Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 > wrote: >Amongst other things, I have fibro. I tried 3 drugs that are specifically used for fibro: Cymbalta, Savella and Lyrica. Cymbalta didn't work for me. Savella had too many side effects and I never got close to the theraputic dosage. Lyrica works for me. My pain doctor had me go from 150 mg 2x/day to 200 mg 3x/day. I've just titrated up to that dosage. I think it is going to be good for me, but I only have a couple of days at that dosage to judge by. , I believe like you also that you have an auto immune disease with fibromylagia and fibromylagia is one of those syndromes that does not usually act alone. you have a immune disease system then the catalyst is the fibromyalgia; and the flares are the spikes and changes in our health. American Autoimmune Related Diseases Association has a good website with a list of disorder and does make a note that is listed below. NOTE Fibromyalgia and Chronic Fatigue are listed, not because they are autoimmune, but because many persons who suffer from them have associated autoimmune disease(s) American Autoimmune Related Diseases Association 22100 Gratiot Avenue, Eastpointe, MI 48021-2227 www.aarda.org , like you, I could not take Cymbalta and Lyrica and have not tried Savella. I went back to Cymbalta as the Lyrica causes such weight gain and swelling. Well, I just took the 40 mg of Cymbalta and I was able to take it and am doing well. I also take Restoril to Sleep as if I cannot sleep, my fibro flare kicks in and the pain is really bad. I have learned the hard way. Maybe you can take the lower dose of lyrica. the dosages you were taking about were pretty high. My doctor thought 75 mg twice a day was good enough and the drug is accumulative a build up in your body thus the swelling of the hands, feet, and the eyes to cause blurred vision. I could not do it. Bennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Beenie, Thanks for the link. I'll check them out. Anything I can do to get some control of my health back I'll do. I've been on Lyrica for years. No side effects at all. I was at 150 2x/day. I just went up the the maximum dosage of Lyrica. According to my doctor, 200 mg 3x/day is the limit. I think it's helping. I hope it's helping. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 , I am trying it again, I don't get the side effects until two months or so but I did go back on it last week and it helps,I don't give up. I just wish they could get the side effects of swelling out. Do you take pain meds with it? I do. I agree I am trying the best I can but sometimes it gets you down and I appreciate the encouragement. You know where I live, Austin, there are specialist for fibromyalagia, haven't gone to them before, I stay with my pain management doctor. Bennie wrote: > Bennie, > > Thanks for the link. I'll check them out. Anything I can do to get some control of my health back I'll do. > > I've been on Lyrica for years. No side effects at all. I was at 150 2x/day. I just went up the the maximum dosage of Lyrica. According to my doctor, 200 mg 3x/day is the limit. I think it's helping. I hope it's helping. > > > > > Quote Link to comment Share on other sites More sharing options...
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