Beds, comfort, reply to group, , Janet

[Guest guest]

Thanks to both of you for your kind responses to my questions about beds and

pressure points. I appreciate all of the advice and things that have worked for

you. I wish I had more time to post; I am so busy with work and Rotary right now

but that is good since distraction is the best pain control for my headaches.

I am fascinated that a hospital bed can make such a big difference. I am

wondering if there are any other members who have experienced such amazing

results. I have already bought one new bed (and traded it for

a different one after a week) but no help. I have been using a mattress topper

off an on for a few years.

I have thought about getting a new recliner. I just spent 5 nights in

a new recliner at a rental house in an enclosed room with no light, windows or

sound and I had the best sleep ever.

Have you or anyone else been diagnosed with a specific condition that results in

joint pain, pressure so bad that pillows have to be used, and so on? I am only

47 years old and I am too young to have all of these problems!

Thanks again to , Janet, anyone else. While I still won't likely have the

time to post very much, I will be reading everything and responding when I can!

Washington State

[Guest guest]

As tempting as I would find the recliner as a regular sleeping place, I wonder

about the long term effects on the skeletal system. We're not made to sleep that

way but I understand the desperation that leads to those sorts of choices,

having been driven to several of them myself. (smile)

As to being diagnosed with something that explains joint pain and pressure

that's painful enough to use a pillow to protect against, yes and no. My doctor

likes to blame all of my pains on Lyme disease. It's true that I have have

" migratory arthralgia " since having Lyme, but I really think that's a lazy

approach. I have mottling in the same places that hurt when they touch that

worsens with cold or heat, and have an ache in the back of my upper legs so bad

that I can barely deal with a pillow under my lower legs when I'm laying on my

bed, but he just sort of shrugs and says, " Well, this is usual for you. " I'd

like to know what the heck that means! My old faithful pains, like the migratory

arthralgia, I don't bother complaining about; if I bring it up at all it's

usually a new issue.

I hope you get some relief soon! And that you feel up to posting more.

>

> > I have thought about getting a new recliner. I just spent 5 nights in a new

recliner at a rental house in an enclosed room with no light, windows or sound

and I had the best sleep ever.

>

> Have you or anyone else been diagnosed with a specific condition that results

in joint pain, pressure so bad that pillows have to be used, and so on? I am

only 47 years old and I am too young to have all of these problems!

>

> Thanks again to , Janet, anyone else. While I still won't likely have

the time to post very much, I will be reading everything and responding when I

can!

>

>

> Washington State

>

[Guest guest]

- wrote:

>

> As to being diagnosed with something that explains joint pain and pressure

that's painful enough to use a pillow to protect against, yes and no. My doctor

likes to blame all of my pains on Lyme disease. It's true that I have have

" migratory arthralgia " since having Lyme, but I really think that's a lazy

approach. I have mottling in the same places that hurt when they touch that

worsens with cold or heat, and have an ache in the back of my upper legs so bad

that I can barely deal with a pillow under my lower legs when I'm laying on my

bed, but he just sort of shrugs and says, " Well, this is usual for you. " I'd

like to know what the heck that means! My old faithful pains, like the migratory

arthralgia, I don't bother complaining about; if I bring it up at all it's

usually a new issue.

,

Fibromylagia, my SI syndrome, performs syndrome, lupus, and auto immune

disorders do not care what age you are, and I have problems getting REM sleep

(deep sleep) that is the restorative sleep, to feel better.

This happens especially during flare ups. Pain with Lyme disease has been said

to be very bad. I cannot stand anything to be against me and my " hair " even

hurts sometimes in a fibro flair. I cannot stand any touch during flairs.

I remember pain like this being described as " lumbago and myositosis " and my

Grandma taking Doans pills for it.

As for Lyme disease, it is very hard and specific to treat and where I live in

Austin TX, a nurse practitioner (see below note), who was having great results

was forced to leave Texas. Texas also was afraid of the knowledge Lyme disease

and disease more prevalent than thought in years before.

Note from internet search:

Central Texas' only Lyme specialist, Nurse Practitioner Ginger Savely, was

forced to close her Austin practice on March 31, 2006. Her decision was the

direct result of a phone call to her supervising physician from the Executive

Director of the Texas Medical Board (TMB) advising him that continuing to

practice with Savely would put his medical license at risk. This turn of events

was especially stunning coming only one year after she received the 2004 Texas

Nurse Practitioner of the Year Award for her work with Lyme patients.

The CDS has reports maps on its website and you can seen the increase posted

there.

I hope you are getting good treatment for your Lymes' and that your care will

keep you out of pain or progression.

Good Luck Bennie