thank-you all so much

[Guest guest]

Hi everyone!

Thanks to all of you who have welcomed me. This is a friendly,

helpful group for sure. I'm beginning to get a taste of the running

around that you all have been doing (and getting) for some time now.

Today I spent chasing records. I have a great need-to-know about

my son's bilirubin count for the few weeks period after his birth.

I want that knowledge -- I want to know if that might or might not

be the cause... and of course I want all the information possible

available to the ENT on Thursday when he talks to us about the

results of Eamon's CT scan and blood tests.

I had called our doctor's office early last week to ask for that

information, and had not received a call-back -- so, I stopped by

there today to look at the records myself. No records for my son

anywhere to be found. Nightmare. (for me and the lady in charge of

the records I am sure) She mentioned getting the call, and said

" That's the one we were looking for. " Uh oh... They all looked for

a while. No Luck. They promised to keep looking.

So, I made an appointment for Thursday morning for a well-child

check (my son is due for one). That gives them more time to find his

record, and gives me (hopefully) the information I need to take to

the ENT Thursday afternoon.

There're more to this story, I visited two other places in my search

for records of my son's bilrubin testing and results... but this was

not much trouble compared to some things I've been reading others

have had to go through... so I'll spare you.

I just wanted to say Thank-you to you all -- and the information that

I have received so far from this group (like the information on the

assistive listening technology from today) has been and will be very

helpful on Wednesday for the IEP meeting. I'm not expecting to be

given a hard time at the IEP meeting -- but at least I know enough

now to stand my ground if I am.

take care,

Pat

(PS -- the super-duper-wonderful audiologist just called and said

that she was going to fax an addendum to the initial report that

states that an FM system is recommended for my son...)

(whew!)

[Guest guest]

Pat wrote:

Today I spent chasing records. I have a great need-to-know about my son's

bilirubin count for the few weeks period after his birth. I want that knowledge

-- I want to know if that might or might not be the cause... and of course I

want all the information possible

available to the ENT on Thursday when he talks to us about the results of

Eamon's CT scan and blood tests.

Hi Pat,

I am just curious as to why you are interested in the bilirubin count? Have

you read something about this in regard to hearing loss? The reason I am

inquiring is 2 of my boys became jaundiced after birth and had to have the

bilirubin monitored. My oldest is normal hearing but Mark is severe to profound.

Just wondering and good luck tracking the info.

Debbie

Mark's mom