Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 would that be the same pain i feel when my hips go out/ i am double jointed and it goes out sometimes when I am sleeping.Cat wrote: Jade, Have you heard of myofascial pain? I have trouble with my hips rotating and getting my body out of alignment, which causes terrible pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 Jade, Have you heard of myofascial pain? I have trouble with my hips rotating and getting my body out of alignment, which causes terrible pain. I was lucky enough to find a physical therapist who does myofascial release and it helps tremendously. Don't know if you have anyone in your area who practices this but it might be worth a try. Take Care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 Hey Jade, Sorry to hear things are so bad. These ideas may all be redundant but here is what I can come up with off the top: 1. Is this a chari brain thing? Is it in your brain's interpretation of your hip or is it actually in your hip? I know nothing about chari. 2. Have you seen an actual neurologist? How about a joint dr (brain fog on the actual specialty)? I have found that sometimes a specialist in the right area can actually help, it is just a matter of finding the right dr in the right area. 3. Have you discussed getting a neuro-block? 4. Check your medications to see if any of them cause tendon inflammation. Statins are famous for causing knee and leg tendons to swell and sometime rupture. It doesn't sound right in that you aren't hurting when you are moving, but, hey, always worth checking all medications including those you have been on for a while. 5. Have you tried an inversion table? 6. If sleeping at an angle helps, then get a 4 ft x 8 ft piece of plywood and set it at an angle. Put a futon mattress on it. 7. Does sleeping at a reverse angle help (head down)? 8. Does it matter how long you stand still? Does it change in any way the longer you stand? Does it go away instantly when you move regardless of how long you have been standing (1 minute versus 10 minutes)? 9. Does it matter how you stand? For example, if you put one foot up on the phone book and the other on the floor does it change? Or feet shoulder width apart? Or close together? Or one in front of the other? On one leg? 10. What about activity level? If you exercise really hard and then stand still does it change in any way? 11. Do you need a vibration? Are you too still when standing or sleeping? Do you have a massage mat to lay on? Does it help? Quote Link to comment Share on other sites More sharing options...
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