Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Hi Karla, If Heidi replies about Dr. Goldberg, could you please forward her reply to me? I'm considering consulting Dr. Goldberg and would appreciate her feedback if you don't mind. Thanks > > > > Subject: Re:Questions on cases of sudden adult onset of autism after Herpes infe > To: mb12 valtrex > Date: Thursday, March 11, 2010, 8:32 PM > > > Â > > > > What appears to be the usual problem is that people have many pathogens > and toxins causing the problem. A doctor may diagnose one infection and > even treat for it, but they miss the knowledge that many infections are > usually involved. It's the combination of having many infections and > toxins together that seems to be what's really going on. I am impressed > that you noticed the similarity in his symptoms and are looking into the > matter. What appears to be happening is that many have pleomorphic > bacteria, wearing down their immune system. These people will often > rarely get sick or have chronic allergies instead of 3-day flus like the > general population gets. The immune system is effected, but not in a > dramatic manner. One goes around thinking they are healthy. But, when > a virus comes around, their under-working immune system collapses, and > disabling symptoms erupt. Toxins add to the scenario and stock-pile, > since the body is too over-whelmed with the pleomorphic bacteria to > handle the toxins correctly. Such bacteria can be difficult to test > positive for while the person is ill due to their suppressed antibodies, > which are needed to show a positive to bacteria. But, when they are > well, the tests almost always come back positive for what the doctor > treated them for, via clinical symptoms. Such pleomorphic bacteria are > Lyme, Brucella, Bartonella, syphilis and mycoplasma. If you Google > these, you will find all kinds of contrasting opinions on their > symptoms, treatments and method of transmission. But, seeking out a > professional that knows how to test and treat is helping gobs of > people. LLMD's (lyme literate medical doctors), naturopaths, > homeopaths, herbalists, and various other practitioners. Sadly, most > infectious disease doctors are not considered helpful to those with > chronic symptoms by the thousands of people on the Lyme forums. Local > family doctors usually are not either, but some are willing to try to be > helpful. I will say this, I read over a 100 forum posts a day for over > 3 years, and I have seen gobs of postings of people who were disabling > ill, even deaf, crippled, blind, etc. that reversed their symptoms by > treating for pathogens and toxins. The Internet really opens doors to > knowledge. There are many natural antibacterials that may effect his > symptoms to learn of his possible response, as well. > > Love and prayers, > > Heidi N > > In Stan's letter I received when I signed up with this group regarding > comprehensive anti-infectious therapy for autism, I saw the reference to > the few known cases of adult onset of autism after a Herpes infection. > However, when I search for info on these cases, all I find is vague > references to them and nothing that actually goes into how these cases > were treated and if they were able to recover from Autism. > > I believe my dad has experienced the same thing. He had a bout with > Herpes Encephalitis in 2001 (at the age of 53) that hospitalized him for > months. When he got out we were told he would have brain damage. He had > to re-learn everything. Now that I hear about these cases I am looking > at my dad's " brain damage " symptoms differently. He has sensory issues, > social anxiety/deficits, cognitive deficits, obsessive interest in the > computer and documenting everything, and he is extremely rigid in his > routines and daily life. > > I am just looking for some info on how these past cases were treated so > that we can approach my dad's doctor with the info. Anyone have any > knowledge they can share, or know how I can find more info on these > previous cases? > > Thank you, > Barbara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 It's pretty obvious that most autism is immune dysfunction. Thus, any practitioner that treats in a manner that rebuilds the immune system is on-the-right track. Of course the digestive system needs much attention as well, since the immune system has let it become impaired. I know very little about Dr. Goldberg. It appears he knows that autism is just one of many diagnoses that are from immune dysfunction, and that he likes working on the immune system. But, I am not sure how much focus he will give to bacteria, mycoplasma, protozoa and worms which are also a part of the problem. He likes to focus on viruses. I know of a successful practitioner that also focuses mostly on viruses. Since our children appear to have problems with various pathogen types, treating for one, can free up the immune system to attack the other types, but I would think that treating for all types would be optimum. What I am learning and have now accepted, is that autism recovery is a life-style change. Changes in diet and such will need to be forever. In other words, there is something besides what is known, that is breaking down the immune system. It is likely toxins and electrosmog. If one resumes a lifestyle where toxin exposure is high, then likely a break-down of the immune system will happen again. One never rids all there pathogens, and avoiding exposure to pathogens just doesn't seem likely. Plus, pathogens linger, even though not causing symptoms, to reappear in infectious numbers when the conditions are favorable for it to do so. I guess what I am saying is that each practitioner has their own style, and even if the styles are different or missing some pieces, they can still help one recover. But, it's the parents who really do the recovery. It's just not one of those things that one can totally rely on the doctor to do, generally speaking. When I choose a doctor, I call ahead and ask how many children he/she got into managed recovery. I would like to hear the secretary respond with, " I have seen several amazing healings where the child got into regular school " . Don't settle for general statements, such as " better " or " improved " . Get the hard-core details. How many into managed recovery enough to do regular school without an Aide? Many change doctors as their child's needs change or they learn new things about their child, or use several doctors. Autism is just a darn journey and a half. But, in the end, I still say that the fastest and most dramatic symptom decreases, appear when on antibacterials. I never hear a parent say, I treated my child for measles and now she is dramatically better. They say there is an improvement. I am not saying viruses aren't awful or guilty, they are. I am just saying that bacteria seems to be the bigger problem. PANDAS is a good example on how people are dramatically getting better from antibacterials. I have heard one parent say there was a dramatic improvement when her child was exposed to a child infected with chicken pox. I have seen numerous postings where parents said their child's chicken pox antibodies were very high. Thus, this is very interesting. Exposure to chicken pox the old fashioned way might trigger the immune system to treat the latent chicken pox the child has. I am not sure why I feel wordy at the moment. Anyhow, I can not say much about Dr. Goldberg, since I have not seen him speak or taken my children to him. Actual experience is the best way to learn. There should be parents on the forums who have seen him. Love and prayers, Heidi N > > > > Subject: Re:Questions on cases of sudden adult onset of autism after Herpes infe > To: mb12 valtrex > Date: Thursday, March 11, 2010, 8:32 PM > > > Â > > > > What appears to be the usual problem is that people have many pathogens > and toxins causing the problem. A doctor may diagnose one infection and > even treat for it, but they miss the knowledge that many infections are > usually involved. It's the combination of having many infections and > toxins together that seems to be what's really going on. I am impressed > that you noticed the similarity in his symptoms and are looking into the > matter. What appears to be happening is that many have pleomorphic > bacteria, wearing down their immune system. These people will often > rarely get sick or have chronic allergies instead of 3-day flus like the > general population gets. The immune system is effected, but not in a > dramatic manner. One goes around thinking they are healthy. But, when > a virus comes around, their under-working immune system collapses, and > disabling symptoms erupt. Toxins add to the scenario and stock-pile, > since the body is too over-whelmed with the pleomorphic bacteria to > handle the toxins correctly. Such bacteria can be difficult to test > positive for while the person is ill due to their suppressed antibodies, > which are needed to show a positive to bacteria. But, when they are > well, the tests almost always come back positive for what the doctor > treated them for, via clinical symptoms. Such pleomorphic bacteria are > Lyme, Brucella, Bartonella, syphilis and mycoplasma. If you Google > these, you will find all kinds of contrasting opinions on their > symptoms, treatments and method of transmission. But, seeking out a > professional that knows how to test and treat is helping gobs of > people. LLMD's (lyme literate medical doctors), naturopaths, > homeopaths, herbalists, and various other practitioners. Sadly, most > infectious disease doctors are not considered helpful to those with > chronic symptoms by the thousands of people on the Lyme forums. Local > family doctors usually are not either, but some are willing to try to be > helpful. I will say this, I read over a 100 forum posts a day for over > 3 years, and I have seen gobs of postings of people who were disabling > ill, even deaf, crippled, blind, etc. that reversed their symptoms by > treating for pathogens and toxins. The Internet really opens doors to > knowledge. There are many natural antibacterials that may effect his > symptoms to learn of his possible response, as well. > > Love and prayers, > > Heidi N > > In Stan's letter I received when I signed up with this group regarding > comprehensive anti-infectious therapy for autism, I saw the reference to > the few known cases of adult onset of autism after a Herpes infection. > However, when I search for info on these cases, all I find is vague > references to them and nothing that actually goes into how these cases > were treated and if they were able to recover from Autism. > > I believe my dad has experienced the same thing. He had a bout with > Herpes Encephalitis in 2001 (at the age of 53) that hospitalized him for > months. When he got out we were told he would have brain damage. He had > to re-learn everything. Now that I hear about these cases I am looking > at my dad's " brain damage " symptoms differently. He has sensory issues, > social anxiety/deficits, cognitive deficits, obsessive interest in the > computer and documenting everything, and he is extremely rigid in his > routines and daily life. > > I am just looking for some info on how these past cases were treated so > that we can approach my dad's doctor with the info. Anyone have any > knowledge they can share, or know how I can find more info on these > previous cases? > > Thank you, > Barbara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 70% of the immune system is in the gut Re:Questions on cases of sudden adult onset of autism after Herpes infe> To: mb12 valtrex > Date: Thursday, March 11, 2010, 8:32 PM> > > Â > > > > What appears to be the usual problem is that people have many pathogens > and toxins causing the problem. A doctor may diagnose one infection and > even treat for it, but they miss the knowledge that many infections are > usually involved. It's the combination of having many infections and > toxins together that seems to be what's really going on. I am impressed > that you noticed the similarity in his symptoms and are looking into the > matter. What appears to be happening is that many have pleomorphic > bacteria, wearing down their immune system. These people will often > rarely get sick or have chronic allergies instead of 3-day flus like the > general population gets. The immune system is effected, but not in a > dramatic manner. One goes around thinking they are healthy. But, when > a virus comes around, their under-working immune system collapses, and > disabling symptoms erupt. Toxins add to the scenario and stock-pile, > since the body is too over-whelmed with the pleomorphic bacteria to > handle the toxins correctly. Such bacteria can be difficult to test > positive for while the person is ill due to their suppressed antibodies, > which are needed to show a positive to bacteria. But, when they are > well, the tests almost always come back positive for what the doctor > treated them for, via clinical symptoms. Such pleomorphic bacteria are > Lyme, Brucella, Bartonella, syphilis and mycoplasma. If you Google > these, you will find all kinds of contrasting opinions on their > symptoms, treatments and method of transmission. But, seeking out a > professional that knows how to test and treat is helping gobs of > people. LLMD's (lyme literate medical doctors), naturopaths, > homeopaths, herbalists, and various other practitioners. Sadly, most > infectious disease doctors are not considered helpful to those with > chronic symptoms by the thousands of people on the Lyme forums. Local > family doctors usually are not either, but some are willing to try to be > helpful. I will say this, I read over a 100 forum posts a day for over > 3 years, and I have seen gobs of postings of people who were disabling > ill, even deaf, crippled, blind, etc. that reversed their symptoms by > treating for pathogens and toxins. The Internet really opens doors to > knowledge. There are many natural antibacterials that may effect his > symptoms to learn of his possible response, as well.> > Love and prayers,> > Heidi N> > In Stan's letter I received when I signed up with this group regarding > comprehensive anti-infectious therapy for autism, I saw the reference to > the few known cases of adult onset of autism after a Herpes infection. > However, when I search for info on these cases, all I find is vague > references to them and nothing that actually goes into how these cases > were treated and if they were able to recover from Autism.> > I believe my dad has experienced the same thing. He had a bout with > Herpes Encephalitis in 2001 (at the age of 53) that hospitalized him for > months. When he got out we were told he would have brain damage. He had > to re-learn everything. Now that I hear about these cases I am looking > at my dad's "brain damage" symptoms differently. He has sensory issues, > social anxiety/deficits, cognitive deficits, obsessive interest in the > computer and documenting everything, and he is extremely rigid in his > routines and daily life.> > I am just looking for some info on how these past cases were treated so > that we can approach my dad's doctor with the info. Anyone have any > knowledge they can share, or know how I can find more info on these > previous cases?> > Thank you,> Barbara> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Thank you Heidi. Your opinion is always so valuable. Subject: Re:Heidi/Questions on cases of sudden adult onset of autism after Herpes infeTo: mb12 valtrex Date: Friday, March 12, 2010, 8:39 PM It's pretty obvious that most autism is immune dysfunction. Thus, any practitioner that treats in a manner that rebuilds the immune system is on-the-right track. Of course the digestive system needs much attention as well, since the immune system has let it become impaired. I know very little about Dr. Goldberg. It appears he knows that autism is just one of many diagnoses that are from immune dysfunction, and that he likes working on the immune system. But, I am not sure how much focus he will give to bacteria, mycoplasma, protozoa and worms which are also a part of the problem. He likes to focus on viruses. I know of a successful practitioner that also focuses mostly on viruses. Since our children appear to have problems with various pathogen types, treating for one, can free up the immune system to attack the other types, but I would think that treating for all types would be optimum. What I am learning and have now accepted, is that autism recovery is a life-style change. Changes in diet and such will need to be forever. In other words, there is something besides what is known, that is breaking down the immune system. It is likely toxins and electrosmog. If one resumes a lifestyle where toxin exposure is high, then likely a break-down of the immune system will happen again. One never rids all there pathogens, and avoiding exposure to pathogens just doesn't seem likely. Plus, pathogens linger, even though not causing symptoms, to reappear in infectious numbers when the conditions are favorable for it to do so. I guess what I am saying is that each practitioner has their own style, and even if the styles are different or missing some pieces, they can still help one recover. But, it's the parents who really do the recovery. It's just not one of those things that one can totally rely on the doctor to do, generally speaking. When I choose a doctor, I call ahead and ask how many children he/she got into managed recovery. I would like to hear the secretary respond with, "I have seen several amazing healings where the child got into regular school". Don't settle for general statements, such as "better" or "improved". Get the hard-core details. How many into managed recovery enough to do regular school without an Aide? Many change doctors as their child's needs change or they learn new things about their child, or use several doctors. Autism is just a darn journey and a half. But, in the end, I still say that the fastest and most dramatic symptom decreases, appear when on antibacterials. I never hear a parent say, I treated my child for measles and now she is dramatically better. They say there is an improvement. I am not saying viruses aren't awful or guilty, they are. I am just saying that bacteria seems to be the bigger problem. PANDAS is a good example on how people are dramatically getting better from antibacterials. I have heard one parent say there was a dramatic improvement when her child was exposed to a child infected with chicken pox. I have seen numerous postings where parents said their child's chicken pox antibodies were very high. Thus, this is very interesting. Exposure to chicken pox the old fashioned way might trigger the immune system to treat the latent chicken pox the child has. I am not sure why I feel wordy at the moment. Anyhow, I can not say much about Dr. Goldberg, since I have not seen him speak or taken my children to him. Actual experience is the best way to learn. There should be parents on the forums who have seen him. Love and prayers,Heidi N> > > From: allrpossible@ ... <allrpossible@ ...>> Subject: Re:Questions on cases of sudden adult onset of autism after Herpes infe> To: mb12 valtrex@ yahoogroups. com> Date: Thursday, March 11, 2010, 8:32 PM> > > Â > > > > What appears to be the usual problem is that people have many pathogens > and toxins causing the problem. A doctor may diagnose one infection and > even treat for it, but they miss the knowledge that many infections are > usually involved. It's the combination of having many infections and > toxins together that seems to be what's really going on. I am impressed > that you noticed the similarity in his symptoms and are looking into the > matter. What appears to be happening is that many have pleomorphic > bacteria, wearing down their immune system. These people will often > rarely get sick or have chronic allergies instead of 3-day flus like the > general population gets. The immune system is effected, but not in a > dramatic manner. One goes around thinking they are healthy. But, when > a virus comes around, their under-working immune system collapses, and > disabling symptoms erupt. Toxins add to the scenario and stock-pile, > since the body is too over-whelmed with the pleomorphic bacteria to > handle the toxins correctly. Such bacteria can be difficult to test > positive for while the person is ill due to their suppressed antibodies, > which are needed to show a positive to bacteria. But, when they are > well, the tests almost always come back positive for what the doctor > treated them for, via clinical symptoms. Such pleomorphic bacteria are > Lyme, Brucella, Bartonella, syphilis and mycoplasma. If you Google > these, you will find all kinds of contrasting opinions on their > symptoms, treatments and method of transmission. But, seeking out a > professional that knows how to test and treat is helping gobs of > people. LLMD's (lyme literate medical doctors), naturopaths, > homeopaths, herbalists, and various other practitioners. Sadly, most > infectious disease doctors are not considered helpful to those with > chronic symptoms by the thousands of people on the Lyme forums. Local > family doctors usually are not either, but some are willing to try to be > helpful. I will say this, I read over a 100 forum posts a day for over > 3 years, and I have seen gobs of postings of people who were disabling > ill, even deaf, crippled, blind, etc. that reversed their symptoms by > treating for pathogens and toxins. The Internet really opens doors to > knowledge. There are many natural antibacterials that may effect his > symptoms to learn of his possible response, as well.> > Love and prayers,> > Heidi N> > In Stan's letter I received when I signed up with this group regarding > comprehensive anti-infectious therapy for autism, I saw the reference to > the few known cases of adult onset of autism after a Herpes infection. > However, when I search for info on these cases, all I find is vague > references to them and nothing that actually goes into how these cases > were treated and if they were able to recover from Autism.> > I believe my dad has experienced the same thing. He had a bout with > Herpes Encephalitis in 2001 (at the age of 53) that hospitalized him for > months. When he got out we were told he would have brain damage. He had > to re-learn everything. Now that I hear about these cases I am looking > at my dad's "brain damage" symptoms differently. He has sensory issues, > social anxiety/deficits, cognitive deficits, obsessive interest in the > computer and documenting everything, and he is extremely rigid in his > routines and daily life.> > I am just looking for some info on how these past cases were treated so > that we can approach my dad's doctor with the info. Anyone have any > knowledge they can share, or know how I can find more info on these > previous cases?> > Thank you,> Barbara> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 Hi Heidi, My 15 year old has been seeing A DAN on/off for almost a year now. We've put him on the GFCF diet and lots of supplements like Kirkman's supernuthera,amino acids, mitochondria support, omega oils, probiotics etc.. about 15 different ones. My question is - if we need to treat yeast first, should he be on so many supplements ? He was later put on Nystatin for 2 months and there was no change. His OAT showed slight yeast so I don't know if that is his problem or something else ( bacterial or viral) I decided to cut down on the supps and just carried on with the probiotics, Omega oils and candex/ virastop for yeast and still not much change. He has eczema and that hasn't cleared up so it's really frustrating dealing with all these co-occurring problems. Do you have a template that I could use ? At least I'll have a starting point and know what to look out for and do at each stage. His OCD behaviours are really hard to kick....I discovered he's sensitive to saliscylates too so he's on a low sals/phenol diet. Really hard as we indians eat stuff full of saliscylates... I would appreciate any info you can pass on as I'm pretty much on my own trying to piece my son's health puzzle. Btw, I tried to access the photo album for lyme disease which you posted sometime last year -my son has what looks like stretch marks but he's a skinny boy ! With much gratitude, > > > > > > From: allrpossible@ <allrpossible@> > > Subject: Re:Questions on cases of sudden adult onset of autism after Herpes infe > > To: mb12 valtrex > > Date: Thursday, March 11, 2010, 8:32 PM > > > > > > Â > > > > > > > > What appears to be the usual problem is that people have many pathogens > > and toxins causing the problem. A doctor may diagnose one infection and > > even treat for it, but they miss the knowledge that many infections are > > usually involved. It's the combination of having many infections and > > toxins together that seems to be what's really going on. I am impressed > > that you noticed the similarity in his symptoms and are looking into the > > matter. What appears to be happening is that many have pleomorphic > > bacteria, wearing down their immune system. These people will often > > rarely get sick or have chronic allergies instead of 3-day flus like the > > general population gets. The immune system is effected, but not in a > > dramatic manner. One goes around thinking they are healthy. But, when > > a virus comes around, their under-working immune system collapses, and > > disabling symptoms erupt. Toxins add to the scenario and stock-pile, > > since the body is too over-whelmed with the pleomorphic bacteria to > > handle the toxins correctly. Such bacteria can be difficult to test > > positive for while the person is ill due to their suppressed antibodies, > > which are needed to show a positive to bacteria. But, when they are > > well, the tests almost always come back positive for what the doctor > > treated them for, via clinical symptoms. Such pleomorphic bacteria are > > Lyme, Brucella, Bartonella, syphilis and mycoplasma. If you Google > > these, you will find all kinds of contrasting opinions on their > > symptoms, treatments and method of transmission. But, seeking out a > > professional that knows how to test and treat is helping gobs of > > people. LLMD's (lyme literate medical doctors), naturopaths, > > homeopaths, herbalists, and various other practitioners. Sadly, most > > infectious disease doctors are not considered helpful to those with > > chronic symptoms by the thousands of people on the Lyme forums. Local > > family doctors usually are not either, but some are willing to try to be > > helpful. I will say this, I read over a 100 forum posts a day for over > > 3 years, and I have seen gobs of postings of people who were disabling > > ill, even deaf, crippled, blind, etc. that reversed their symptoms by > > treating for pathogens and toxins. The Internet really opens doors to > > knowledge. There are many natural antibacterials that may effect his > > symptoms to learn of his possible response, as well. > > > > Love and prayers, > > > > Heidi N > > > > In Stan's letter I received when I signed up with this group regarding > > comprehensive anti-infectious therapy for autism, I saw the reference to > > the few known cases of adult onset of autism after a Herpes infection. > > However, when I search for info on these cases, all I find is vague > > references to them and nothing that actually goes into how these cases > > were treated and if they were able to recover from Autism. > > > > I believe my dad has experienced the same thing. He had a bout with > > Herpes Encephalitis in 2001 (at the age of 53) that hospitalized him for > > months. When he got out we were told he would have brain damage. He had > > to re-learn everything. Now that I hear about these cases I am looking > > at my dad's " brain damage " symptoms differently. He has sensory issues, > > social anxiety/deficits, cognitive deficits, obsessive interest in the > > computer and documenting everything, and he is extremely rigid in his > > routines and daily life. > > > > I am just looking for some info on how these past cases were treated so > > that we can approach my dad's doctor with the info. Anyone have any > > knowledge they can share, or know how I can find more info on these > > previous cases? > > > > Thank you, > > Barbara > > > Quote Link to comment Share on other sites More sharing options...
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