Guest guest Posted August 25, 2012 Report Share Posted August 25, 2012 Jen Longley wrote: > > > I practice the " if you don't use it, you lose it " mantra and try to keep active, etc. However, walking and standing are becoming so much more painful, especially since my last procedure. I know my PM Dr is not going to be supportive of this idea when I bring it up to him at my next visit. But, I may not have any other options. I'm not going to do anything until I finish with the IVIg infusion with Dr Schwartzman in Philadelphia -- assuming I am accepted and approved for the protocol (going on Monday to Philadelphia for tests). But, I just wanted to have my ducks in a row, so to speak, with the information I need. As always, thanks so much for your feedback and support -- I greatly appreciate it! > Be well, > Jen > > Jen, I have the same questions. For the first time, I used the motorized cart in and it was hard as I have to grasp something to walk (shopping cart). I have the walker with the seat and basket, where I can sit and walk as I need and it is light enough to load and unload. I have it in my car and when I am weak, it helps. My problem is that it hurts to sit. I used to sell for a Medical Supply Distributor and Invacare makes a good wheelchair and you can go online and look at their catalogs and get an idea of what is available. Medical Supply Companies rent them and that is what I want to do in case the one I have, I do not like, I am not stuck with it. I also am thinking of asking my Doctor for the mobility Scooter so my insurance will not deny it later because I asked for manual and I know long term, when my mobility goes that is what I will need to be active and I have been bed bound all this month and it is hard to get back to where I was. The Scooter Company will come out and do an evaluation and Medical Supply company's also provide those services if they have a person assigned to do that and do a questionnaire and your condition, insurance support, and models they have in store or to be ordered. These companies are really good about getting the information together for your Doctor and making it easier to get the insurance to cover the best option for you and provide the paperwork needed. Check out the catalogs online and the companies that offer support in your area. Let us know what you find out. I used to go with my clients to be fitted (Cerebral Palsy patients, Youth and Adults, and for my Mom). Remember your arm strength in choosing manual vs motorized. Good Luck, Jen Bennie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2012 Report Share Posted August 25, 2012 Bennie, Thanks -- I appreciate your feedback and insight! I have the same problem, sitting is painful. I have a lot of thinking, researching and talking to my PM Dr to do! Thanks again! Be well. Jen > Jen, > > I have the same questions. For the first time, I used the motorized cart in and it was hard as I have to grasp something to walk (shopping cart). > > I have the walker with the seat and basket, where I can sit and walk as I need and it is light enough to load and unload. I have it in my car and when I am weak, it helps. My problem is that it hurts to sit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2012 Report Share Posted August 26, 2012 Pam, Thanks for the info!!! Be well, Jen Pam wrote: > I also have pain sitting, and use a wheelchair. I've found having the > right cushion makes a big difference in how long I'm able to sit. Quote Link to comment Share on other sites More sharing options...
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