Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Tia, There are several people in the group from MI. In the west there is Clyde who had a transplant Dec 10, 2003, MI Hunter is near Midland, a little south of there is Tim Long. In Ann Arbor are Lee Bria (currently worried about her son Bill) and myself. Hutek, Beth and other that slip my mind at the moment are also in MI. But if you want to talk to someone who has gone through what Denny is going through then I would suggest contacting one of the liver transplant programs and see about attending a pre-transplant candidate orientation session and meet with transplant recipients there. From what you have said about your father's condition it is very serious and he probably needs a liver transplant to increase his chance of long term survival. When I have been to such meetings, both as a pre-transplant patient and post-transplant there have been others present who had experiences similar to your dad's. My own personal experience does not include what your dad is going through. Where in MI are you located? Are you seeking to discuss your dad's current condition or transplant options and what that involves? Tim R > > > > Hang in there Tia! > > One my ward at this very moment we have 3 patients ... All came in with severe > > liver chirrosis and liver coma/encepholitis. tehy've been with us > > for close to 2 months, so it's been a slow improvement, with it's > > ups and downs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 I think that is great that you have done so well. The fact that you are young I am sure helped. I am so glad for you as you have your whole life ahead of you now with a healthy liver. To be so nearly off your medication is also an accomplishment. Best wishes Martha from Mo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Doug: Thank you so much for posting. Please stay here and let us learn some things from you. Do you go to school, work, big support system? Let us hear your XMAS present story.Dee wife of Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 > > HI. I go to nursing school in Philly. I am currently in my second year and i cant wait to go back at the end of march. In the summer, i work on the boardwalk at the jersey shore. my parents have taken great care of me during my ordeal and i thank them for that all the time. i hope that this group will be another great support system for me. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 > Doug > > I had my transplat at the hospital of the university of PA. The doctors there were fantastic. As for my goals later in life, I am going to nursing school to become a nurse. I admired what the nurses did for me while I was in the hospital many times. I just want to be able to help others the way that they helped me.> > New member > > > > > > > > Hi everyone. My name is Doug and I am 19. I was diagnosed in 4/00 > > with UC and in 10/00 I was diagnosed with PSC. In 2002 I had two > > episodes of bleeding varices. It remained under control with banding > > every 2 weeks until there were no more varices. My health > > dramatically declined in 11/04 and in 12/04 my bilirubin was up to > > 15.7. I was listed on the transplant list in 11/04. Then on > > Christmas Eve I got the call. By the time I was ready for transplant > > surgery, it was Christmas Day. What a wonderful gift it was! I was > > out of the hospital in 6 days and I have been doing great since. My > > bilirubin is now down to 1.7 and am only on 5mg of prednisone per > > day. Hopefully I can come off of it completely soon. Just wanted to > > say hi to everyone. > > Doug > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Hi, my name is Dwayne from Texas, and I have Ankylosing Spondylitis, along with FMS, and Failed Back Syndrome. My Pain mgt doc, really does not help me that well. He is very invasive, and likes to do pumps, injections, rhyzotomies, etc. I do have an intrathecal pain pump in my spine as I speak. It is running at 2mg/day with a bolus of 1mg at 1700 in the afternoon. I also take Opana ER, and Soma for b/t pain (4x a day). I had to change insurances this past new year to WellCare, instead of Humana. So that is tripped up, because they don't cover Opana ER in their formulary. I think they are going to but me on MS Contin, because that is the only extended release medication on the formulary. I am a former nurse, until I quit when I became disabled. So if you have any questions, on pain management, feel free to ask. I just wanted to introduce myself, and hope I can get the support I need from a group like this. Take care, and have a pain free day! Dwayne/Texas Quote Link to comment Share on other sites More sharing options...
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