Re: Getting dresses daily? Really

[Guest guest]

>Am I the only one who finds this a little crazy? I don't doubt the good

folks who say they are able to do this, and I think its wonderful for them.

>I am lucky if I get dressed 3 days out of 7. Does this make me a bad

person? One to be chastised? I have 3 rare diseases along with a shattered

right leg that will never be right. I have painful growths all over my body,

except for my head. That has been spared so far.

Candy, I am sure we all understand you. i can't work and I never know if I

can go anywhere but if it takes 3 hours, I to try to dress a bit, wash my

hair and put on makeup cause it makes me feel more human. We can only do

what we can do. There is no chastising here and i am alone which really stinks,

Cathie in Ct

[Guest guest]

>Am I the only one who finds this a little crazy? I don't doubt the good folks

who say they are able to do this, and I think its wonderful for them.

>I am lucky if I get dressed 3 days out of 7. Does this make me a bad person?

One to be chastised? I have 3 rare diseases along with a shattered right leg

that will never be right. I have painful growths all over my body, except for my

head. That has been spared so far.

Hi Candy

This is not about anyone being chastised, nor being a bad person. This is simply

what helps some people.

We each have our own medical problems, and no one here intends to belittle, nor

hurt you.

Kaylene

Moderator

[Guest guest]

Hi Candy,

Thanks for your post, I was feeling like I was alone in the

Not getting dressed daily boat. I used to, that was when I tried to go somewhere

everyday.

The same with showers, but now if I take a shower I'm cramping and more

fatigued for 1-2 hours, so it's bird baths/ shower every other day.

I totally agree with others that looking our best goes a long way in

helping many things. I do my best day to day, sometimes it's

showering, getting dressed, and/or going out. Some days it's whatever I can

do.((hugs))

Peace,

[Guest guest]

There isnt one right way of coping and we each find the path that helps us. I

dont get dressed much either when I am really in bad shape. Some of the time I

force myself to get dressed and then later feel so bad from the pain I cant

tolerate the sensation of any clothing on my body; it hurts, so I take

everything off and crawl into bed under the covers totally naked.

Other days I

feel better after i get dressed and I can get out and do my errands and so

getting up and dressed was good for me that day. I just never know what will be

good for me so I try one thing and then another. I always try the most

functional things first and if I cant do them I regress back to doing some less

functional things and I dont beat myself up about it.

I know now that I try my best and my pain varies alot as I dont good control. I

can be OK for a few hours and then wham in 5 minutes i go from OK to extreme

pain not OK. it comes on suddenly. Plus I have different sources of pain. I

suffer with Migraines which make me ill all over from chills and vomiting to all

over achiness like a virus. I also have Fibromyalgia, spinal stenosis, herniated

disks, radiculopathy, vulvodynia, and a host of undiagnosed ills.

Right now I am

in the process of getting approved for new MRIs as I havent had any in 3 years

and the pain has worsened considerably for me since last March. I am looking

into some illnesses of the brain stem and things such as pudendal nerve

entrapment. For the last 12 years since I have been suffering with pain they

havent ever found much on those MRIs so I wont be surprised if the results this

time are the same but the pain is very real.

a

[Guest guest]

Thanks . It's nice to know I am not the only one who can't make the get

dressed every day goal. I am going to try a little harder to do this, but I am

going to be ok with myself if I can't.

Hugs back to you

CandyCares

> I totally agree with others that looking our best goes a long way in

> helping many things. I do my best day to day, sometimes it's

> showering, getting dressed, and/or going out. Some days it's whatever I can

do.((hugs))

[Guest guest]

Candy,

Noticed that you have a lot of responses and haven't read them all yet buy in my

eyes you are not crazy.

I have to work so have to get up and get dressed every day except on Saturday.

If I know I don't have to go anywhere which I always hope is the case, I could

care less if I stay comfortable all day long.

My dogs sure don't care what I look like.

My pain is so bad that to me at least one day a week I am going to have the

least amount of discomfort.

I say whatever you can do to be in the least amount of pain is what you need to

do for you. I think everyone has to make that decision for themselves. If my

pain has taught me anything, it's to be very empathetic to anyone who says he

is suffering. Have a good weekend everyone.

Becky in Illinois

[Guest guest]

I was one that wrote it makes ME feel a little better, a little more

normal,but that's just me. If i can just get my hair washed, i know it will not

be a horrible day.

That's usually MY sign but its not for everyone and many days, my pain med

doesn't help at all. For me a large part is how i see myself.

Right now, I have my jammies on the bottom, a sweatshirt is on top but

my hair is done and makeup too, lol. My cat has a look at me.

Candy wrote:

> Hi all. I have read all the posts that suggest getting dressed daily will

help you feel better.

> Am I the only one who finds this a little crazy?

[Guest guest]

Well written .

> There isnt one right way of coping and we each find the path that helps us.

>

We are all so different. I have extreme Achilles tendon problems and everyone is

always telling me how I can manage that pain. Drink more water, drink apple

cider water, wear shoes with a heel, never wear shoes with a heel.

And on and on.

So I continue to struggle down my little path and trying to help others too.

[Guest guest]

I don't get dressed every day. If I don't have to go out I usually don't

bother to get dressed. I don't feel any less because of this.

All you can do is your best

Pam

Candy wrote:

> Hi all. I have read all the posts that suggest getting dressed daily will

> help you feel better.

>

> Am I the only one who finds this a little crazy?

[Guest guest]

I have days when getting dressed just hurts way too much.I have days when the

shower feels like razors cutting my skin.

I have 4 different pain syndromes, each causing their own version of pain

attacks. I have many other disabilities that cause their own problems

I try to get dressed .Some days I succeed and other days when I don't I wear

long dresses that don't have buttons or snaps. It's

like wearing a long nighty without looking like it.

I try not wearing jammies into stores. I'm a big woman and it just

doesn't look right in my eye. I am sorry if i insulted anyone it wasn't my

intention.

I try to look OK to help my depression. I am old fashioned. I dress

old fashioned.

My grandmother was my inspiration. She had 15 kids and was in a wheelchair most

of her life due to an accident.

She always managed to look her best. She raised her kids and dealt with a lot of

pain.I only hope that I stay as strong as she did.

Blessed me,

Ms.Katurah