Re: patellofemoral syndrome - anyone?

[Guest guest]

Re: patellofemoral syndrome

Of course you are the only one along with the help of a specialist to

decide what to do so this is just a thought. Our son in laws friend

that is nearly 40 had both of his knees done this past year about six

months apart. Most advice is to wait as long as you can and I guess he

did. He is overweight and a big man but he is so happy to have it over

with and no pain. NO pain. He is quite active and a hard worker.

I guess this is just a story of someone I know but it is a success

story and wanted to share it with you.

Good luck in whatever decision you make.

Lois

> Staci wrote:

> So, I saw another surgeon and he said it was patellofemoral syndrome.

> Basically, in my case, my knee cap strays, bumps into my tibia and femur and

whatever else. It slides around...doesn't stay in place.

[Guest guest]

>Staci wrote:

> " So, I saw another surgeon and he said it was patellofemoral syndrome.

Basically, in my case, my knee cap strays, bumps into my tibia and femur and

whatever else. It slides around...doesn't stay in place. "

Hi Staci,

What an awful situation to be in. I wouldn't want to have a joint replacement

either. The only thing I can think of (and perhaps you've already tried this)

is to wear one of those Velcro/elastic knee braces like you can by in the

pharmaceuticals section of the store. Perhaps if your patella is immobilized,

there will be less pain?

Take care,

Swannie () in OR

[Guest guest]

I do not have this.  I have lived for the past 9 years with bone on bone in

several places,  and for 16 years with high doses of steriods due to a brain

tumor that was removed as well as many other health issues. Pain and meds to

help the pain I know all about.

 

As far as my knees go I know what horrible pain is. Bone on bone is no fun! I

have undergone synsvic type shots (I had synsvic until I became allergic to the

brand) for 6 years every 6 months. I have had orthoscopic surgery to remove

spurs, you name it has been done to my knees to try to help the pain.

 

Finally I was deemed old enough 55 to have knee replacement. My left knee cap

had moved to the side. Last September I had the left knee done and what a

difference! Recovery was a little longer than most people as the damage was alot

worse than most people to the muscles and surrounding tissue. At this typing I

can do things I have not been able to do in years!

 

I am scheduled to have my right knee done the end of February. I could have had

it done in December but due to my daughter having some tests done I opted to

wait until Feburary. Come spring I plan to take walks and smell the flowers

again.

 

The steriods will still play havoc with the other joints but at least I will be

able to walk. I have found out that they can do replacements much sooner age

wise than they used to, you just need a surgeon that is younger and trained in

the last few years. You must also realize that they only last about 20 - 30

years. Part of the replacement will have to be replaced at that time. Make sure

you research thoroughly any doc you use, not all docs are created equally.  

Gwen 

[Guest guest]

--- " thegrrl_sf " wrote:

>

> > So, I saw another surgeon and he said it was patellofemoral syndrome.

Basically, in my case, my knee cap strays, bumps into my tibia and femur and

whatever else. It slides around...doesn't stay in place.

>

There's lots of information on patellofemoral syndrome online. In less

politically-correct times, it used to be called " secretary's knee " because it

becomes very painful when you sit with your knee bent at a 90 degree angle for

any period of time. It's also called " theater knee " for the same reason.

It's actually very common, and more common among women than men. Something

about the way our bodies are built with our hips wider than men's lines up the

kneecap wrong.

I have it too. It's the reason I can't go to movies anymore - there's no where

to stretch your legs out. And plane rides can be agony if i can't sit in an

aisle seat where I can straighten my legs out every now and then. Going down

stairs is impossible.

I've dealt with it since I was a pre-teen (now in my 40s). I also have lost all

cartilege in my knees and have been bone-on-bone for decades. Unfortunately (or

fortunately, depending on how you look at it) my knees are the least of my

problems, so doctors just ignore them when I ask for help with them. Oh well.

There are some simple physical therapy exercises you can do to significantly

improve the situation and actually realign the kneeccap - you need to insist

your doctor sends you to a very experienced Physical Therapist. Icing and

anti-inflamatories also helps when the pain becomes acute. Soft bracing (elastic

bandages or infrapatellar strap) can also help too. There are even orthotics

available that can help realighn things. Luckily it's one of those conditions

that really can be improved through exercise and management (especially avoiding

sitting in a bent-knee position), thankfully.

Here are several reputable websites with helpful information:

http://tinyurl.com/3y3dld

http://tinyurl.com/bhkv76

http://tinyurl.com/yzlkwfj

Cheryl in AZ

Moderator

[Guest guest]

> e: patellofemoral syndrome

>

>> Staci wrote:

>

>

>> So, I saw another surgeon and he said it was patellofemoral syndrome.

>> Basically, in my case, my knee cap strays, bumps into my tibia and femur and

whatever else. It slides around...doesn't stay in place.

>

> Staci:

I don't have the patellofremoral, I have a hip -tuberosity syndrome like this

and I have hyper-mobility and it slides around shearing

on my muscles and causes all kind of heck.

I had chrondemalchia and my knees grated when I walked. Do you use a brace ? I

have to, to make the SI, hip stay in place.

Bennie