Re: visit to the rheumatologist/Chelsea

[Guest guest]

Its weird I have RA, as well as Crohns, and DD, and arachnoiditis.  It's

weird my tests for RA are usually positive, but often negative.  I had been

diagnosed previously with fibro.  Then when I switched rheumie's he said no you

have RA.  I wasn't diagnosed with crohns till 5 years after the RA dx.

Deb RN

 Debra

>Chelsea wrote:

well, the visit to the rheumatologist was weird.  surreal is a good word for

it. 

>i don't know why you have such exquisite pain. "   maybe because of the arthritis

and fibro?  just a guess.

>what a weird word to use when describing pain - " exquisite " . 

[Guest guest]

Debra wrote:

> Its weird I have RA, as well as Crohns, and DD, and arachnoiditis. It's weird

my tests for RA are usually positive, but often negative. I had been diagnosed

previously with fibro. Then when I switched rheumie's he said no you have RA.

I wasn't diagnosed with crohns till 5 years after the RA dx.

> Deb RN

> Debra

Meds for RA cause ulcerative colitis and my ex had chrons which usually occurs

in late teens and early twenties. I also have had a best girlfriend with chrons

that had auto immune disorder. Fibro usually happens after a surgery or

medical trigger and I can tell you when I got mine which is a year I had four

surgeries and a Barr Epstein infection.

DD and arachnoikitis are age and job related and RA,Chrons, fibor are auto

immune which it seems they group together one or the other. I no longer have

Raynards symptons in the warm weather but I get my butterfly rash and have

taken a picture of it but my RA and ANA test negative which means nothing at

times.

You can still have lupus, RA, and of course fibro has no blood tests but is

really unique symptoms and you know when you have a flare.

I hate you have to deal with all the issues Deb as I know they are painful and

hard to treat. Hang in there. Bennie