Update- Primary Care

[Guest guest]

---Sorry this took so long to type, been exhausted---

My PCP appointment went as you might expect. He didn't want to hear what I

had to say. He doesn't care that I am suffering, he doesn't care that I

have no life and am bedridden at the ripe old age of 22 (or that it is

within his power to help me). He doesn't care that my systolic blood

pressure was 170 (mild to moderate flare) or that it spikes to 200. He

doesn't care that he is taking my life away from me by taking away the

Actiq. He doesn't care that I might die.

The managed care (referral department) couldn't get me a pain management

doctor and he doesn't give a damn, he refuses to do anything.

I'm at the end of my rope. I'm afraid of what will happen if it takes too

much longer for someone to help me. Recently, I've had such severe and

uncontrollable pain flares that I've been experiencing states of confusion

and dementia. Apparently, I scared the hell out of my wife when I

temporarily lost six months last week.

I keep telling myself that the Oncologist will eventually come through for

me.

Thanks again to everyone who had been replying to my messages, reading

them, keeping me in their thoughts/prayers, and simply being here for me.

Steve M in PA, age 22

Married with 4 year old daughter