Guest guest Posted July 25, 2012 Report Share Posted July 25, 2012 siouxmoore@... wrote: > After reading your post I realized how heartless my medical and emotional care is. > My pain doctor is unhappy with me because I won't accept a pain pump. It's my choice. He kind of bullies me to have a pump put in me. Chronic pain physicians often want to implant pumps, so that they will have complete control of how much medication a person is taking. Other times, they push for the pump because they believe it is the best solution. Some doctors figure it is a good way keep patients from abusing or selling their medication. If a pain physician even thinks you might fall in the abusing category, they'll really push for the pump. They'll also push for the pump, if they are getting any hassle from the DEA. (for people who live in the USA) Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2012 Report Share Posted July 25, 2012 I wish that I had a doctor who distrusted me enough to force me into a pain pump, I have been practically begging for one for over a year. My pump trial was wildly successful (80-90% relief), but no one wants to manage the pumps anymore because of the drastic drop in reimbursement over the years. If you absolutely do not want a pump, it is your right to refuse, but you may want to consider having a pump trial. If you do not have a pump trial, you will never know if it could help. Steve M in PA > siouxmoore wrote: > My pain doctor is unhappy with me because I won't accept a pain pump. It's my choice. He kind of bullies me to have a pump put in me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2012 Report Share Posted July 25, 2012 Hi Lynda, Thank you for responding. Oh no, I have lost your post. I get confused. My doctor knows me very well. He knows I do not abuse my medications. Those are good guesses though. It is possible that he has had problems with the people who check on doctors to see if there is any abuse going on in his practice. I may have to do something. If I do have to have the pain pump, I would prefer to go in the hospital. I am terrified. I have other health problems that cause this intense fear. He has also suggested a neurostimulator. Somehow it does not seem like that would work. My pain is never in one place. It is all over the place. What do I hate? I hate it when the vertebrae in my neck rub against each other. Terrible. In some ways I guess I do not trust my doctor. I kind of want a doctor in a white coat with a very professional manner. My doctor is not this type. (Maybe I am old fashioned). I live in California and all my other doctors have suggested Marijuana. (It does not work for me) The doctors who suggest that I take Marijuana do not write a script for it. (I got my prescription in another town) I just think it is strange that my current doctor would prescribe the pump but not The Pot Thanks. I am going to conquer this site. I like it. Oh, I see your response down below. , Sue, or Sioux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2012 Report Share Posted July 25, 2012 I wish you lived in California, . No, no pump. No trial. No nothing. It's a matter of trust with my doctor, I think. This may sound scary to you, but sometimes Hospice has good ideas of where to get a pump. It sounds like you're deserving. You don't have to be dying to talk to the hospice volunteers. They are great people. The are, ahem, angels You say you've been " practically " begging. Come on, come on ... BEG. Do it! Get up on their desk and bark. Demand. I guess I got out of control there but please do use a bit more force. Oh, let me know what happens! Sue. susan, siouxk siouxsek > M wrote: > I wish that I had a doctor who distrusted me enough to force me into a pain pump, I have been practically begging for one for over a year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2012 Report Share Posted July 26, 2012 Why does your doctor NOT give you a pain pump? I do not want one and my doctor always talks about them. I am getting so much worse that I really do not know how long it will be. Oh, My neck! > M wrote: > I wish that I had a doctor who distrusted me enough to force me into a pain pump, I have been practically begging for one for over a year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2012 Report Share Posted July 27, 2012 I looked into Hospice, but Medicare doesn't cover Hospice unless you agree not to undergo any life saving treatments (no problems here) and be expected to die within the next six months. I could die any second, but since they cannot pinpoint my estimated TOD, no doctor will certify me for Hospice. I cannot even get a pump office to return my calls, much less give me an appointment. I did resort to full fledged begging in two cases. Steve M in PA > sioux wrote: > This may sound scary to you, but sometimes Hospice has good ideas of where to get a pump. It sounds like you're deserving. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2012 Report Share Posted July 27, 2012 They do not make enough money managing pumps for it to be worth their time. The few offices that still manage pumps at all anymore are telling me that they only do baclofen pumps, they are not taking new patients, or they consider me a high risk candidate because I am on opioids and they do not take high risk patients. In all honesty, I have lost any hope of getting a pump. I am going to die during one of these pain flares and I am just waiting for the one that finally does me in. Steve M in PA > sioux wrote: > Why does your doctor NOT give you a pain pump? I do not want one and my doctor always talks about them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2012 Report Share Posted July 27, 2012 Oh, and I thought my doctor wanted to give me a pump because he would make more money than merely prescribing. I think that before we die from a flare we will knock ourselves out naturally. Sometimes I just stare. I am not awake and I am not asleep. It is damn pain! (also. I am not crazy but I think about going) All my relatives are in Maui and I am not happy. My pain is starting and I hate it. I am glad you're there. I am writing a book. (for my kids in CASE I die during a flare) This is a terrible situation we live in. Be well. Be here when I come back, . > M wrote > They do not make enough money managing pumps for it to be worth their time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2012 Report Share Posted July 29, 2012 /Sue/Sioux " Oh, and I thought my doctor wanted to give me a pump because he would make more money than merely prescribing. " Doctors do make more from pumps than they do from merely prescribing. If the doctor who is already prescribing for you does pumps, your odds of getting one go WAY up. If your pain medication prescriber does not do pumps, you have to find a doctor willing to accept you and they would rather get a patient that will require a lot of high priced procedures (doctors used to love pumps because of the refill procedures). Also, if you manage to find a doctor that manages pumps, you are married to them (they are stuck with you and you are stuck with them). You can get divorced, but it is a mess and finding a replacement doctor is not easy. Nobody wants to " marry " someone with baggage and a kid (pump implanted by someone else). Doctors make money on the refills, but it is generally considered not enough to be worth their time anymore. " I think that before we die from a flare we will knock ourselves out naturally. Sometimes I just stare. I am not awake and I am not asleep. It is damn pain! (also, I am not crazy but I think about going) " I used to think that, but my BP and pulse have hit record highs without me losing consciousness. Even when I sleep (I asked my wife to to check my BP and pulse in my " sleep " ), my blood pressure and pulse remain frighteningly elevated. So, knocking myself out for attacks may save my sanity, but not my heart, brain, or life. " All my relatives are in Maui and I am not happy. " I am sorry that you are away from your family. Maui sounds nice, I would have to be able to afford to go there. Do they live in Maui, or are they on vacation? Where are you and why aren't you with your family? " I am writing a book. (for my kids in CASE I die during a flare) " I have considered that on multiple occasions and even started one once, but it came out too negative. I have been meaning to give it another go, but I just can't bring myself to do it. Plus, I don't have a working netbooks (laptop is too bulky and last working netbook was stolen) and typing on this phone is far from easy, simple, or pleasant. " This is a terrible situation we live in " That it is, and getting worse by the day. " Be well. Be here when I come back, . " I will do my best to continue to be hear until the cancer kills me. Steve M in PA, age 22 Quote Link to comment Share on other sites More sharing options...
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