Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 I ordered my first bottle of carnosine from Vitaglo.... and it was NOT a good experience. They were VERY slow with shipping and I couldn't get anyone to respond to my e-mails. I'd rather pay a teensy bit extra and order from iHerb.com. They are soooo much faster, responsive and conscientious. I've never had a thing go wrong through that company. Shipping is very reasonable... and free if over $60. They have the NOW brand of carnosine.... and just tons of other great products that I use all the time. Prices are usually just slightly more than half what they are on the shelf at Wild Oats. Patti Barb/bry -Vitaglo.Com Now brand carnicine was 16.10. They have lots of products.Joan-Mom to -11 years old-epilepsy, ketokid since 9/4/01, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 On Thu, 25 Apr 2002 09:16:26 EDT jscooptions@... writes: Now brand carnicine was 16.10. They have lots of products.Thanks....thats what brand we are using! I cant see paying Chez prices even though I have access. personally I think its crazy. has been seizure free for a month on it!! I was rather upset that when I informed Doc Wyllie at CCF about s progress on Carnosine Tuesday, she blew it off. Chez was a resident at CCF and Graduated at I, like her! I dont understand how she could just deny the results. Its a shame really....she is denying so many kids an excellent opportunity to be seiuzure free like Bry!! oh well...you can lead a horse to water cya BArb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Barb, At what dose did you start Bry on? Saro...Rohan's mum martinccf@... wrote: On Thu, 25 Apr 2002 09:16:26 EDT jscooptions@... writes: Now brand carnicine was 16.10. They have lots of products. Thanks....thats what brand we are using! I cant see paying Chez prices eventhough I have access. personally I think its crazy. has been seizure free for a month on it!! I was rather upset that when I informed Doc Wyllie at CCF about sprogress on Carnosine Tuesday, she blew it off. Chez was a resident at CCF andGraduated at I, like her! I dont understand how she could just deny theresults. Its a shame really....she is denying so many kids an excellent opportunityto be seiuzure free like Bry!! oh well...you can lead a horse to watercyaBArb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 On Thu, 25 Apr 2002 23:50:18 +0100 sanaljay@... writes: > >Barb, >At what dose did you start Bry on? > >Saro...Rohan's mum I started Bry on 500mg in the Am...upped it after 3 days added 500 in the pm. Bry seemed to almost totally stop seizing within a few days. instead of eyetwitches following a funny look and a lip curl...we got just the funny look and sometimes a lip curl, no twitches. After adding the third dose in just a few days we just got a few 'funny looks' which Bry would argue and say nutten was wrong! Hes been seizure free since Easter! he is on 1500mgs, a relatively low dose for his size! But I felt safe in adding larger amounts because of it. (remember hes adult size and 16) notes from the Chez crew....names were deleted... > >Chez started ##### out at 200mg 2x daily. This was in the pilot study> when he was still trying to figure out >dosages. On the last visit Chez> told me that four autism, ADD, learning disorders and things the dosages> >are 800mg to 1200mg per day. For seizure control, you have to go higherso> ##### currently is on 500mg >4x daily. I do not know about adultdosages> for but that gives you a place to start. > > When we started in the study it was 200 mg per day (100 mg AM & PM). We> > stayed with that the entire study period but since it was an open label> study> > I know several others that he increased up to 800 mg per day. Chez> suggested> > we go up to 800 mg per day but I've been going slowly and now give 600mg> per> > day. A few others have said that they saw some hyperactivity with an> increase> > and I have seen that with #### too so have been going slow. First,the> > capsules were in 100mg and then they went up to 200 mg and then theyonly> had> > 400 mg so I sort of had to increase by default and started mixing myleft> over> > 200 with the 400. Now, the new Carn-Aware product is in 200 mg.> >> > > What amounts are the others using...do you remember?> >> >#### was not in the study and Chez suggested she start at 800 mg perday.> > I'm not sure if she started all 800 right away but did get to it rather> > quickly. #### started at 400 mg per day (if I remember correctly)and> then> > thought she saw some partial seizures about 2 weeks later. ##### has her> son> > at 3200 mg per day and he is only 5 and 40lbs. She started at 200 perday> but> > kept seeing improvements so Chez let her keep increasing.> >> > From what I understand from talking to the nurses, Chez is recommending> 800 mg> > per day currently. It doesn't seem to depend on age or weight from whatI> can tell It sure is worth a try Saro!! good luck Barb Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.