Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 >From: egroups >Reply-To: egroups >To: egroups >Subject: Digest Number 303 >Date: 13 May 2000 09:24:09 -0000 > >------------------------------------------------------------------------ >Make new friends, find the old at Classmates.com: >http://click./1/4052/5/_/442796/_/958209849/ >------------------------------------------------------------------------ > > >VIP >Add or view links about fibro/CFS. >http://www.onelist.com/links/ > >TO unsubscribe. >Go to: http://www.onelist.com/ Log in: >Go to this list: Click on your name: Select your choice. > >LIST OWNER:oa2@... > > > >------------------------------------------------------------------------ > >There are 15 messages in this issue. > >Topics in this digest: > > 1. Re: I am a newbie > > 2. questions > > 3. fms article > > 4. pain > From: janicelpn@... > 5. To all Moms > From: janicelpn@... > 6. New To List > > 7. Re: Fibro Hugs > > 8. Re: New To List > > 9. Re: New To List > > 10. Re: fms article > > 11. If you need a good laugh > > 12. Tina > > 13. Flare up - ouch! > > 14. Hello > > 15. Re: Hello > From: CQueenygirl@... > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 > Date: Fri, 12 May 2000 06:14:07 -0400 > >Subject: Re: I am a newbie > >We are glad you could join us, Tina. It is hard to take when one gets the >diagnosis. We are here for you if you want to talk. You have found the >right >place. > > >Tina Albrecht wrote: > > > Hi Everyone, > > My name is Tina, I am female, married 19 yrs, 2 boys, 17 & 13 and > > live just north of Des Moines in Iowa. I was just dx'd with FMS. > > Last year I found out also after being mis-dx'd with psychological > > problems that I have/had a Chiari 1 Malformation and syrinx. I had > > decompression surgery 7/99 with a laminectomy of C-1 and some other > > stuff. I felt wonderful after surgery until I went back to work @ > > 7weeks. Then all this stuff started, thought the Chiari was back but > > after several visits, MRI's and x-rays I went to a Rheumotologist (my > > NSG recommended it)and he dx'd me with FM two days ago. > > > > I am not sure what my thoughts are on all this becoz' I think it is > > just starting to settle in. I am going to have this the rest of my > > life! My family will have to put up with this the rest of they're > > lives. Sheesh, I almost wish I could have another brain surgery and > > it would be over with!! > > > > Anyway, that is my story. I belong to another group here for Chiari > > so I am familiar with how the group works, maybe not this group > > specifically but you know what I mean!! I do know that belonging to > > a group literally saved me from losing it and that is why I am here!! > > > > Thanks for being here, > > Tina Albrecht > > > > > > ------------------------------------------------------------------------ > > Remember four years of good friends, bad clothes, explosive chemistry > > experiments. > > http://click./1/4051/5/_/442796/_/958089384/ > > ------------------------------------------------------------------------ > > > > VIP > > Add or view links about fibro/CFS. > > http://www.onelist.com/links/ > > > > TO unsubscribe. > > Go to: http://www.onelist.com/ Log in: > > Go to this list: Click on your name: Select your choice. > > > > LIST OWNER:oa2@... > >-- > > >Early morning cheerfulness can be >extremely obnoxious- Feather > >Mom to Bear, Wife to > > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 2 > Date: Fri, 12 May 2000 07:05:58 -0500 > >Subject: questions > >Nancee, > > Hi and you are welcome. Sorry it has taken me so long to relpy to your >reply, but I have been suffering from a constant flare up for a couple >of weeks now, and just haven't been able to even sit at the computer >that long. But with our condition, I guess better late than never, >right? > >I am totally disabled through the government. You see, I had no choice >but to stop, because no one would hire me. i tried and tried for over a >year, putting applications in any place there was an opening, and no one >would hire me. So, in short, I can't work on the side, as being on total >disablitiy won't allow me to, even if for an hour or two a week. > > Yes, the fact that you are not slowing down or adjusting your life to >this disease, will and doe's make things harder, but it is also a chnge >that is very hard to do, ecspecially if you have always depended on >yourself and only yourself. Try to slow down a little at a time so that >you are not overwelmed. Huggles................ > >Toni > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 3 > Date: Fri, 12 May 2000 07:11:37 -0500 > >Subject: fms article > >Terry, > > Hi there! i just want to thank you for the article > " A Letter to the Healthy " It is so right and to the point. As a matter >of fact, i wanted to let you know, that I sat down and once again wrote >to the oprah show about Fibromyalgia, and this time, I included that >letter. As you know, with the fibro fog that settles in daily, it is >hard to remember everything you wanted to say, and I thought that letter >said just about everything. thanks again.............Huggles >Toni > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 4 > Date: Fri, 12 May 2000 09:13:12 -0400 (EDT) > From: janicelpn@... >Subject: pain > >PJ::::::I do hpe tht you are feeling better today. Wow what a few days >you have had. Did ou get it firgured out what the pain was from yet? >Any one of those things are not too pleasant. Please feel better >soon....... > >Tammy:::::so sorry for the way you have to meet all of us , but glad you >found us. This is a great bunch of people. There are alot of sites and >info (in archieves). Hope your day is good today. > >Can't talk long this am, need shower and then off to chiro and then >PT......going to dinner tonight with daughter and s-i-l for my mothers >day dinner.....tomorrow wouldn't work, have a mothers daughter dinner at >Mom's apt. bldg. and Sun is her day (she is a mom too),but hey I get >three meals and don't have to cook until Mon. cuz hubby is taking me >and Mom out on Sun.............so can't beat this arrangement, haha. >Have a GREAT DAY everyone....Jan M. 9mom of Spanky) > >PS:::::::: dogs are definitely good stress relievers,,,,,,,cats might be >too, I don't have any. but love my little bichon and did have a cocker >too last year, I lost him to the big " C " . Jan > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 5 > Date: Fri, 12 May 2000 15:16:23 -0400 (EDT) > From: janicelpn@... >Subject: To all Moms > >This was sent to me and I wanted to share with all you >moms-----------------------------------------------------Happy Mother's >Day! >Before I Was A Mom.......... >* Before I was a Mom >* I made and ate hot meals. >* I had unstained clothing. >* I had quiet conversations on the phone. >* Before I was a Mom >* I slept as late as I wanted >* And never worried about how late I got into bed. >* I brushed my hair and my teeth everyday. >* Before I was Mom >* I cleaned my house each day. >* I never tripped over toys or forgot words to lullabies. >* Before I was a Mom >* I didn't worry whether or not my plants were poisonous. >* I never thought about immunizations. >* Before I was a Mom >* I had never been >* Puked on >* Pooped on >* Spit on >* Chewed on >* Peed on >* Or pinched by tiny fingers >* Before I was a Mom >* I had complete control of My life, >* My thoughts, >* My body , >* And my mind. >* I slept all night. >* Before I was a Mom >* I never held down a screaming child >* So that doctors could do tests >* Or give shots. >* I never looked into teary eyes and cried. >* I never got gloriously happy over a simple grin. >* I never sat up late hours at night watching >* a baby sleep. >* Before I was a Mom >* I never held a sleeping baby just because >* I didn't want to put it down. >* I never felt my heart break into a million pieces >* When I couldn't stop the hurt. >* I never knew that something so small >* Could affect my life so much. >* I never knew that I could love someone so much. >* I never knew I would love being a Mom. >* Before I was a Mom >* I didn't know the feeling of having my heart >* outside my body. >* I didn't know how special it could feel to >* feed a hungry baby. >* I didn't know that bond between a Mother and >* her child. >* I didn't know that something so small >* Could make me feel so important. >* Before I was a Mom >* I had never gotten up in the middle of the night >* Every 10 minutes to make sure all was okay >* I had never known the warmth >* The joy >* The love >* The heartache >* The wonderfulment >* Or the satisfaction of being a Mom. >* I didn't know I was capable of feeling so >* much >* before I was a Mom. >* I LOVE BEING A MOM!!!!!! :-) > JAN > >I went to chiro today and he is having a 3-ways consult with the >insurance co. representive and an RN who will all determine if I should >continue with my treatments and if they will be paid for by Work. >Comp........I got hurt years ago and have been going to chiro for 14 >years now. They claim it is chronic (smart arent they?????) and say I >don't need further treatments.......hey, it helps me get through my >weeks due to back pain. I can't have surgery cuz of lung condition and >any pain meds I get I get through my own insurance cuz I need them for >fibro, so they are only paying for visit to chiro twice a >month...........wish they could live like I do, It is so much fun to be >in pain and not be able to do the things I once could, and the real fun >thing is I am sooooo wealthy on SSD/SSI, just rolling in the bucks, like >right!!!!!! I love being on disability and depending on the state for >my needs. Heck who wants to be working and making $13-$20 an hour as an >LPN? Not me I choose the good life of disability.........think I sound >a little T'd off? You bet......... they play with peoples lives and >don't give a ____! Well I will hear in a month or so ( and I am not >expecting good news, I never have good luck, so why should it happen >this time) Sorry folks, just needed to vent, big time. I try to >generally keep an up attitude, but............ > >Anyways;;;;;;; can't make me not wish you all a good weekend and a Great >Mother's Day too.....................Jan (Mom of Spanky, and human kids, >Cheri and Jill ) > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 6 > Date: Fri, 12 May 2000 12:35:54 -0700 (PDT) > >Subject: New To List > >Hi my name is , I am a 28 year old single mom to >a 5 year old daughter, McKenna. I've been struggling >with various illness's the last several months, with >the last 3 or 4 weeks having been quite bad. I've >struggled with varying degrees of symptoms and >problems from muscle pain to numbness to sleep >problems to migraine headaches. My doctor thought I >had meningitis and I was admitted to the hospital and >given a spinal tap (Horrible experience) and the tests >were negative. I spent a week in the hospital with no >real diagnosis and sent home. I've been off work for >6 weeks and am enduring a lot of problems from co >workers and friends saying things like " You just >wanted a vacation " or " It's all in your head " , etc. I >was sent to a rheumatologist in State College, PA and >today I was diagnosed with a really bad (is there a > " good " ) case of Fibromyalgia ~ he said severe. I'm >relieved to know there IS something wrong, that I was >NOT imagining it but now what? What am I to expect? >They gave me a medication called flexiril (I think) a >muscle relaxer? Any advice would be great ~ I dont >even know what to think or where to start thinking it. > > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 Hi Diane, I wish you were right about that but after six years of working with this problem I have it down pat. It is true about how I have to eat. I know it is hard to understand but that is the way it is. I don't know why I just woke up after having major surgery for second look ovarian cancer and I was vomiting and having diarrhea. From that time my life has turned upside down. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 Shirley, Is it possible you are focusing too much on what and how much you eat?I know when things are not going well for me I have to go to clear liquids or sometimes NPO. Then after a day or 2 I move on to crackers,toast, or mashed potatos. I know it took me a long time to find what I could and could not eat,and the less I focus on how much and what,the easier it is to get through the hard times. I may be totally off the wall...but then again... Diane Truly,truly I say to you,unless one is born again,he cannot see the kingdom of God(3:3) _______________________________________________________ Say Bye to Slow Internet! http://www.home.com/xinbox/signup.html Quote Link to comment Share on other sites More sharing options...
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