Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Laurie, There's a really good chance something would show up on the EEG even if you were not seeing outward seizures, if seizures are occurring. Jess' EEG showed almost continual spikes at much lower levels than during her " outward " seizure activity. When Jess' eyes flutter and she closes them off... I know she's having activity, just thankfully, not enough to throw her into a grand mal. Do check with you neuro, and if you can... videotape some of the occurences.. that may help you define what's going on. Also, after Jess has a lot of seizure activity, her left side is always impacted and so is her cognitive and speech ability. Hope this helps a little although, it's never good to face seizures. Good luck. Sharon C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Dear Laurie: My daughter had similar eye-fluttering seizures at first. She was initially diagnosed with partial seizures in the left occipital lobe. Partial seizures affect only a part of the brain and awareness may (complex partial) or may not (simple partial) be affected. It is possible that if seizures are brief they will not register on EEG (there are other types that might not register). And yes, it would be helpful to have an episode occur while you are having the EEG. I have also had the technician tell me she saw nothing on the EEG while I was observing something happen that the doctor later said was most likely a seizure. Whether or not to start a drug regimen is a difficult question--some considerations are 1) are you seeing developmental problems that might be related to the seizures, 2) how frequently and for how long a period are seizures happening, 3) what happens after the seizure--how does your child seem to feel and to react, how long before he seems to return to normal? It may be possible to wait a while to see if seizures worsen before starting the drug regimen, but there may be concerns that if uncontrolled the seizures will eventually involve more of the brain. It helps to keep detailed notes with dates and times of occurrences, symptoms, and possible side effects to refer to over time, which can help you decide if things are getting better or worse. Best of luck! Suzanne mom to twins in heaven (complex IV) & Hannah, age 5, nda At 01:23 AM 2/19/01 -0000, you wrote: >Hi everyone... >Since the subject has come up, I'm wondering if my son is having >seizures, too. About 4 times in the past 2 weeks, Mason has rolled >his eyes up in his head and his eyelids have closed and >fluttered...for about 30 seconds or so, and then it's over. Nothing >moved otherwise, as far as extremities go, in fact they were still. >He seems to me to be falling much more often, and is dragging his >left foot. We went to ortho last week and the doc said everything >looked fine--?????!!! I'm frustrated, confused, hopeful, depressed, >and tired. Any suggestions? We go to our Peds Neuro next month, who >will most likely prescribe an anti-convulsant. But, I'd rather avoid >drugs that may cause us more problems without being absolutely SURE >that these are seizures. If we have an EEG, wouldn't he have to have >this episode during the EEG in order to notice it? HELP!!! :^) > >Thanks for your advice. >Laurie son >Mason's & Riley's mom (mas is undiagnosed, riley is ok as far as we >know....) > > > > >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
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