Re: Does anyone else have Fibromyalgia?

[Guest guest]

I have fibromyalgia. I was finally diagnosed 4 years ago.

The doctor put me on Cymbalta and it made so ill that I kept

losing my balance, until I fell down the stairs. Cost me

surgery on my shoulder in May. Now I am on Gabapentin -

100mg in the morning, 300mg at night. I was on 200mg in the morning, but it was

altering my moods and feelings and that wasn't good, so I dropped down to 100mg.

I take Tramadol for pain. I don't seem to be much better. I also

have degenerative disc disease in my lower back. Even with

the meds, most days I hurt pretty bad. I guess I should just

get use to it.

--

Suzi

Martha wrote:

Does anyone have Fibromyalgia, if so what are you doing to help yourself? I was

diagnosed with it in " 03 " and I can't really say I'm feeling better.

[Guest guest]

I also take tramadol for pain and I have degenerative disk disease. I also am

having a really hard time sleeping for more than 2-3 hours at a time.

Ambien doesn't even help. I also was diagnosed with spinal stenosis. Can anyone

share if they are on any medication that helps? I hear oxycodone works wonders.

I was thinking of asking my doc about that next week.

From: Suzi wrote:

>I take Tramadol for pain. I don't seem to be much better. I also

have degenerative disc disease in my lower back. Even with

the meds, most days I hurt pretty bad. I guess I should just

get use to it.

[Guest guest]

Many does assist different things. Sleep helps me with Fibro and they should be

treated separately and Flexaril helps me with me

fibro even though I gan weight and cymbalta or topomaz will mellow a mood so you

have to deal with one at a time.

Bennie

> I have fibromyalgia. I was finally diagnosed 4 years ago.

> I take Tramadol for pain. I don't seem to be much better. I also

> have degenerative disc disease in my lower back. Even with

> the meds, most days I hurt pretty bad. I guess I should just

> get use to it.

[Guest guest]

Hi ,

I have fibromyalgia. I have had it since 1989 and have tried many, many

medications. I don't usually respond to the group but I do read the posts from

time to time.

I also have lumbar spinal stenosis.  I take a number of pills because I am still

working. For my fibromyalgia I take Cymbalta, Flexeril, and Naprosyn.

For my lumbar spinal stenosis I take Neurontin . I also take Ativan. Plus I take

vitamins - Calcium, C & D & E. My psychiatrist put me on Nuvigil, which is a

medicine that I take when I know that I am going t have a long day, It keeps me

alert and not sleepy all the time. Hope this helps.

Gail

[Guest guest]

I was diagnosed with Fibromyalgia last year after years of unexplained body wide

pain. I was put on Lyrica but gained 35 pounds on it so I stopped that and had

no treatment for the Fibro until last week when I started Savella.

I hope that it will help. I am sick of hurting all the time. I take Tramadol for

pain and it does help some but it could be better. I am just happy to have some

pain relief at this point.

Along with the Fibromyalgia, I also suffer from Migraines, an under-active

Thyroid, Acid Reflux, Bipolar Disorder, Mild Tachycardia, and Arthritis.

I also have two prior back injuries that continue to cause me pain.

All of this at the age of 37. I feel all used up already.

--- martha wrote:

>

> Does anyone have Fibromyalgia, if so what are you doing to help yourself? I

was diagnosed with it in " 03 " and I can't really say I'm feeling better.

[Guest guest]

Restoril is specific to fibro and helps with my sleep and I only use it for two

weeks for sleep. Ambien makes me sleep walk. You need your sleep for Fibro

healing.

Bennie

81196@... wrote:

> Ambien doesn't even help. I also was diagnosed with spinal stenosis.

[Guest guest]

G'day..I have Fibromyagia. The best things that work for me is heavy doses of

Narcotics and Lidocaine Patches. They really help a lot. And of course heat.

Moist heat.

Skye

--- martha wrote:

>

> Does anyone have Fibromyalgia, if so what are you doing to help yourself?

[Guest guest]

Thanks for the input. I have an appointment with my pain doc next Wednesday and

I'm getting very frustrated. I just finished the serious of 3 epidural injection

last month, and day by day my pain is creeping back. The first set of injections

I was very hopeful because they really helped. Now I think I feel worse than I

was before them.

S*************

Gail wrote:

I have fibromyalgia. I have had it since 1989 and have tried many, many

medications. I don't usually respond to the group but I do read the posts from

time to time.

[Guest guest]

Geez. I sure can't afford to gain any more weight. Thanks for the input!

S*************

Bennie wrote:

Many does assist different things. Sleep helps me with Fibro and they should be

treated separately and Flexaril helps me with me

fibro even though I gan weight and cymbalta or topomaz will mellow a mood so you

have to deal with one at a time.

[Guest guest]

I have fibro. Have had for about 5 years now. After trying many meds. The

following helps me more than anything. Water exercise, and bi-weekly shots of

Humira.  

 

You must stay moving, no matter how it hurts and believe me there are days when

I cry through the pain. If you don't move you will not be able to move. I am not

saying jazz-r-size.  Just move in some way. Walk to the kitchen, walk to the end

of the block just do leg lifts while sitting in a chair, just move.

 

The rheumo started me on Humira shots and they are wonderful for me. I have

tried so many meds I can not even remember them all. I take a lot of medication

because I have a lot of problems, For the fibro this is what helps. It took

about 4 months for it to work and I almost gave up on it.

 

Gwen 

[Guest guest]

>

> Does anyone have Fibromyalgia, if so what are you doing to help yourself? I

was diagnosed with it in " 03 " and I can't really say I'm feeling better.

Ive had Fibro since 97 (officially diagnosed) and I'm here to tell you it's an

uphill fight. A lot depends on you having a good Dr. that is able to treat you.

A lot of Drs. don't like to treat Fibro because they don't like to prescribe

narcotics. Here in Tn. we have a big drug problem because a lot of people fake

it and sell their meds.

If possibble get a good rhemumatologist and or neurologist. I also have a sleep

Dr., internist, and psychiatrist. It's kind of hit and miss, but once you begin

to acknowledge how ill you are, you can begin to get better. Sadly, I was in

denial about how sick I was, and made many E.R. visits.

Fibromyalgia impacts your life in so many ways, but you can adjust. I know my

limitations now, and sadly, I cannot do most of the things I love to do, and

I have no problem with saying " No " , and getting in the bed. It's very tricky,

but with time and the right support, you'll begin to get better.

I myself cannot remember how it feels to be pain free, and I admit that I'm

dependent on narcotics; but I REFUSE to live in pain! May God bless you and

give you wisdom,

Robbie