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I am new to this group and wanted to say thank you to the moderators.

I have explained to my partner that I hold back a lot of what I tell

him, because it is so depressing, but I do need the occasional ear.

He is very supportive, don't get me wrong, but, frankly, I wouldn't

want to listen to me all day either!

I have had multiple tests for my various types of pain, and although I

have been diagnosed with fibromyalgia, the pains are so varied, moving

and most often not at the trigger points, that I think there is

something neurological as well.

Many years ago I had a brain scan for lesions for Multiple Sclerosis,

but it turned out negative.

The doctor has wanted to put me on antidepressants which have been

approved for fibromyalgia, but I have had miserable luck with many

types of antidepressants in the past and refused. At that point, he

said, I will see you in three months and eventually you will be on

these medications.

I am almost 55, (live in West Virginia) have to support myself, so

disability is not an option.

So I wonder what do people do?

I will post more, but just wanted to say hi to folks here!

Robin

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  • 1 month later...

Hi Becky! Wow, how did you fall off the second floor deck? I read

something about wasps and a dog??

Eight pets...that's a lot! I've got just the one cat, but we want

another, and I want a ferret some day.

Nice to meet you...got to be cold right now in South Dakota! Bad

enough here at 31 degrees...I heard Minneapolis was in the negatives.

I hate the cold; makes me feel worse...does it affect you?

~Jewel

--- Becky in SD wrote:

> I want to welcome all the new members as well.  I am Becky.  I live

in South Dakota.  I have several health issues I deal with, but I try

not to let them define me.  I was for a long time, it contributed to a

suicide attempt.  But, I tend to be silly and joke a lot.  I have

eight animals.  Four cats, two dogs, and two hamsters.  :-)

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Becky,

First, that is a terrible thing that happened to you - falling of

your deck! Bless your heart for dealing with all the extra agony that

had to of brought on.

Second, I totally agree about not letting my disease define me. As a

matter of fact, there are many people that don't like the fact that I

won't stop being as active as I am with my disease. One of them being

my pain specialist. He told me the other day that I shouldn't need my

medication with my spinal column stimulator in place. I told him,

looking him square in the eye, if I don't have my medication to help

when I am active, I will be calling his office screaming in pain

because I will be at my 10 that he calls a 20!

I keep trying to stress to him that this is my last semester to

graduation! After I have my degree, we'll see where I can get a job

at that may allow me to slow down a little.

Lori

Becky wrote:

>

> Hello Everyone,

>  

> I have several health issues I deal with, but I try not to let them

define me. 

>  

> Love,

> Becky in SD

>

>

>

>

>

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