help with test results

[Guest guest]

Hey all I am sending this to all the Yahoo groups I am on so sorry if I double

post. I am hoping someone has any info on an odd result I received from a

Rheumatoid arthritis test I had done. First I will give you all the results then

the question on the odd one.

F Rheumatoid factor Value:12 Ref range: <14IU/ml

F ANA SCREEN, IFA Value: negative Ref Range: Negative

F SED RATE BY MODIFIED WESTERGREN Value:1 Ref range:<OR=20mm/h

It's the last result the confused my doctor, He said he has never seen or heard

of a value 1 on that test. If it had been a negative value he would have had a

hundred different possibility's but with a positive result it means nothing. How

can something never be heard of and not mean anything at same time?

He also told me my symptoms look like Lupus to him but the test say's I don't

have Lupus. I have lost count on the test's I have had over the years that say

the result's show one thing but because of one other test being one way or the

other it cancels it out.

In other words I ALMOST have Lupus and Almost have Lyme Disease and Almost have

several other things but not quite. For almost 2 decades I have been trying to

find out what is wrong with me and so far have a whole bunch of guesses.

Some things are proven like Hep C, Padgetts and Osteoporosis. but does not

explain why my body has been slowly destroyed for going on 30 years now. Started

out slow with a left knuckle then matching right then another left knuckle then

matching right till every joint in hands done then it would move to feet,

wrists. ankles, elbows, etc. Always left to right outer extremity's in till it

got to spine but could not make the jump so it started over.

It would take a year or so to make it's rounds till I did Interferon. Very first

injection everything sped up to under a year to make it's rounds. Then I did

interferon a second and third time to where it was doing it in 3 months and

still is.

Every joint in body except spine feels like it was hit with hammer, Every long

bone feels like a bad toothache does, Every tendon feels like they have shrunk

and have to constantly stretch even in my sleep and every muscle feels like when

you are almost at the end of a running race and all the energy leaves your

muscles.

My new fun symptom for the last 2 years is my skin hurts bad especially the skin

on my butt because I am forced to always be on it. What do you do when you can't

stand, sit, lay, walk or bend and squat. It's like one of those horror movies

where the guy wakes up and it's the same day over and over. Oh and the fatigue

is ever present.

The only thing I have found that helps is opioids and I am so sick of taking

then but without them I would have to seriously consider going Dr. Kevorkian and

I really don't want to go there, It must be bad when that is an actual viable

option. Just crazy

I have tried muscle relaxers and all of those depression meds that have a duel

purpose like Gabapentin and Savella with no luck at.

Sorry this turned out so long but hoping someone somewhere has heard of this.

Oh' and it's not my Thyroid either. Any ideas at all are welcome and anyone can

e-mail me offline.

Thanks a bunch for listening to me

Butch