RE: New member ( in land)

[Guest guest]

,

I also have severe crohns, RA and failed back. I also have a large

hemangioma, but they haven't done anything with that. I feel for

you, are you able to work?

Deb RN

> in land wrote:

>About 10 years ago I was diagnosed with Crohn's Disease. About a year

ago, after nearly 2 years of pain, I was diagnosed with an hemangioma

in my spine and had kyphoplasty surgery. The back pain was relieved

almost instantaneously.

>In the past year I have developed horrible pain in two different parts

of my back.

[Guest guest]

Deb,

Yes, I do work. I work for a small, family owned home-business that

allows me to work only a few hours a week, and I bring the TENS unit

with me so that sitting at the computer is bearable.

Again, I am aware of how insanely lucky I am to have such a flexible situation.

My husband and I toyed with me quitting and applying for benefits, but I AM able

to work what I do, and I'm currently able to make more money than I would off of

disability anyway.

Though if the pain doesn't ebb and my workload continues to increase, I will

have no choice. Please remember what I said about having an incredibly high

tolerance for pain - I do, and this allows me a greater level of activity than

most, for which I am thankful.

What do you take for Crohn's? I am starting an infusion of Remicaid

tomorrow which I am hopefull will take the pressure of the crohn's

symptoms off of me. The kids were already having to deal with mommy

in the bathroom for 40 minutes, and the back pain has just been too

much for them.

Is your hemangioma in your spine? I had it in the T12 vertebra, and

the orthopedist was completely dismissive of it as a cause of my pain.

The neurosurgeon explained the kyphoplasty this way " The procedure's

risks are barely more than that of an epidural during labor, and the

benefits may be 100%. It might not work, but the risk being so low

makes it worth the effort, don't you think? "

It was a 1 hour, outpatient procedure, covered under insurance. I was in pain

for 4 days (more than I had been before, so yes, severe), and then it was done!

It was amazing. Even though this additional pain started, I would still have

done the surgery. All that remains of THAT pain is

two small dots on my back from the needles and a strange image on

radiology tests, about the size of a quarter. Get thee to a

nuerosurgeon as soon as possible!

" Debra " wrote:

>

> ,

> I also have severe crohns, RA and failed back. I also have a large

> hemangioma, but they haven't done anything with that. I feel for

> you, are you able to work?

> Deb RN

>