Re: Update: Bladder Surgery/Carol-OK

[Guest guest]

I have had my history with bladder problems and still continue but I

tell my story for a purpose. The inefficacy of the medical establishment and

labs let us down.

My history with illness started in general with what would become known as a

simple(?) bladder infection with e-coli. I had never had a uti and didn't know

the symptoms of one and so I infected myself due to improper cleansing during

one road trip.

Subsequent days produced the burning and frequency customary to uti's. I

received the standard 10 days antibiotic but that did not suffice in eradicating

the uti. As the months went by and several doctors most labs reports came back

negative for bacteria thus doctors didn't know what it was although it had the

symptomatology of a uti.

I eventually was given the diagnosis of Interstitial cystitis and went through

the minefield of treatment for that with no success and much pain. Years later I

" cured " the infection with alternative therapy in ten minutes.

I am wondering if your bladder situation could also be a case of

existing bladder infection and you have not correctly been identified by a

competent lab. Your operation is a great step towards another road that you may

not come back from and in the long run will allow the bacteria to spread beyond

the bladder and do your systemic harm.

I would urge you to get tested by a special lab. I know that charges about

$75.00 ( I last heard) but they know they're stuff.

Operations will always be there but wouldn't you want to make sure you gave no

bladder infection? My current bladder situation is one of urge incontinence as a

result of long standing bladder infection but ecoli infection is gone.

claire

Carol OK boomersoonercriley wrote:

>

> Please remember me in your thoughts on this day I'm terrified to go

> under for that long. My family will all be there for the surgery but

> then will have to leave do to the fact that we live 3 1/2 hours away

> from OKC. My husband's health will not allow him to stay the whole

> time and my children have families of their own, plus they have to

> work.

[Guest guest]

,

What did you do to cure it?

Carolyn Eddy

" Sweet Goat Mama "

[Guest guest]

Thank you for the information but the surgery is not just because of the

infections.  Do to the MS I have 0 bladder function.  My bladder empties as soon

as anything goes in.  When they where doing all the testing they could not even

get my bladder to fill up enough to finish the test.  I've been on several

different medications for this but nothing helps.  I have been to 3 different

Urology specialist and they all agree that this is my only option for staying

dry.

Carol  (OK)