Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 - Sounds like things are turning around and you are finally seeing some light at the end of your tunnel. What a relief! I'm glad that you will be able to continue your friendship with . I hope things keep moving along well. Michele W Aubrie's mom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 , some good decisions have been made--for everyone. I am glad for you and the idea that when you and do spend time together (after the move) it will be for all of the right reasons. pam > ---------- > From: courtneyandheather > Reply To: CHARGE > Sent: Wednesday, March 2, 2005 8:27 PM > To: CHARGE > Subject: update > > > came home this morning, after being at her parents for 38 > hours. This had been the 2nd time thats he had seen them since > Christmas and 1st seeing her Mom sick. I am told thats he didn't > take it well, she refised to look at her Mom the first night and > wouldn't hug her. Although I had been telling her what had > happened,I knew that it would be hard for her to understand. Her Mom > has decided not to wear a wig around her because has been > known to cut hair and often pulls it, leaving her to think that every > ones hair can look like Mom. > She came home happy today and I decided to run with it, we went to > the store with no problems, begining our outing with " Just because > you see something you want or think you need, doesn't mean that you > do. You got things from Mom and we are going on vacation next week. " > She walked through the store pushing the cart, only stopping to gaze > down the Easter rabbit aisle. > will be going to her parents' 2.5 days a week, minus the > every 3rd week that she has chemo. She will be moving into another > living situation in June, as her Mom has finally accepted that she > and all would be happier if this happened. I believe that she needs > to know that I am here for her when she needs to get away from home, > needs a break from where she would be living. She would be able to > come here and we would actually enjoy our time together. > > > , caregiver to 24 > > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada information and membership, please visit http://www.chargesyndrome.ca, or email info@.... > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at www.chargesyndrome.org or by calling 1-. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 , Glad to hear it will all work out for everyone. Mark > , > some good decisions have been made--for everyone. I am glad for you and the idea that when you and do spend time together (after the move) it will be for all of the right reasons. > > pam > > > ---------- > > From: courtneyandheather > > Reply To: CHARGE > > Sent: Wednesday, March 2, 2005 8:27 PM > > To: CHARGE > > Subject: update > > > > > > came home this morning, after being at her parents for 38 > > hours. This had been the 2nd time thats he had seen them since > > Christmas and 1st seeing her Mom sick. I am told thats he didn't > > take it well, she refised to look at her Mom the first night and > > wouldn't hug her. Although I had been telling her what had > > happened,I knew that it would be hard for her to understand. Her Mom > > has decided not to wear a wig around her because has been > > known to cut hair and often pulls it, leaving her to think that every > > ones hair can look like Mom. > > She came home happy today and I decided to run with it, we went to > > the store with no problems, begining our outing with " Just because > > you see something you want or think you need, doesn't mean that you > > do. You got things from Mom and we are going on vacation next week. " > > She walked through the store pushing the cart, only stopping to gaze > > down the Easter rabbit aisle. > > will be going to her parents' 2.5 days a week, minus the > > every 3rd week that she has chemo. She will be moving into another > > living situation in June, as her Mom has finally accepted that she > > and all would be happier if this happened. I believe that she needs > > to know that I am here for her when she needs to get away from home, > > needs a break from where she would be living. She would be able to > > come here and we would actually enjoy our time together. > > > > > > , caregiver to 24 > > > > > > > > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@c... or visit > > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada information and membership, please visit http://www.chargesyndrome.ca, or email info@c... > > 7th International > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at www.chargesyndrome.org or by calling 1-. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 Hello friends - Well, I just got off the phone with the doctor's supervisor, and the " histrionic/narcissistic " thing is already gone off the online chart thingie. I agreed that I'll try another doctor in the clinic and see how that goes. The supervisor agreed that she'll counsel the doctor I was seeing about being - I don't know - less of a bitch? Whatever. What I learned from this experience: 1. See your own psychologist and psychiatrist - it's one thing to say " No, I am NOT a nutter! " , but it's quite another to say, " My psychologist was astonished to learn of this diagnosis, and vehemently disagreed with it - would it help to have her and my psychiatrist send you a statement to that effect? " 2. Always, always, ALWAYS take someone with you to see the doctor! If I had seen her by myself it would have been her word against mine, and guess who they'll believe? But being able to say, " It was like this, and I have a corroborating witness " makes a world of difference, because when you say " corroborating witness " they start thinking of attorneys, and depositions, and lawsuits - and magically become a lot more accommodating. ;-) 3. Most important - if your gut tells you that your new doctor is a putz, GET ANOTHER DOCTOR! If I had done this I wouldn't have had to go through any of this BS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 (((((()))))) So happy to hear that you were able to straighten the diagnosis out! Tami --- wrote: > > Hello friends - > > Well, I just got off the phone with the doctor's supervisor, and the " histrionic/narcissistic " thing is already gone off the online chart thingie. I agreed that I'll try another doctor in the clinic and see how that goes. The supervisor agreed that she'll counsel the doctor I was seeing about being - I don't know - less of a bitch? Whatever. Quote Link to comment Share on other sites More sharing options...
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