Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Tami wrote: > Jade, Please let us know how the botox works out for you. Are you still taking pain meds? I have neck pain too. I am in the same boat as you. so I am really interested in how it works. > I hope you are feeling less pain. > Hugs, Tami Jade, Tami Let me know also because the doctor I went to mentioned it. Did your insurance pay for it? Bennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Wow, so much has gone on whilst I was " away " . I'm very interested in the Botox treatments also, especially in non-Dystonia folk. I've got dystonia in the neck region but have seriously balked at the Botox: partly because of the common side-effects and because of my whacked out immune system, so am currently in neuro-PT trying to see if I can learn some ways to mediate the constant spasm. It does make sense though that, if you've got nerves being irritated because of muscle issues, the Botox would work. One thing I've read a lot about since my diagnosis 7 months ago is that you should always make sure that the doctor uses EMG-guided needles to do the injections, which helps to avoid nerves, and to never get the shots more often than 3-4 months apart. My great-aunt has been getting Botox all around her eyes and both sides of her neck (apparently Dystonia can be hereditary) for more than 15 years and just the last time the doctor hit a nerve in her eye; 4 months later she's still waiting to see if the droopy eye is permanent. After this long, it is likely. It can truly be a wonder-drug, but best kept in the hands of knowledgeable practitioners. All best, and miss you all! > Tami wrote: > > Jade, Please let us know how the botox works out for you. Are you still taking pain meds? I have neck pain too. I am in the same boat as you. so I am really interested in how it works. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Hi For me, Botox has been a wonder drug! I have mild cerebral palsy with a lot of muscle tightness and spasticity. My hips are particularly tight and I had a lot of pain in both of them and in my IT bands. I have been getting Botox every 3 months for about 3 years in my glutes and IT bands with incredible results! My immune system is not the best either as I have Ulcerative Colitis, an auto-immune disease, but I haven't experienced any side-effects from the Botox. If your doctor thinks it might help you, I'd try it. I hope all goes well! ~Mindy > > > > I'm very interested in the Botox treatments also, especially in non-Dystonia folk. I've got dystonia in the neck region but have seriously balked at the Botox: partly because of the common side-effects and because of my whacked out immune system, so am currently in neuro-PT trying to see if I can learn some ways to mediate the constant spasm. Quote Link to comment Share on other sites More sharing options...
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