Re: Pain Patient Health Choices /Cindy

[Guest guest]

Thanks Bennie,

I have tried to post 2 replies, and lost both of them. About to give up, and not

sure if it was yahoo, or my computer. I will post a study I recently found that

talks about treating disease with supplements, and other treatments being used.

The info on using the ketogenic diet was about 1/2 way down. Also the Abstract

talks about ketosis. C Wallace is well known for studying mitochondrial

diseases, and now works for a Children's hospital in Philadelphia.

>

> http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3245719/?tool=pmcentrez

I will say that the diet I use does not use fake low carb products or

sweeteners, only low carb vegetables, unprocessed meats, and natural fats. The

study above talks about how ketosis can work as an antioxidant as well as, the

foods I eat have many nutrients. This is not starvation really, and this study

talks about actually taking in too much energy foods, can cause damage, as

burning energy can create byproducts.

I may try to add more later, but now as is, before I lose it.

C.

[Guest guest]

.

Agree Completely. My soapbox is though, with all the spinal injections and

concentration on making sure a pain patient isn't a druggie, Doctors working

with pain patines should do lab panels FIRST.

This comprehensive work up can identify some information that can assist a

patient with pain that is not a narcotic but is the body screaming that a

deficiency occurs. I have never had such deep bone pain, loaa of us and

weakness in my legs, and cognitive confusion. Of course with the dummification

of the medical field, the health staff on seeing my medication assumed overdose

by druggie.

I give them credit that they considered stroke but holding all my modifications

and refusing to give me my thyroid medication but bringing me ativan was " the

straw that broke the camel's back " on my recent ICU visit. I hate to admit that

a large majority of the healthcare industry that commits themselves to assisting

those in pain, judge them as if they have a person insight on what you need,

rather than listening to the patient's symptoms and if testing has been done to

address those symptoms.

I know that ativan is used in withdrawals and I am asking for my thyroid dosage

which is important to be taken at the same time every day, on an empty stomach,

and to be taken every day. This, coupled with that a Doctor hadn't seen me since

the ER and the Nurse was reluctant to call the Doctor and went to the ativan

without calling them, prompted me to say my self-empowering words, " I want to go

AMA (Against Medical Advice).

Of course, Nurse Druggie Detector could not understand why a Druggie patient

would refuse ativan, which causes calm a relaxed state but is highly

addictive.She was too concerned about druggie me to want me to have my thyroid

to keep my levels normal, she called the Doctor and brought the forms for me to

sign with that stipulation that my husband initial them.

That was it, I had it, I told her that he did not have Power of Attorney over me

and I tore off the paperwork in the corner. From that moment on Nurse Druggie

Detector became Nurse Dump the Patient out of here. My attitude is usually

better but after have an ICU Nurse stick my catheter in sideways and it was

crimping and I was coming out of the bed, she called two other Nurses (male) to

hold me down to jab it around in my bladder. Being out of my mind, I just

remember three men holding me down with curtains open and it does not present a

private setting with covers down. When you are confused and not sure what is

going around it was very scary.

I was not trained this way and do not like it for my self for others. I found

out when I went to the Endocrinologist to discuss my Vit D3 levels, she told me

that my levels were dangerously low and low levels are accumulative and not

noticeable until levels drop and symptoms escalate. I am on fifty-thousand units

a week and can really tell the difference. The importance is keeping that level

up, along with Thyroid normal, so I can keep my immune system supported.

My own experience, I have healthcare personnel workers look at the mg of

morphine I am taking and assume it is an enormously high dose, comment on it,

and cannot even conceive I could ever hurt again in my lifetime. If they were

observant, curious, or ask (rather than tell); I would tell them that is a timed

dose over twenty-four hours and works out to be under dosage of a comparable

every so many hours or times a day.

[Guest guest]

Hi Bennie,

Sorry to hear about all that. I was always on the outlook for non medication

pain relief, nothing helped me, or my body gave every indication, it did not

want it inside,and got rid of it-rash, itching, nausea,even hallucinations.

Please make sure you check your calcium and magnesium levels, as high doses of D

can affect them. Very low magnesium to calcium can affect the heart in

particular.

I have a text book on nutrition, that the forward says for nurses, etc. There

is a lot of mention of deficiencies of nutrients causing pain. C and D in

particular, but will have to look over it again to see further. Also, textbooks

will say fat helps us absorb nutrients, but still tell people not to eat it. Fat

is also needed for hormones,and many other body functions such as cognitive

function. It was the low carb/moderate protein/high fat that started the real

healing for me.

Best,

C.

>

> .

>

> Agree Completely. My soapbox is though, with all the spinal injections and

concentration on making sure a pain patient isn't a druggie, Doctors working

with pain patines should do lab panels FIRST.

[Guest guest]

wrote:

> I have a text book on nutrition, that the forward says for nurses, etc. There

is a lot of mention of deficiencies of nutrients causing pain. C and D in

particular, but will have to look over it again to see further. Also, textbooks

will say fat helps us absorb nutrients, but still tell people not to eat it. Fat

is also needed for hormones,and many other body functions such as cognitive

function. It was the low carb/moderate protein/high fat that started the real

healing for me.

,

I had to take two Nutrition classed for my Nursing Program. I started in one

state and the class was separate from my Nursing curriculum and the other was

included with my clinicals.

The vitamins group themselves and many depend on others to be absorbed like

Vitamin D3 needs the Calcium to be absorbed and you will notice on some Vitamin

combinations of Vit D3 have Calcium and Magnesium.

The Survival Guide for Intractable Pain Patients by Dr. Forest Tennant available

at paintopic.org (which also has articles on Vitamin D and others) has a section

on vitamins , minerals, and hormones needed by pain patients.

When I did research, I was surprised to learn that estrogen and other hormones

effect pain and is needed to lower pain levels. I was disappointed because I was

taken off my low level hormone and wonder if I should go back on it.

Fat is needed but it is the levels and the nutrition website I checked is from

Dummies .com (It addresses whatever subject you want to research and is written

in a format to understand)

Figure the Right Amount of Fat for Your Diet

By Jane Kirby, RD and The American Dietetic Association

Yes, you do need some fat in your diet for good health. Fat supplies essential

fatty acids and helps your body absorb the fat-soluble vitamins A, D, E, and K.

But a diet high in saturated fat and, to a lesser degree, dietary cholesterol is

linked to increased risk of heart disease.

Because fat has more calories than protein or carbohydrate, cutting down on fat

is also the easiest way to cut calories. All kinds of fat, regardless of how

saturated or unsaturated they are, have 9 calories per gram and should comprise

no more than 30 percent of your total calories. Dietary cholesterol doesn’t

provide calories, but it too should be limited — to less than 300 milligrams per

day.

The number of calories that you consume determines the amount of fat that you

can have in your diet. Keep in mind that no more than 30 percent of your daily

calories should come from fat.

When they do a Vit D3 level, the include Calcium and Magnesium.

http://www.healthalternatives2000.com/vitamins-nutrition-chart.html

This link includes minerals which we ignore sometimes. These links show the

sources for the minerals and vitamins which I like.

One important thing to consider which I did not know for years as the intrinsic

factor should be tested as it shows levels that things are absorbed as if the

gut is not working, what we ingest is not absorbed, which is a need for

probiotics to keep the gut effective.

i had mine tested when I had B12 deficiency and took B12 injections, so my gut

couldn't absorb B 12 and my Doctor stated it throws everything off key in the

gut.

http://en.wikipedia.org/wiki/Intrinsic_factor

I meant to print off the Survival Guide for Intractable Pain Patients to my

Doctor. This information was given to me from a specialist I went to that was co

founder with Dr. Tennant (the author) of a Pain Foundation and he died and he

was a great researcher, speaker, and authored many articles and dedicated his

life to managing pain patients.

It was enlightening having a Doctor that assisted and had an article to share

monthly on pain management and the legislature activity affecting pain patients

and his treatments.

So I hope that physicians start addressing Nutritional and Vitamins,Minerals and

Supplements needed to keep the immune system supported.

I appreciate your input.

Bennie