Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 I'm so sorry for what you are going through Kris. I know it's a pain (sorry for the pun) to have to think about starting over with a new doctor but no one should have to go through the pain that you are right now without help. If you have chronic pain then what good will it do to reduce or take away your meds? That just going to make you miserable. I would find another doctor, as Kaylene said, and I'd do it today! Robyn Kris wrote: I am going through hell right now. I have been too afraid to call the Dr., because he has capitalized the fact that I am an addict and that they want to get me off the meds altogether (which is a joke since my condition is chronic and degenerative and is not going to get better on it's own.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Kris, You will get through it. After a couple of experiences with withdrawls, I still say that if you need the narcotics it is better to take them with Rx from a responsible doc. Kaylene is right. My method was to break the tabs (don't do that to oxycontin if it is timed release), and take the minimum more often instead of a full dose just to make it through awhile. That way, there is not so much fluctuation of the strength of the med and your body gets used to the lower dose. Then, stretch out the time between doses. Luckily, I had enough to stretch it out three weeks. Sure, sometimes it was bad, but not so bad as trying to quit quickly. Cheers, Alan Raleigh, NC Kris wrote: > > > > If you have never taken narcotics for pain, I recommend staying away from them as long as possible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Kris, I'm going to cover a lot of material in this response and I hope something in it will be useful. Grasp these princiles and hold on to them, first and foremost you're a human being with chronic pain, that at the moment requires opioid based madications that are extremely powerful and can cause physical dependency. Having a health issue of any kind is not something any of us choose to make, managing our health issues takes hard work and sometimes tough choices. The three main issues in body of your post if I am reading them right are chronic pain, amounts of prescription medication being ingested beyond the prescribed amounts, and uncertainty of your doctor and how he would react if you told him how much medication you were taking beyond the amounts he prescribed for your pain. In order to get your current state of medicating under control and reduce the dosage back down to the prescribed level, clear thinking and rational decisions have to be made. The first decision has to be, do you want to get better? Once you decide that you want to get better, do the right things for the right reasons. I would stop with the " I'm an addict " pattern of thinking completely and start with the positive " I have chronic pain " and " I am in control " . Before you see your doctor, get a note pad and write down what it is you have concerns about and the goals you would like to achieve with your current state of health. Let you doctor know that you are will to and will work with him, this will help build the doctor/patient relationship. His attitude towards you will change to a positive one as he see progress towards recovery in your health. Arm yourself with knowledge, think of things you can do to relax and rationalize what needs to be done and how to do them. Use the resources available to you to work through the problem areas, and set aside some time to be good to yourself. A journal can help sort out your thoughts both positive and negetive. Jot down some short notes throughout the day and they will help you get past the tough moments, don't forget to write in a goal to reach for. It doesn't have to be big, just something to help you move forward towards managing your health issues. If you stumble when working towards your goal, keep trying and don't give up. There's an answer somewhere to every problem, and it's possible to manage whatever you are going through within reason. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Good post, excellent advice comes from those who have " been there " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Just to update on my last post, last night was really pretty bad with the DTs, but I called the Docs today and they believe I was just having reactions to the meds since they don't know I'd been taking too many pills to ease my pain and was left running on empty at the end, so I let them believe that, and they switched me back to morphine, which I am getting tomorrow night. I still plan on talking to my regular care Doc about taking over so I can get on the RIGHT dose of Oxy and live a little more normally, whatever normal is. Thank you all for your concern and advice, and I hope you are all doing well! ~*Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Well, that's the problem, trying to work with my Dr., because if I did what he wanted, I wouldn't be taking any meds right now and I'd be bedridden and gaining even more weight which causes a vicious circle of pain and worsening condition from the weight. They believe I am an addict and should be taken off the meds, they don't think my back condition is severe enough to warrant high doses, and they don't take into account the fact that I become very tolerant to the meds quicker than most people. So it's unrealistic to expect me to stay on the same low dose for years and years while they are not offering me any other solutions to stop the pain. I have told them the minimum dose I can take and still be able to function enough to live, and usually they are not happy with that. For instance, they let me take 60mg morphine 3x a day, so I usually take 90mg in the morning and 60-90mg at night, because 60mg rarely helps enough of the pain for me to do much work. However, when I told them I wanted to switch to Oxy, but I needed it to be at 120mg twice a day, they would not accept that. Before I was seeing him, I was on 160mg Oxy twice a day, but they refused to even go near that dose, and instead told me they would put me on the 'equivilent' dose of Oxy to the dose of Morphine I was on, so they put me on a minimal dose of 40mg Oxy 3x a day, and after having been taking 90mg Morphine twice a day, this low dose of Oxy just did nothing for me, and this is what caused the DTs. I have only been thinking myself an addict because it's what everyone has always told me. That if I have withdrawals that bad when stopping the meds, I am clearly an addict. If I need/want to take more than prescribed so I can do things like going shopping or house cleaning, then I am abusing the meds and am clearly an addict. I do know that if I were over 60 years old or so, they would not tell me I am an addict, they would give me enough meds to keep me comfortable until I die. But because I'm not yet 25 years old, they assume I am just a druggie, and they don't take into account that messing with me and keeping this kind of control over my life and cutting me short of meds like that makes me depressed and suicidal because of the severe pain and the agony of the withdrawals. So I am going to have to see if my regular Dr. (please god) will take over my meds care again and give me what I need to begin living somewhat of a life so maybe I can lose some weight and maybe even some day get a job and a car! Keep your fingers crossed and I wish you all a good day! ~*Kris wrote: Let you doctor know that you are will to and will work with him, this will help build the doctor/patient relationship. His attitude towards you will change to a positive one as he see progress towards recovery in your health. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Physical dependency has nothing to do with addiction. If the drugs improve your life and make it possible to function better or be in less pain you are probably not an addict. One thing that is a red flag to doctors that you are doing is asking for specific meds and specific doses. Let the doctor decide what to give you and then tell him or her when it's not working. Concentrate on describing your symptoms and not the drugs you want. Or if you have been down this road with a doctor you trust you can tell that doctor " Remember when? " Otherwise you just need to keep going in and tellng them what they ARE doing isn't working and they need to change it. Let them decide what to change it to. At every appointment while you are having your meds titrated, which means finding the right dose, ask the doctor how long you should wait to see if it's working and make the next appointment then. Approach this as a little more of an experiment than just a smorgasboard. " Sweet Goat Mama " Carolyn Eddy www.goattracksmagazine.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Hello every one It has been a long time. Speaking of withdrawls and DT's, My doctor or his nurse put the wrong date on my refill perscription so I had to make it for 2 days with nothing. I am on 250 mcg/hr fentenal with 30mg morphine sulphate as needed for bbreak through. By the second day I was hurting so bad I was throwing up. I could not function at all. I never want to go through that again. I got the meds this morning and it took almost 6 hours for the pain and nausea to subside. I wish every one a pain free day Bill Quote Link to comment Share on other sites More sharing options...
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