Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Welcome J You sure have had a busy 2005. More than your share I'd say for sure. As 2005 begins to draw to a close, here is hoping for a flat out boring 2006! Best jd, 45 UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3 Southern, IL krmpotich@... Hello Everyone > Hi Everyone, > I am new in this group and another member ask me tell about myself. > Here we go. Before immigrating from South Africa 4 1/2 years ago to > the USA I was a happy go lucky woman. Never be sick except one time > a flu, full of energy and always on the go. I am married and have > two children 12 and 17. My world crumbled from one day to another > when I went to the ER on December 13.04 because my urin was too > dark. They kept me right away in the hospital because the blood test > showed an increase in my billirubin. Two days later in the hospital > I had full blown jaundice and tests after tests were done to find > out why. I had to go through ERCP, MRI, Cat scan, you named it, I've > done it. Then they told me that I had a mass on my pancreas which > could be cancer. No word about my liver problem. After one week they > released me from hospital and transferred me to a specialist, who > took very good care of me. He told me that I have to have an > exploritory operation with the chance of the Whipple procedure at > the Cleveland Clinic. So more tests were done, more ERCP's with > biopsy's etc. Everything turned out negativ. So here I go to > Cleveland Clinic, knowing myself that I don't have cancer unless > somebody proofes this to me a 100%. I was feeling much better, > Jaundice were gone, numbers were in the normal range and than this > Professor at Cleveland Clinic (one of the most rudest doctors) told > me that despite all the facts, that I have pancreatic cancer and my > OP is scheduled in February 2005. OK, I went through the OP and what > did they find, NOTHING!!!, they took the gallbladder and found out, > that I have PSC and chronic pancreatitis. In March 05 I got another > jaundice attack and landed up again in Cleveland Clinic. This time I > received 2 internal and 2 external stents, lots of Morphin after the > OP and painkillers. Now since than I am living with this wonderful > cables coming out of my body, a big long scar in the middle like a > cut open turkey but still full of humor. I am getting my stents > changed every 2 -3 months, which is painfull enough (although they > knock you out during procedure). My numbers are great at the moment > and my Hepatologist at Cleveland Clinic even cancelled the > evaluation for the list. I know that one day down the road I maybe > have to have the transplant if the liver doesn't accept the stents > anymore, but until than, I try very hard to keep myself going, even > there are days which are very hard on me. So that is so far my story > in the shortcut version. I am glad to find a group like this, > because I think this rare disease is not rare anymore and more and > more people should get aware of this kind of Liver Disease and what > kind of impact it has. > I wish everyone a great day and I'll stay in touch. J. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 Nice to meet you . I know the feeling about relying on meds. Although I do not take what you do I know if I did not take anything I would be a disaster emotionally and I would definitely have to go on disability. I could do go on disability and still take what I take but since I work with family and they are very flexible with me I have been able to avoid it. I have a few extra pains on top my my fibro from a bad fall but otherwise I am fine. Take care, Christy > wrote: > I wanted to say I am happy to be back and hope everyone is doing > well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2012 Report Share Posted May 12, 2012 Welcome back! If I may ask, what was your old email address? (so we can look back at your old posts) Sorry to hear that you're still in pain and sorry that you have developed new pain. Steve M in PA Married with 4 year old daughter > wrote: > Hi, my name is and I was a member a little ways back but we changed carriers Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.