Re: Cross Post... my 4/10 appt at the pain clinic

[Guest guest]

, Anne R wrote:

>

> After i do everything they want and jump through a few more hoops... then

> they will consider talking about putting in a pain pump which seriously

> scares me... i don't need pain meds 24/7, I am afraid my body will build up

> a tolerance to the fentanyl or God forbid become allergic to it too after

> awhile. Then I am down to NOTHING!!

>

> That's all i know for now!

> Anne

>

>

Anne,

My pain psychologist was great and most pain clinics have programs that include

a staff of the pain doctor and PA's or Nurs Partitioners, a counselor, Physical

Therapist (send out),

Rehabilitists and they taper a program to met your needs.

I met my counselor and I told him where I was in my pain journey and he stated

you will not have to come monthly since you have an established program but know

I am here for your.

He said to call him quarterly. Just know you have rights and just go and you

have the knowledge and let him know why you don't trust them.

Do you have a program that build us your immune system with an immunologist ? I

had made an appointment and one of our members (Lori, that's you right ?) that

has to do this because of the pain of Lymes disease that I imagine is so painful

and her posts prompted me to continue to try to build my immune system before I

have surgery to take out my hardware.

Most pain clinics have the programs to protect themselves from the DEA and other

systems that prevent real pain patients from getting help.

Anne, don't the hydrotherapy systems that are small units rather than pools,

they are disinfected well and maybe you can ask to watch them disinfect them .

lol

I emphasize with you I had to go for debridment for a brown recluse bite twice a

week for a month to make the hole in my breast heal. Yes, the damn (excuse me)

bit me

on my breast as I walked thru a web and I didn't know it. I started as a blister

and that little light (medical background) said " No that is not from your bra

rubbing you as the

Doctor said when you happened to be there for something else.

In three days, it became black and I knew to go to the ER and when I got there

they said yes that is what it is and I thought they would just give me Keflex

shot and meds to go

home. They came in thirty minutes later and told me what room I would be in. I

stayed there three days on antibotical IVS and the physical therapist did my

debridement which was strange to me and she told me PT's are being trained to do

this.

Do you see a Diabetic specialist ? I know at Jewish Hospital our

diabetic patients go to the diabetic specialist, they do debridment and place

the tegaterm on the diabetic wounds.

There is also a gel they squirt in the wounds that allow the wounds to heal. I

was given a spray that broke down the dead tissues and new tissue came in.

I am glad I had this experience because my Mom got a decubitis ulcer on her

coccyx area even though we turned her ever two hours and we made sure she was on

super vitamins to build her system up. My Dad is tight with his Money and the

insurance will only pay for so many Tegaderm patches and he said, can we just

let it open, the home health nurse said Yes and I almost had a fit, I went down

and bought them myself and called the nurse and all of sudden, Tegaderm patches

were available to her, they just had to order them.

This is one of the experiences that I learned that I as a pain patient, I can

call insurance companies and know there is a case manager, I don't have to go

thru the Doctor office and wait until a

assistant sends my form in and puts wrong codes on them. I actually looked up

the CPT coce (current Physicians Terminology) and found the code for the Botox

procedure that I paid for at my Doctors office and the staff had told me

Medicare would not pay for the procedure.

They paid for it and I printed out the codes and mentioned that every code for

the systems that are listed in the body there is a " other section " and you can

use that code and put the justification in there. I recently had a B12 test and

Medicare did not pay as the diagnosis did not matche their payment system, well

they had put lethargy and I had to call the staff and state that we did the test

because I felt anemic and that I had these blood splotches beneath my skin like

people that take blood thinners.

I always appeal my bills that are not paid and it is sad that we as pain

patients have to do this as it takes extra time and I belong to this group to

share experience and what I know and have learned so much from other members

from their experiences. So sorry I wrote a book here, Annie but I hope you will

get ot know us and our members are great. Bennie

O