mild winter, less precipitation year round and now major

summer heat. I wish now I hadn't sold those two air conditioners. The two we

have aren't going to do much. There's a lot of people in our state without the

means to keep cool.

I'm praying the weather man is proved wrong.

Jennette

> wrote:

> I'd gladly send our rain storms to you. It's been raining here on and off for

the last three days, and more due tonight. I may float away soon,lol.

[Guest guest]

(((((((((((Beth)))))))))))) I understand what you mean! Even when you are 55

years old people still look at you like you have grown 3 horns in your head when

you try to explain. I have just about gave up on explaining.

I am glad you have a supportive person in your life. This is the place to

complain! We are all in the same boat. The more people rowing the better the

journey.

Big gentle hugs to all, Tami

---Beth wrote:

>

> It's incredibly sad being a 21 year old who can't work.

>

> My only saving grace is my fiancé. He understands and tries to help and

doesn't mind that I can't work.

>

> I apologize for complaining. I just - right now - need to have someone hear

me.

[Guest guest]

To the 21 year old lady in this group. My son was also 21 when stricken with

a spinal disease and chronic pain. My heart goes out to you. Pain has no

age minimum or maximum.

Sent from my Motorola Smartphone on the Now Network from Sprint!

[Guest guest]

Jennette wrote:

> I just looked at our long term forecast. Highs in the upper 80's and up to 98

for the next 3 weeks, with a couple of decent days. No significant rain. Indiana

is in a drought and I expect there will be a lot of crop failures due to lack of

moisture. Things were looking good till the end of May.

The moles and voles are running amok in my Hoosier yard. Their tunnels

are uprooting all my plants. A good rain and they would likely

disperse. Even where we laid fresh sod this spring, they've made a

horrible mess. Most of the sod died from their tunnels. They even killed

an ornamental tree this week. They seem to come from all over when the

soil had been watered. I expect with this drought the poor little

things are getting desperate. While I appreciate the good work both

kinds do with aerating the soil, I wish they go do it somewhere else.

My garden and yard have never looked so pathetic. And that's with 50+

years of gardening under my belt.

My home province of Saskatchewan normally gets this kind of weather, but

the soil is rich loam and can handle it. For the two years of drought

we've had in Indiana, Saskatchewan has had so much rain that the crops

were ruined by drowning.

Lyndi

[Guest guest]

That's funny you mention voles and moles.  Just today my husband's little dog

caught hold of a vole.  First one I've seen in a long while.  We live with

fields all around and pasture lands.   Maybe that's what my cat is laying in

wait for every evening out in the tall grass.

My yard has plenty of plantain and dandelion everywhere and they are still green

since their roots extend far down so the voles have come to partake of something

other than brown grass LOL. 

The moles generally do their tunneling all around and the dogs tend to dig them

out, leaving too many places to trip and fall.  So, before winter I'll fill in

the holes with some topsoil we  have saved under a tarp.

Stay cool today.  I am in east central IN near a little town called Lynn.

Jennette

Lyndi wrote:

>The moles and voles are running amok in my Hoosier yard. Their tunnels

>are uprooting all my plants. A good rain and they would likely

>disperse. Even where we laid fresh sod this spring, they've made a

>horrible mess. Most of the sod died from their tunnels. They even killed

>an ornamental tree this week. They seem to come from all over when the

>soil had been watered. I expect with this drought the poor little

>things are getting desperate. While I appreciate the good work both

>kinds do with aerating the soil, I wish they go do it somewhere else.

>My garden and yard have never looked so pathetic. And that's with 50+

>years of gardening under my belt.

[Guest guest]

I used to have friends that go to audio on tape and also they would go to

Starbucks for wireless and you can bet the crops need it so badly Bennie

> Jennette wrote:

> Indiana is in a drought and I expect there will be a lot of crop failures due

to lack of moisture.

[Guest guest]

I wish you the best Beth. You have had a difficult time. Way difficult.

> Beth wrote:

> You'd think decent friends would look past that, have some compassion,

understand and try to be your friend anyway.