Re: New member with Fibromyalgia

[Guest guest]

,

I too have fibromyalgia and a back that is falling to pieces.  What I need is

strength but my body won't let me.  I am stronger than the average woman my age

already. Stamina is off and on but rarely there when I need it. 

My muscles hurt, my nerves are causing more pain in my muscles and elsewhere. 

I am like you, hoping this next doctor I go to see will be able to see my entire

picture and figure out how to help me. 

I've developed the ability to get done what I need to at the house in my own

time but I suffer and am sure you do as well when you accomplish a task that

shouldn't pose such a problem.

I am a loner from childhood so my social life hasn't changed, but it hasn't

grown much either.  I'd like to be active in several areas.  It's painful to

admit my limitations and few people really understand how someone like me can't

just jump and do things.  I come off like a very motivated person, which is a

part of me I have never gotten to know fully.

We belong to a special group of people who struggle with pain daily and that

doesn't make us any less of a person.  We still have value.

Jennette

[Guest guest]

Jennette,

Thank you for reminding me that I am special and have value. It is easy to

forget this.

I also like what you said the realization of limitations. This is something I

have yet to come to terms with. I still do not understand how I can do

something on Monday and not feel the effects until Wednesday or Thursday. I

need to stop dwelling on what I use to be able to do, and move forward with who

I am today.

By the way I had good luck with my recent appointment to a physical therapist.

Finally someone who understands what I am telling them and has some solutions.

The therapist actually got me to stand up strait for almost 24 hours!! She is

doing a technique called myofacial release. I go back for another appointment

later this week and hope I have some more good results.

Just out of curiosity how do you deal with managing the level of your pain? I

have a hard time taking any kind of medications, because I am so overly

sensitive and tend to get really bad side effects.

Thank you again for such inspiring words of wisdom.