Guest guest Posted March 2, 2000 Report Share Posted March 2, 2000 In a message dated 3/2/00 4:51:44 PM Central Standard Time, briffle@... writes: << Has anyone heard from Karyn since yesterday afternoon? >> It was really nice to know that I was missed. I have begun to develop a personal relationship with so many of you. When I don't see you post much, I begin to worry as well. << I hope she is OK.>> As a matter of fact I have been having a hard time this week. My serum albumin is low and I have developed severe fluid retention. I have gained 21 pounds in 13 days. It has caused me to feel very bad, with shortness of breath, difficulty moving around, My entire body is swollen. My TPN prescription was adjusted yesterday. The protein was increased and the lipids and dextrose were decreased. My rate was decreased from 83 to 67cc/hr. I still am hooked up 24/7. My pain has also escalated and I am needing to take more boluses of the IV morphine as well as Percocet. I hate taking that much narcotics because it adds to my tiredness. I also fell on the ice a couple of weeks ago and hurt my elbow. It seems as if there is fluid collection in the joint and the doctor wants to aspirate the fluid out with what I think is a HUGE syringe and needle. I had no choice but to decline the offer at this time. Between the TPN and the acupuncture I am trying to do I can't have one more needle inserted into my body. Speaking of acupuncture, which my insurance did approve, amazingly....I have had one treatment. It was the most horrifying experience I have ever had. Almost worse than my pancreatectomy because I was awake. Every needle hurt as it was being stuck in every part of my body. I was scared to death when he stuck the very long, probably 2 inch needles, around my eyes. I cried the entire hour and 15 minutes I was there. I even took my hypnotherapist with me to help me relax. I finally cried out that " I do not want to be a wet noodle!!!!!!! I want to go home!!!!!!!!!!! " My doctor truly did feel bad that it was, (this is an understatement) a bad experience. He ordered me, yet another drug, Lorazapam, for me to take prior to my next session. So over all, my body just aches. I feel sick, and it is difficult for me to really verbalize exactly what I mean. I am willing to try anything that seems remotely possible to help. My frustration isn't so much that I am not able to do as much as I need to for myself. I want to make some progress on my book. I know that it will benefit so many people and help them to understand what this disease is all about and what these treatments and the choices are, etc. As I write the pages keep growing and new chapters seem to appear. I also am so dedicated to this Network, to the members (who actually make this become a reality), and to its growth and development, online and in local cities. My heart longs to do so many things. Yet, I forget, that I am also very, very ill. My capabilities are limited. But, my compassion is endless. Thus, my soul continues to spread wings and fly. And in that I find peace. Karyn <A HREF= " http://hometown.aol.com/karynwms/myhomepage/business.html " >Pancreatit is Support Network</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2000 Report Share Posted March 3, 2000 Karyn, You are one incredibley strong human being! Though I know you are soooo very sick, the contribution (s) you are making to this worl & to us is unbelievable. Thank you so very much for organizing this group and for the valuable information & insight that you provide to all of us. Cheryl Re: Concerned > From: KarynWms@... > > In a message dated 3/2/00 4:51:44 PM Central Standard Time, > briffle@... writes: > > << Has anyone heard from Karyn since yesterday afternoon? >> > > It was really nice to know that I was missed. I have begun to develop a > personal relationship with so many of you. When I don't see you post much, I > begin to worry as well. > > << I hope she is OK.>> > > As a matter of fact I have been having a hard time this week. My serum > albumin is low and I have developed severe fluid retention. I have gained 21 > pounds in 13 days. It has caused me to feel very bad, with shortness of > breath, difficulty moving around, My entire body is swollen. My TPN > prescription was adjusted yesterday. The protein was increased and the lipids > and dextrose were decreased. My rate was decreased from 83 to 67cc/hr. I > still am hooked up 24/7. My pain has also escalated and I am needing to take > more boluses of the IV morphine as well as Percocet. I hate taking that much > narcotics because it adds to my tiredness. I also fell on the ice a couple of > weeks ago and hurt my elbow. It seems as if there is fluid collection in the > joint and the doctor wants to aspirate the fluid out with what I think is a > HUGE syringe and needle. I had no choice but to decline the offer at this > time. Between the TPN and the acupuncture I am trying to do I can't have one > more needle inserted into my body. > > Speaking of acupuncture, which my insurance did approve, amazingly....I have > had one treatment. It was the most horrifying experience I have ever had. > Almost worse than my pancreatectomy because I was awake. Every needle hurt as > it was being stuck in every part of my body. I was scared to death when he > stuck the very long, probably 2 inch needles, around my eyes. I cried the > entire hour and 15 minutes I was there. I even took my hypnotherapist with me > to help me relax. I finally cried out that " I do not want to be a wet > noodle!!!!!!! I want to go home!!!!!!!!!!! " > > My doctor truly did feel bad that it was, (this is an understatement) a bad > experience. He ordered me, yet another drug, Lorazapam, for me to take prior > to my next session. > > So over all, my body just aches. I feel sick, and it is difficult for me to > really verbalize exactly what I mean. I am willing to try anything that seems > remotely possible to help. > > My frustration isn't so much that I am not able to do as much as I need to > for myself. I want to make some progress on my book. I know that it will > benefit so many people and help them to understand what this disease is all > about and what these treatments and the choices are, etc. As I write the > pages keep growing and new chapters seem to appear. I also am so dedicated to > this Network, to the members > (who actually make this become a reality), and to its growth and development, > online and in local cities. > > My heart longs to do so many things. Yet, I forget, that I am also very, very > ill. My capabilities are limited. But, my compassion is endless. Thus, my > soul continues to spread wings and fly. And in that I find peace. > > Karyn > > > > > <A HREF= " http://hometown.aol.com/karynwms/myhomepage/business.html " >Pancreatit > is Support Network</A> > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > http://click./1/936/0/_/593940/_/952061514/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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