Re: [c_p]Fibro-co exists Debra-Jeanette

[Guest guest]

Debra wrote:

> So I guess that I should add it to the list, and ask the doc if it

> should be treated as well. By hthe way I also have a sleep disorder.

> (narcolepsy)

My fibro does not flare badly until I do not get REM sleep and I always ask for

sleeping aids to get it. I am sure that your Narcolepsy prevents you from

getting good REM sleep, which they have found to trigger fibro flares.

I would ask your sleep disorder doctor about it and I belong to a

support group, National Fibromylagia Association and Fibromylagia Center and

they send out e-newsletters on current research and

treatments.

I know with your medical background, you could advocate effectively,

and I hate to see anyone suffer when they do not have to.

Deb, I encourage you to get i checked by a Fibromyagia specialists and in Texas,

they even have centers that only treat Fibromylagia.

Let us know what you find out, I hope you less pain as it does hurt.

Do you take Provigel?

I use it to regulate my sleep cycles and it seems to help but I need

the help with the deep sleep, I have always been a light sleeper and used to

take call an night and never learned to sleep deep after those many years.

Let us know what you find out. Bennie