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Re: Email Among Friends

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In a message dated 5/10/00 6:44:25 PM Central Daylight Time,

damiller@... writes:

<< I think what we should all do is copy and print all these postings and

everything else we've found and saved on Pancreatitis, staple them together

or put them in a small binder and leave them at family members and friends

houses and our doctors offices. These messages boards are fine but I think

we're complaining to the wrong people. We already know what it's like to have

Pancreatitis. We just have to educate everyone else. >>

Hi Duanne,

You are absolutely right. And I am doing exactly that. I am working on the

book on Pancreatitis, and the book for children who have this disease. The

third book that I am working on is called, " E-mail Among Friends. " It is a

collection of all of these e-mails sorted by topic. Before any of you worry

about the breach of confidentiality, I would never print something that I

wasn't given permission to print. I am in the process of preparing a release

for anyone whose email would benefit the book. Submissions can also be used

as anonymous if anyone wants.

I agree that these emails provide invaluable information about what

Pancreatitis is all about. There are over 2 thousand posts that have been

made since the Network started. I am not sure, however, if anything would

help those not affected or doctors begin to have a clue, but it would be a

start.

Karyn

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