Update

[Guest guest]

Hello All,

I thought I would send out an update, especially since I have been away

from the computer, and haven't responded to any posts.

Two, maybe three weeks ago, I had a checkup with my Neurologist. The

exam was to be just a simple check up. Once we started, it was discovered I no

longer have any reflex in my right knee and ankle, minimal feeling in that foot.

I was sent to UNC Chapel Hill, to meet with the neurology team there. They too

had the same findings, and told me to follow through with my own doctor.

I also met with my Rheumatologist in between the first two appts. He

noticed that my right foot drags when I am walking. A series of blood tests

were run, the Fibromyalgia is persistent and active along with the CREST

Syndrome. The Systemic Lupus is now lying dormant (thank God) it is finally

under control. I was very happy with the findings, I can handle the CREST and

Fibro. Chronic Fatigue has set in and I am fighting with that.

Back to the Neurologist. After running more extensive testing, we

discovered the nerve damage I suffered in November, is progressing rapidly. It

is now not only effecting my arms and legs, it has effected my eye sight. Our

next move is still being decided. I will probably be retuning to the hospital

for muscle and nerve biopsies, followed by Chemotherapy. The goal is to stop

what ever it is that is attacking my nerves.

It is becoming extremely hard for me not to let this effect my attitude,

and moods. When I wake up in the morning, I am almost afraid to get out of bed,

wondering what part of my body will give out on me next. Or what course of

treatment will be used. 2 out of 3 doctor's are leaning towards Chemo, the

third is trying to keep up with all of the specialists.

New meds are being prescribed, these have really been messing with my

stomach, and some of the side effects are a royal pain. I am now on 11

different meds, taking more than 30 pills a day. If they do decide to go ahead

with the treatment plan as it stands, I will start with Chemotherapy in mid

April.

My hope is that this new course of action, will take care of everything

and I will finally have my life back!!

As for the next convention in Denver, I am not sure if I will be able to

attend. Or if I do, what shape I will be in. So I will be counting on those of

you that go, to share your stories and photos, so I won't be missing anything.

Depression is now a large part of my life. Not that I want it there, my

fears are huge. My future is no longer a guarantee. I do what is needed, day

to day, trying to get through this. Those of you wondering, yes I am seeing a

therapist once a week. She is wonderful and shares one of the same Autoimmune

diseases, so she knows what I am going through. She has also made herself

available to me 24-7. I can't thank her enough.

Something good is coming from all of this. My writing has never been

more passionate and honest as it is right now. I am so thankful for this gift

that has been given to me. I have also learned a lot about myself, feelings,

thoughts, anger that has been suppressed for so long. The flashbacks have

ended, I now am fully aware of all the incidents of rape and molestation I

endured, at the hands of a stepfather and am writing about them, maybe help

someone like me. Who knows, wonderful things sometime come out of the ashes of

ones past.

If you don't receive a response to a message sent, please be patient, I

am not on the computer much anymore. With all that's going on, I have been

directing most of my energy to my writing. I promise I will get back to you.

Take care, each and everyone of you. May God Bless and keep you and your

families.

Sunshine and Happiness

Kel

[Guest guest]

Oh Kel,

So sorry to hear of all your problems..God Bless. if you don't trust your

docs make sure you speak up. No one will watch out for you. I'm sorry about

that last statement having trouble finding the right words. please keep us

posted when ya can. thoughts and prayers to you.

hugs,

Sharon

Re: Update

Hello All,

I thought I would send out an update, especially since I have been

away from the computer, and haven't responded to any posts.

Two, maybe three weeks ago, I had a checkup with my Neurologist. The

exam was to be just a simple check up. Once we started, it was discovered I

no longer have any reflex in my right knee and ankle, minimal feeling in

that foot. I was sent to UNC Chapel Hill, to meet with the neurology team

there. They too had the same findings, and told me to follow through with

my own doctor.

I also met with my Rheumatologist in between the first two appts. He

noticed that my right foot drags when I am walking. A series of blood tests

were run, the Fibromyalgia is persistent and active along with the CREST

Syndrome. The Systemic Lupus is now lying dormant (thank God) it is finally

under control. I was very happy with the findings, I can handle the CREST

and Fibro. Chronic Fatigue has set in and I am fighting with that.

Back to the Neurologist. After running more extensive testing, we

discovered the nerve damage I suffered in November, is progressing rapidly.

It is now not only effecting my arms and legs, it has effected my eye sight.

Our next move is still being decided. I will probably be retuning to the

hospital for muscle and nerve biopsies, followed by Chemotherapy. The goal

is to stop what ever it is that is attacking my nerves.

It is becoming extremely hard for me not to let this effect my

attitude, and moods. When I wake up in the morning, I am almost afraid to

get out of bed, wondering what part of my body will give out on me next. Or

what course of treatment will be used. 2 out of 3 doctor's are leaning

towards Chemo, the third is trying to keep up with all of the specialists.

New meds are being prescribed, these have really been messing with my

stomach, and some of the side effects are a royal pain. I am now on 11

different meds, taking more than 30 pills a day. If they do decide to go

ahead with the treatment plan as it stands, I will start with Chemotherapy

in mid April.

My hope is that this new course of action, will take care of

everything and I will finally have my life back!!

As for the next convention in Denver, I am not sure if I will be able

to attend. Or if I do, what shape I will be in. So I will be counting on

those of you that go, to share your stories and photos, so I won't be

missing anything.

Depression is now a large part of my life. Not that I want it there,

my fears are huge. My future is no longer a guarantee. I do what is

needed, day to day, trying to get through this. Those of you wondering, yes

I am seeing a therapist once a week. She is wonderful and shares one of the

same Autoimmune diseases, so she knows what I am going through. She has

also made herself available to me 24-7. I can't thank her enough.

Something good is coming from all of this. My writing has never been

more passionate and honest as it is right now. I am so thankful for this

gift that has been given to me. I have also learned a lot about myself,

feelings, thoughts, anger that has been suppressed for so long. The

flashbacks have ended, I now am fully aware of all the incidents of rape and

molestation I endured, at the hands of a stepfather and am writing about

them, maybe help someone like me. Who knows, wonderful things sometime come

out of the ashes of ones past.

If you don't receive a response to a message sent, please be patient,

I am not on the computer much anymore. With all that's going on, I have

been directing most of my energy to my writing. I promise I will get back

to you.

Take care, each and everyone of you. May God Bless and keep you and

your families.

Sunshine and Happiness

Kel

[Guest guest]

I am so glad things are getting set into place , you really need a break!

Hugs,

W

courtneyandheather wrote:

came home this morning, after being at her parents for 38

hours. This had been the 2nd time thats he had seen them since

Christmas and 1st seeing her Mom sick. I am told thats he didn't

take it well, she refised to look at her Mom the first night and

wouldn't hug her. Although I had been telling her what had

happened,I knew that it would be hard for her to understand. Her Mom

has decided not to wear a wig around her because has been

known to cut hair and often pulls it, leaving her to think that every

ones hair can look like Mom.

She came home happy today and I decided to run with it, we went to

the store with no problems, begining our outing with " Just because

you see something you want or think you need, doesn't mean that you

do. You got things from Mom and we are going on vacation next week. "

She walked through the store pushing the cart, only stopping to gaze

down the Easter rabbit aisle.

will be going to her parents' 2.5 days a week, minus the

every 3rd week that she has chemo. She will be moving into another

living situation in June, as her Mom has finally accepted that she

and all would be happier if this happened. I believe that she needs

to know that I am here for her when she needs to get away from home,

needs a break from where she would be living. She would be able to

come here and we would actually enjoy our time together.

, caregiver to 24

Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

information and membership, please visit http://www.chargesyndrome.ca, or email

info@....

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information

will be available at www.chargesyndrome.org or by calling 1-.

[Guest guest]

,

Congratulations to all of you.

Bonnie

[Guest guest]

I'm behind again, but I'm glad things seem to be working out with you.

update

>

>

> came home this morning, after being at her parents for 38

> hours. This had been the 2nd time thats he had seen them since

> Christmas and 1st seeing her Mom sick. I am told thats he didn't

> take it well, she refised to look at her Mom the first night and

> wouldn't hug her. Although I had been telling her what had

> happened,I knew that it would be hard for her to understand. Her Mom

> has decided not to wear a wig around her because has been

> known to cut hair and often pulls it, leaving her to think that every

> ones hair can look like Mom.

> She came home happy today and I decided to run with it, we went to

> the store with no problems, begining our outing with " Just because

> you see something you want or think you need, doesn't mean that you

> do. You got things from Mom and we are going on vacation next week. "

> She walked through the store pushing the cart, only stopping to gaze

> down the Easter rabbit aisle.

> will be going to her parents' 2.5 days a week, minus the

> every 3rd week that she has chemo. She will be moving into another

> living situation in June, as her Mom has finally accepted that she

> and all would be happier if this happened. I believe that she needs

> to know that I am here for her when she needs to get away from home,

> needs a break from where she would be living. She would be able to

> come here and we would actually enjoy our time together.

>

>

> , caregiver to 24

>

>

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada

information and membership, please visit http://www.chargesyndrome.ca, or

email info@....

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at www.chargesyndrome.org or by calling

1-.

>

[Guest guest]

I almost don't know what to say to this except get a new doctor and don't throw

in the towel just yet. Read the archives and learn how all of us have the

potential to be in your situation but most of us have found ways to be

comfortable with where we are and have even found ways to improve. My prayers

are with you.

>

> TO ALL

> JUST CAMRE FROM NEURO MS DOC SAYS 2NDARY PROG MS OUT OF WHACK SAYS NOTHING

WILL HELP ME NOW, SENSORY LOSS WILL BE PERMANENT AND HAD SOREAD SEVERLYU TO

UPPER TORSO AND EXTREMITIES AND NECK

[Guest guest]

ALLISON , WILL DO AS YOU SAY THANKS FOR THE WORDS  OF ENCOURAGEMENT AND PRAYER

EVEN AS I WRITE FROM 1/2 HR AGO HAVE LOSS MORE FEELLING AND FUNCTIONING

BLESSING DEB COPELAND

Subject: Re: UPDATE

To: mscured

Date: Tuesday, December 1, 2009, 5:54 PM

 

I almost don't know what to say to this except get a new doctor and don't throw

in the towel just yet. Read the archives and learn how all of us have the

potential to be in your situation but most of us have found ways to be

comfortable with where we are and have even found ways to improve. My prayers

are with you.

>

> TO ALL

> JUST CAMRE FROM NEURO MS DOC SAYS 2NDARY PROG MS OUT OF WHACK SAYS NOTHING

WILL HELP ME NOW, SENSORY LOSS WILL BE PERMANENT AND HAD SOREAD SEVERLYU TO

UPPER TORSO AND EXTREMITIES AND NECK

[Guest guest]

Hi Deb,

May I suggest the Best Bet Diet (it has helped many MSers), colloidal gold (a

proven anti-inflammatory), and colloidal silver (on the outside chance that your

MS is based on an infective agent). To learn more about these options, visit

http://tinyurl.com/advice-to-msers

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Relax if you can, stress might be causing your symptoms. Nothing is going to

change tonight. Concentrate on what you CAN do!

>

> ALLISON , WILL DO AS YOU SAY THANKS FOR THE WORDS  OF ENCOURAGEMENT AND

PRAYER EVEN AS I WRITE FROM 1/2 HR AGO HAVE LOSS MORE FEELLING AND FUNCTIONING

> BLESSING DEB COPELAND

[Guest guest]

Hi Deb,

The more you panic, the worse it will get! MS feeds on stress.

Just sit back, take a few deep breaths, think about how lucky you are (yea

right!) but you are - don't dwell on what you can no longer do, think about what

you can do. Everytime a negative thought comes into your head, banish it and

try and think positively.

Don't place too much stock on what the neuro says. They are just pill pushers

for Big Pharma in the main.

Smoking is the big one to quit (NOW). It is easier to do when so much is going

on and you know it is the best thing that might help.

Maybe a new diet (BBD) could be the surrogate. You don't have to find another

vice.

Just calm down. It will be so much easier tomorrow. Your body is screaming out

to you for a reason. " Quit smoking and please take care of me! "

Look through the archives here - lots of good advice.

Good luck - we are all here and egging you on.

Janet

To: mscured

From: jadeworldexplorer@...

Date: Tue, 1 Dec 2009 22:32:21 +0000

Subject: UPDATE

TO ALL

JUST CAMRE FROM NEURO MS DOC SAYS 2NDARY PROG MS OUT OF WHACK SAYS NOTHING WILL

HELP ME NOW, SENSORY LOSS WILL BE PERMANENT AND HAD SOREAD SEVERLYU TO UPPER

TORSO AND EXTREMITIES AND NECK SDAYS IT WILL HAPPEN TO HANDS ALSO MATTER OF TIME

TRIED TO DRIVE NO FEELING ON WHEEL OR FEET AND HAS SPREAD SUBSTANTIALLY OVER

WEEK EVERY NERVE VIBRATES BURNS NUMBS STIFFENS WEAK BACK TO WALKER AND TYPING

ALMOST IMPOSSIBLE RESTARTED LDN 2 NIGHTS AGO, AND HAD STOPPED BEE VENOM DIET

STOPPED, BUT NOT SUPPLEMENTS HAVE TO QUIT SMOLIONG NOW WAS HAVING ENORMOUS

PROBLEM BECAUSE EX ALCOHOLIC AND FEARED AND WATD TO DRINL EVEN NEURO SAYS STOP

NOW OR WILL GET WORSE EVEN FASTER IT IS IN ROIBS EVERY INCH BODY I AM SCARED OUT

OF MY MOIND DESPITE MENTAL HEALTH COUNSELING. NEURO WANTS TO RETRY PREDNISONE,

AND SAYS TYSABRI WILL NOT WORK ON ME, MAYE RITAUXAB, BUT ONLY MINIMALLY AND NOT

FOR CERTAIN AS HE SAYS ONLY TO DE;LAY THE EVIVITABLE AS IR IS ALL OVER BODY

FATIGUE IS TEMENDOUS I WILL GIVE DIET AND QUITTING SMOKING MY ALL ESPECAILLY

AFTER TODAYS SESSION I KNOW I SAID IT BEFORE AT LEAST 2-3 TIMES BUT LOSING

FUNCTIONING NECK DOWN SEEMS UNTHINKABLE I KNOW THER ARE LOTS OF YOU OUR THERE

WORSE OFF THAN ME AND YOU ARE IN MY PRAYERS DAILY , P;LEASE DO SAME FOR ME MAYBE

OUT OF THIS I CAN STILL SALVAGFE SOMEHTING ,ESPECIALLY MY HAND ITS THE TIME

FACTOR I HAVE ALWAYS HAD TO BE IN CONTROL AND LAST 2 YEARS NOTHING I'VE DONE HAS

WORKED EVEN WHE FOLLOWING DIRECTIONS , IF IT HAS WOELED FOR SOME MAYBE HOPE FOR

ME SORRY TO RAMBLE AND REPEAT JUST TERRIFIED NEVER HAD IT WORL ON MY UPPER TORSO

AS MUCH AS IN LAST FEW WEEK IT WOULD COME AND GO ,NOT NOW PLEASE RESPOND IF YOU

WOULD LIKE DO NOT KNOW HOW MUCH LONGER I;; BE ABLE TO TYPE RETURNONG TO BEE

STINGS BUT PART OF ME WANTS TO RUN TO THE CONVENTIONAL DRUGS, PRAY OI DO NOT

FOLLOW TRHAT COURSE

BLESSING TO ALL'DEB COPELAND

_________________________________________________________________

Windows Live: Keep your friends up to date with what you do online.

http://www.microsoft.com/middleeast/windows/windowslive/see-it-in-action/social-\

network-basics.aspx?ocid=PID23461::T:WLMTAGL:ON:WL:en-xm:SI_SB_1:092010

[Guest guest]

Breathe! Tomorrow is another day - there will be good ones and not so good ones.

Optimism is what will get you through. Just start with the basics of diet and

supplements and sleep. Move on to alternative therapies when you have had time

to read and choose. Stretch. Breathe.

Neuros have a very limited tool kit - and it's all they can offer. There is so

much more - read and find what someone on this group is doing that sounds

workable for you. Look very hard at LDN if you haven't already. It is a miracle

for me. I totally understand your fear, but you've got to let it go. Prayers for

you tonight. Maurey

>

> TO ALL

> JUST BACK FROM MS DOC SAYS NO HOPE WITH PROGRESS OF SYMPTOMS HEAD TO FEET

ESPECIA;;Y SENSORY LOSS, WEAKNESS AND STIFFNESS , NOW IN UPPER TORSO ANDS

EXTEMITIES TO NECK HE SAYS NO CONVWENTIONAL MS OR

[Guest guest]

JANET

HAD NO CIGS UNTIL THIS AM HAD 2 GOING TO LOOK INTO SMPKING CESSATION GROUP THIS

WEEK

OF COURSE AS USUAL AFTER A NIGHTS SLEEP THOUGHT THE REST WOULD HELP INSTEAD NECK

UPPER TORS SPINE ARMS AND HAND WERE NUMBER, STIFFER, AND WEAKER AND PROGRESS OF

SYMPTOMS IN LOWER HALF OF BODY WAIST DOWN HAS EXCABERATED IDID DO SOME

MACROBIOTIC COOKING LAST NIGHT MAKING ENOUGH FOOD FOR A FEW DAYS. I HATE BEING

TRAPPED IN THE HOUSE NOT BEING ABLE TO DRIVE OR DO MUCH OF ANYTHING THAT USUALLY

AND THE FEEELING OF HOPELEESSNESS GETS THE BALL ROLLING WITH THE SMOKIN G

WILL TRY BEST I CAN REST OF DAY TO EITHER CUT DOWN OR PUT THEM DOWN THE REST I

CAN FOLLOW PRETTY EASILY AS LONG AS MY HANDS CAN FUNCTION DID LDN LAST NGHT ,3RD

DAY AND, TOOK MY SUPPLEMENTS AND VITAMINS I AM JUST SO SCARED AS PEOPLE WROTE

THAT IS BAD FOR THE MS YET IT SEEMS I AM CAUGHT IN AN DOWNWARD SPIRAL. AND YES I

DO GO TO COUNSELING ALREADY BUT HAS NOT SEEMED TO HELP PLEASE KEEP IN CONTACT

YOU AND OTHER QRE MY INSPIRATION

BLESSING TO ALL PLEASE KEEP UP THE PRAYERS AS I WILL FOR OTHERS WITH CHRONIC

CONDITIONS

BLESSING

DEBORAH COPELAND

[Guest guest]

TO ALL

STARTED ON DIET YESTERDAY, BUT DID NOT DO SO GOOD WITH THE SMOKING THOUGH I CUT

DOWN TO 6 CIGS HOPING TODAY TO CUT IN HALF AGFAIN. WOKE UP UNABLE TO MOVE NECK

TO FEET, TOOK 1/2 HR TO GET OUT OF BED WAS ABLE TO DO SOME DRIVING AROUND TOWN

FOR A SHORT PERIOD ALTHOUGH WALKING WAS HORRENDOUS. DIET COMBINATION OF BBD AND

MACRIOGIOTIC TODAY HND, ARMS TORSO SPINE AND LOWER BODY OUT OF WHACK THIS IS

GOING TO BE FOR THE LONG RUN BEFORE I SEE ANY IMPROVEMENT RESUME BEE VENOM

THERAPY TODAY AND REAMAIN ONHE LDN.WILL KEEP YOU ALLL POSTED KEEP UP THE PRAYERS

AND EMAILS COMING IN THEY KEEP ME MOTIVATED

BLESSSSINGS

DEB COPELAND

[Guest guest]

Deb,

When I was quitting smoking, I did not try to decrease the number daily. That

was too hard. I picked a certain number (usually 4 individual cigs per day,

sometimes 5 or 6 if I knew it was a stressful day) and as mentioend previously

threw away the rest of the pack so that was all I had for the day..... I went

quite a while on the 4 cigs per day before cutting down to three. The harm

reduction model shows that the harmful effect level is correlated with the

quantity (so even if you have cut down from a pack for example to half a pack)

then you are making improvements to your health--less harm. I realize you have

mentioned a past problem with alcoholisom, so this makes it a bit harder.

Anyway, it sounds like you are fighting. Take it a step at a time. Don't put too

much pressure on yourself to do it all at once.

Routing for you.

>

> TO ALL

> STARTED ON DIET YESTERDAY, BUT DID NOT DO SO GOOD WITH THE SMOKING THOUGH I

CUT DOWN TO 6 CIGS HOPING TODAY TO CUT IN HALF AGFAIN. WOKE UP UNABLE TO MOVE

NECK TO FEET, TOOK 1/2 HR TO GET

[Guest guest]

A customer came into our store the other day " smoking " an electronic cigarette.

It had a small amount of nicotine in a replaceable cartridge and a light on the

end. It looked real except there was no smoke or smell. It had none of the

ingredients in cigarettes that are harmful. He uses it because he wanted to

quit smoking but had trouble licking the habit. Maybe something like this would

work for you.

>

> TO ALL

> STARTED ON DIET YESTERDAY, BUT DID NOT DO SO GOOD WITH THE SMOKING

[Guest guest]

willlook into it today thanks

deb copeland

Subject: Re: UPDATE

To: mscured

Date: Thursday, December 3, 2009, 10:25 PM

 

A customer came into our store the other day " smoking " an electronic cigarette.

It had a small amount of nicotine in a replaceable cartridge and a light on the

end. It looked real except there was no smoke or smell. It had none of the

ingredients in cigarettes that are harmful. He uses it because he wanted to quit

smoking but had trouble licking the habit. Maybe something like this would work

for you.

>

> TO ALL

> STARTED ON DIET YESTERDAY, BUT DID NOT DO SO GOOD WITH THE SMOKING

[Guest guest]

thakns for th e iput

deb copeland

did good with the diet though, and supplements

, read several blogs on ms world about people wit 2ndary prog ms , amny are

looking into or tring lsn, im on day 4 with the ldn, otherwise people did not

seem too optomisticevem after trying comventional and admitted there i not mich

out there for this cat of ms.how many of you in group have 2ndary prog ms? just

wondering how effective what you have been doing has been?

blesssings, deb copeland

Subject: Re: UPDATE

To: mscured

Date: Thursday, December 3, 2009, 10:18 PM

 

Deb,

When I was quitting smoking, I did not try to decrease the number daily. That

was too hard. I picked a certain number (usually 4 individual cigs per day,

sometimes 5 or 6 if I knew it was a stressful day) and as mentioend previously

threw away the rest of the pack so that was all I had for the day..... I went

quite a while on the 4 cigs per day before cutting down to three. The harm

reduction model shows that the harmful effect level is correlated with the

quantity (so even if you have cut down from a pack for example to half a pack)

then you are making improvements to your health--less harm. I realize you have

mentioned a past problem with alcoholisom, so this makes it a bit harder.

Anyway, it sounds like you are fighting. Take it a step at a time. Don't put too

much pressure on yourself to do it all at once.

Routing for you.

>

> TO ALL

> STARTED ON DIET YESTERDAY, BUT DID NOT DO SO GOOD WITH THE SMOKING THOUGH I

CUT DOWN TO 6 CIGS HOPING TODAY TO CUT IN HALF AGFAIN. WOKE UP UNABLE TO MOVE

NECK TO FEET, TOOK 1/2 HR TO GET

[Guest guest]

Deb,

I started smoking when I was 16 yrs old. I finally quit for good 5 years ago

when I was 34. I was a pack and a half a day smoker...

I quit very simply... spent 2 hours in meditation, envisioning myself as a

non-smoker. I basically talked myself out of smoking.. told myself I didn't

want it anymore, and that I simply do not smoke.

After the meditation, I flushed the rest of my current pack down the toilet,

and gave the carton in the freezer to a friend.

And I simply did not allow myself to purchase any more.

and.. that was that. I really isn't that hard to quit cold turkey, in fact,

it's the easiest way because when you just cut back all you're really doing

is making your body crave the nicotine and chemicals more. They add

chemicals to cigs that increase the chemical addiction. Once you get those

chemicals out of your system it's not that hard. It takes a couple days for

those chemicals to flush, less if you fast and do a general detox at the

same time.

Good luck.

Yvette

> > TO ALL

> > STARTED ON DIET YESTERDAY, BUT DID NOT DO SO GOOD WITH THE SMOKING

>

>

[Guest guest]

I quit a 35 year habit of at least a pack a day Feb of this year. Cold turkey

is the was the way to go with me. It wasn't as bad as I always believed. I

used dill pickles (an old trick, but it worked!! the dill stimulates the same

taste buds as cigs do) and a web site called whyquit.com. I read and re-read

the stories. After 11 months, do I still want a cig?.....ok, sure...am I going

to smoke?....NO WAY!!!! I'm VERY proud of myself for this. Good luck to you

Deb.

[Guest guest]

First of all, I have never smoked so I do not know firsthand what it is

like to quit. But I watched my father quit many years ago. The physical

side of addiction is not as great as drug addiction for example, but the

mental side of addiction is severe.

People get used to the feelings you get when you smoke, the rituals and

the associations. You may have a group of friends who you have constant

contact with who still smoke. All this adds up to a real problem for

most people. They say that women have a harder time quitting than men.

My guess is that women are more connected to one another and miss the

good feelings they get when they smoke.

Yvette's idea of visualizing yourself as a nonsmoker is a great one.

Make a list of all the reasons to not smoke and post it everywhere.

Find substitute habits to replace the rituals you used to do when you

smoke. You have got to want to quit if you are going to make it.

Finally, supposedly, your blood sugar levels can affect the cravings you

feel during the first few days. Try drinking a glass of your favorite

fruit juice when you feel the need to smoke. Drink it slowly and enjoy

the flavor and the sensations. Hopefully it will keep you from breaking

down and giving in.

You are in my prayers...{Hug}

Tom Nesler

Re: Re: UPDATE

Deb,

I started smoking when I was 16 yrs old. I finally quit for good 5 years

ago

when I was 34. I was a pack and a half a day smoker...

I quit very simply... spent 2 hours in meditation, envisioning myself as

a

non-smoker. I basically talked myself out of smoking.. told myself I

didn't

want it anymore, and that I simply do not smoke.

After the meditation, I flushed the rest of my current pack down the

toilet,

and gave the carton in the freezer to a friend.

And I simply did not allow myself to purchase any more.

and.. that was that. I really isn't that hard to quit cold turkey, in

fact,

it's the easiest way because when you just cut back all you're really

doing

is making your body crave the nicotine and chemicals more. They add

chemicals to cigs that increase the chemical addiction. Once you get

those

chemicals out of your system it's not that hard. It takes a couple days

for

those chemicals to flush, less if you fast and do a general detox at the

same time.

Good luck.

Yvette

[Guest guest]

Hi All

I've battled with the 'giving-up' monster many times.

I'm lucky that I'm pretty head-strong.....once I make MY decision to do

something, it gets done.

I have always thought that when I came to giving up that it would be sooooo

difficult for me, but when I made the decision to stop smoking, I've been able

to stick to it for 6mths to a yr at a time.

I find this relatively easy just because I've made the decision....having said

that, I have fallen when put in shitty situations or when living with omeone who

still smokes.

:S

At the moment, I'm struggling because my husband (who took it back up whilst I

was gone back to Australia waiting for a fiance visa, through his going out to

pubs etc)

I hate smoking and hate the taste and most of the smell but just cannot seem to

give up while someone else is habitually smoking in proximity to me.

I can't lecture you on it at all! but I can give advice in reference to what has

worked for ME -

Think about why you want to give up and keep that at the forefront of yor mind.

Think about how good it'll be to be in control of THIS thing....and focus on the

difference you know you'll see by giving up.

Remember that THIS is something you CAN control and CAN win with!!

I truly hope that helps you hun just as I hope it ushes ME through when I tr

again next week.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: tnesler@...

Date: Fri, 4 Dec 2009 09:10:30 -0600

Subject: RE: Re: UPDATE

First of all, I have never smoked so I do not know firsthand what it is

like to quit. But I watched my father quit many years ago. The physical

side of addiction is not as great as drug addiction for example, but the

mental side of addiction is severe.

People get used to the feelings you get when you smoke, the rituals and

the associations. You may have a group of friends who you have constant

contact with who still smoke. All this adds up to a real problem for

most people. They say that women have a harder time quitting than men.

My guess is that women are more connected to one another and miss the

good feelings they get when they smoke.

Yvette's idea of visualizing yourself as a nonsmoker is a great one.

Make a list of all the reasons to not smoke and post it everywhere.

Find substitute habits to replace the rituals you used to do when you

smoke. You have got to want to quit if you are going to make it.

Finally, supposedly, your blood sugar levels can affect the cravings you

feel during the first few days. Try drinking a glass of your favorite

fruit juice when you feel the need to smoke. Drink it slowly and enjoy

the flavor and the sensations. Hopefully it will keep you from breaking

down and giving in.

You are in my prayers...{Hug}

Tom Nesler

Re: Re: UPDATE

Deb,

I started smoking when I was 16 yrs old. I finally quit for good 5 years

ago

when I was 34. I was a pack and a half a day smoker...

I quit very simply... spent 2 hours in meditation, envisioning myself as

a

non-smoker. I basically talked myself out of smoking.. told myself I

didn't

want it anymore, and that I simply do not smoke.

After the meditation, I flushed the rest of my current pack down the

toilet,

and gave the carton in the freezer to a friend.

And I simply did not allow myself to purchase any more.

and.. that was that. I really isn't that hard to quit cold turkey, in

fact,

it's the easiest way because when you just cut back all you're really

doing

is making your body crave the nicotine and chemicals more. They add

chemicals to cigs that increase the chemical addiction. Once you get

those

chemicals out of your system it's not that hard. It takes a couple days

for

those chemicals to flush, less if you fast and do a general detox at the

same time.

Good luck.

Yvette

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[Guest guest]

Hi Deb

Give the diet and the LDN a chance to work and I'm sure you'll see some

improvements!!

Just hang in there hun! (I know it's hard - especially the no-fags-rule!)

Get onto the MSRC website and check out the supplements listed too so you can

see how you feel about what you're putting in your system already, and what's

recommended too.

It's all gut-feeling with ME and my body when it comes to recommendations, so

trial and error is something which I'm sure you'll have heard from everyone

here.

Just stay calm, keep as positive as you can hun, and keep battling - you've now

got two nukes in your back-pocket....diet AND LDN!!!

Terriffic!! Just give them a chance to take a stance inside you, and for them to

make some changes happen!!

All our thoughts are with you I'm sure

RachAel

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: jadeworldexplorer@...

Date: Sat, 5 Dec 2009 06:55:26 -0800

Subject: UPDATE

TO ALL

THE INEVIABLE HAPPENED, YESTERDAY AND DAY BEFORE PUSHED MYSELF TO WALK THE MALL

FOR 1 HOUR, GIVEN MY CONDITION IT WAS STUPID, AND STILL BATTLING THE SMOKING.

LAST NIGHT AFTER ATTENDING AN AUCTION AND SITTING DOWN FOR THE DURATION CAME

HOME AND COLLAPSED, COULD'T STAND AND MY HUSBAND HAD TO DRESS ME AND PUT ME TO

BED COULD NOT MANEUVE TO GET ONTO BED AND INTO NIGHT CLOTHES WHOLE BOSY FEIRCELY

BIRNING STIFF,NUMB AND VIBRATING AND WEAK. HAVE BEEN TAKING LDN AND FOLLOWING

DIET PRETY MUCH, BUT SMOKING CANNOT SEM TO QUIT , GUESS THIS IS THE BEGINNING OF

A NEW PHASE . DID NOT WANT IT TO GET THIS BAD. P;LEASE KEEP UP PRAYERS

DEB COPELAND

[Guest guest]

Deb,

Do you eat any prepackaged foods? Almost all packaged food contains MSG..

and MSG can cause the symptoms you're having. It can also contribute to an

ms flare.

What about artificial sweeteners, and sugar for that matter? NutraSweet

causes a lot of muscle burning, stiffness, and weakness in a lot of people.

Regular sugar would be bad, too if you have an overgrowth of Candida.

Personally, I use Stevia when I need a sweetener.

Can you try switching to all fresh foods for a while? Nothing that comes in

a box, can or jar? Lots of fresh fruits and veggies.. oh and fresh garlic

helps, too.

Since you're taking LDN, you may want to consider giving up

gluten-containing foods, too. I know Dr. McCandles recommends all her LDN

patients become gluten free.

Hugs, Deb. You can beat this.....

Yvette

On Sat, Dec 5, 2009 at 8:55 AM, Deborah Copeland <

jadeworldexplorer@...> wrote:

>

>

> TO ALL

> THE INEVIABLE HAPPENED, YESTERDAY AND DAY BEFORE PUSHED MYSELF TO WALK THE

> MALL FOR 1 HOUR, GIVEN MY CONDITION IT WAS STUPID, AND STILL BATTLING THE

> SMOKING. LAST NIGHT AFTER ATTENDING AN AUCTION AND SITTING DOWN FOR THE

> DURATION CAME HOME AND COLLAPSED, COULD'T STAND AND MY HUSBAND HAD TO DRESS

> ME AND PUT ME TO BED COULD NOT MANEUVE TO GET ONTO BED AND INTO NIGHT

> CLOTHES WHOLE BOSY FEIRCELY BIRNING STIFF,NUMB AND VIBRATING AND WEAK. HAVE

> BEEN TAKING LDN AND FOLLOWING DIET PRETY MUCH, BUT SMOKING CANNOT SEM TO

> QUIT , GUESS THIS IS THE BEGINNING OF A NEW PHASE . DID NOT WANT IT TO GET

> THIS BAD. P;LEASE KEEP UP PRAYERS

> DEB COPELAND

>

>

>

[Guest guest]

Hi everyone,

I went into my family doctor last week and told him that I wanted off my anti

inflammatory, because of the side effects. He agreed to let me go off them. So

I am at present taking no medication to ease my pain. I am working with

my neuropsychology once a week to deal with my pain, without medication. I am

finding this very hard to do, but I love a challenge so I will keep trying.

Take Care,