Re: Need Help

[Guest guest]

Hi Larry, welcome to our group of people with chronic pain.  Only we can relate,

the others who are blessed to be without daily pain just can't understand how

much stress and work it is to try to get along from day to day.

I take opioid medication to give me the level of pain I need to function,

although it only addresses some of my pain. 

My body needs good rest, good food and less stress every day.  The fast pace

that the world requires, just doesn't allow me to join in anymore.  I have to go

at my own pace.  

I think one thing that helps is to plan my days where I have the time to devote

to rest.  Just to be able to stop what I'm doing, sit or prop myself up with

pillows and put my feet up, rest my neck by laying my head on a pillow so that

the stress is off my spine will prevent those super big muscle spasms.  It's

what my body needs to be able to continue with my day. 

Pushing through the pain ruins the next day, so I avoid doing it.  Otherwise

every day will be miserable, beyond what I can live with. 

My doctor seems to believe my body is in a state of inflammation and I agree. 

The fatigue is unbelievable to the average person.  I don't look like it, but if

I get to that miserable place, everyone can see I'm ill.

That's a simple step I take to try and help myself, that and meditating on

pleasant thoughts, putting myself in a place that makes me glad.  Listening to

certain nature sounds, or to music of native people meant to sooth the soul.  I

love music from hand made instruments from around the world, and the native

American people.  Especially the flute with it's mesmerizing sounds.

Life is all the little things wrapped into each day.  Try to simplify your life.

Jennette

> Larry wrote:

> I really need advice on how to get by living with pain and am sure reading the

posts might give me some answers or what to take.

[Guest guest]

Thank you Jennette for your reply.

I have read your reply several times and so much of it is so true about what is

going on with the pain in my life.Can not figure out what your doctor meant by

being in a state of inflammation. Maybe that's my problem. My back muscles spasm

when they come, will put me down flat for four days until the pain lets up and I

can get up and around. It is so hard to be so careful as to not bring one of

those spasms on. It`s like getting a big electrical shock. As crazy as this

sounds taking a ride on my motorcycle helps. Maybe it`s the vibrations the

engine gives off.The worst part is getting on and off.

I also take opioid medications and have started to maybe rely on them to much

but without them I would not be able to still work like I do when I can. Like

you my body needs lots of rest and I eat healthy most of the time.I use to like

to have a drink now and then but now have no desire to drink at all and the

doctor told me that the meds I am using have satisfied my need receptors for

alcohol and that is why I have no desire for alcohol. Have a short one and get

a bad migraine.

I am also into the native American ways and native music. We have a sweat lodge

here back in our woods built by a tribal Holyman. When he came here and was

building the sweat lodge he said that this spot would always be sacred from now

on. He did the sweat for us and I can say it was rough but never in my life did

I sweat so much or feel so wonderful the next days. I think a native sweat would

help many here if one could stand the heat. He was happy that a big bear had

passed thru just before the sweat and said that was a good sign.

Thank you again Jennette. I have probley simplified my life like you have pretty

much some time ago.

Larry

--- Jennette wrote:

>

> Hi Larry, welcome to our group of people with chronic pain.  Only we can

relate, the others who are blessed to be without daily pain just can't

understand how much stress and work it is to try to get along from day to day.

>

> I take opioid medication to give me the level of pain I need to function,

although it only addresses some of my pain. 

>

> My body needs good rest, good food and less stress every day.  The fast pace

that the world requires, just doesn't allow me to join in anymore.  I have to go

at my own pace.  

[Guest guest]

Mar 22, 2012, at 11:01 PM, Larry wrote:

> Greetings ,

>

> I am new here. Sorry that all of the group here has to live with so much pain

and suffering. I really need advice on how to get by living with pain and am

sure reading the posts might give me some answers or what to take. Have had

lymes for several years and several motorcycle back and hip injuries years ago

along with other pain related things one being getting older. Mornings are

awful with the pain and have to med up and wait for an hour or two before I can

do much of anything. Found the post by Lori very helpful with so many things I

can relate to.

>

Larry,

Welcome and sorry you are living with Lymes . I live in Austin and a very

prominent Lymes Specialist, Ginger Savely, got ran off because of the good ole

boys at the Texas Medical Society stating her protocol was too different and she

was stating Lymes more prevalent than they thought it was, but it is according

to the CDC.

Ginger Savely is now a renown Speaker and Author on Lymes and people fly

worldwide to Washington , D. C. to see here and her Austin patients do also.

Morning is really awful.

I find knowing about research and keeping current on treatments and finding

specially organizations about my disorder help me and empowers me.

www.lymediseaseassociation.org/

Ginger Savely, site is http://www.gingersavely.com/. Her patients get more

relief and I think that she does longer antibiotic therapy than other Doctors

do. I am told she answers e-mails and has her e mail address posted on the

website. I grew up on a farm and remember pulling ticks out of my naval, head,

and we used to back them out by putting a lighter or match close to them

I can't tell you the number of them I have had and after being in the woods and

we did have deer tick, we always had a " tick check " and I remember them crawling

up my clothes all the time and some had become so embedded I just left the head

in.

Common pass times was picking ticks off the dogs and cows on the farm and these

" wolve " things that burrow in their skin and you can you can just pop them out

and they go up in the air.

Pretty boring life ? Well, Larry welcome and this is a great group and you will

find the members to be great and helpful. If I can ever assist you, just ask. I

deal with back and sacral ilac problems.

Bennie