(No subject)

[Guest guest]

((( HUGS TONI )))

Helen

[Guest guest]

HI KAREN,

I TRIED THE WEB PAGE FOR THE GROUP, BUT IT SAYS IT HAS BEEN DELETED OR REMOVED FROM THERE. I DID FIND YOURS THOUGH. THANKS. THE ADDRESS FOR TALKCITY THAT I USED WAS http://home.talkcity.com/EaselStKLD7. LET ME KNOW IF I GOT IT WRONG.

THANKS AGAIN,

TONI

[Guest guest]

WELL, TONI !!DONT KNOW HOW MUCH YA KNOW ABOUT ME, HON !! BUT THE EASIEST

WAY IS TO GO HERE... http://members.tripod.com/~KLD7 .... Its my

webpage, which is sooooo outdated, I'm afraid !!! but its still easier

than tryin to tell it all here !! lol !!

OOPS !!! FORGOT TO PUT MY CAPS BACK ON !! LOL !! AND FOR ALL YA

NEWBIES... WE HAVE A WEBPAGE FOR THE LIST, WHICH IS ALSO OUTDATED !!!

GOOD GRIEF !! I'M BEHIND !! ITS HERE....

http://home.talkcity.com/EaselSt/KLD7 .... so any of ya that want to

send your pics, and something to say under them, are welcome to do so

!!!! Encouraged, actually !!!! LOL !! Even tho it takes me a while to

get them on !!!! 8^)

HI ALL,

I WAS TRYING TO SEND EACH OF YOU A SEPERATE E-MAILS BUT I CAN'T DO THAT MUCH TYPING.

I WANT TO WISH NICOLE A HAPPY BIRTHDAY. SORRY I COULDN'T GET TO IT YESTERDAY. I KNOW WHAT YOU MEAN ABOUT THE PICTURE FROM YOUR SON, MY DAUGHTERS LAST MOTHERS DAY CARD TO ME FROM HER AND MY GRANDSON WAS HOME MADE, WITH A SRIBBLED PICTURE FROM THE LITTLE ONE. I WILL ALWAYS KEEP IT. I MISS MY KIDS BEING THAT AGE. IT GOES SO FAST.

PLEASE, IF YOU ALL CAN, LET ME KNOW MORE ABOUT YOU. I COUPLE OF YOU ALREADY HAVE, BUT KNOW VERY LITTLE ABOUT THE REST OF YOU.

HAVE TO GO, BUT HOPE TO CHAT WITH YOU LATER.

TONI (COFFEEBARISTA)

[Guest guest]

DEAR TONI

SORRY I HAVE NOT RESPONDED

EARLIER-BUT THERE IS ALWAYS

SOME THING GOING ON HERE

I GO TOMORROW FOR RIGHT EYE

AND SURE HOPE I WILL BE ABLE

TO SEE CORRECTLY AGAIN--

SURE KNOW ALOT OF PEOPLE WILL

BE VERY HAPPY IF I DO NOT NEED

TO USE CAPS ANYMORE LOL

BUT ONLY GOD KNOWS WHAT WILL

HAPPEN

I WILL WRITE YOU PRIVATELY AND

TELL YOU ANYTHING YOU WANT

TO KNOW---AS THE LIST KNOWS

ME BETTER THAN I DO LOL

LOVE BETSY

HI BETSY,

I'M SORRY I HAVEN'T RESPONDED TOANY OF YOUR POSTINGS. I HAVE BEEN HAVING A REALLY BAD TIME OF IT. BUT I DO WANT YOU TO KNOW YOU HAVE BEEN IN MY THOUGHT & PRAYERS. I'M SO PLEASED YOU ARE HAVING YOUR EYES FIXED. SOUNDS LIKE YOU ARE REALLY TRYING TO TAKE CARE OF YOURSELF. I BELIEVE MOST PEOPLE WITH THESE DD'S ARE THE ONES WHO HAVE TAKEN CARE OF OTHERS ALL THEIR LIVES, AND WHEN IT COMES TO THE POINT WHEN WE NEED THEIR HELP, THEY DON'T KNOW HOW. I KNOW IT'S NOT TRUE FOR ALL, BUT MOST. I'M LUCKY, MY HUSBAND HAS BEEN GREAT. HE'S NOT THE BEST HOUSE KEEPER, BUT AT LEAST HE DOESN'T COMPLAIN. OR MAKE ME FEEL BAD.

I HAVE TO SIGN OFF. WE ARE GOING TO GO SEE A MOVIE. I SEEM TO BE BETTER THIS WEEKEND.

HAVE A HAPPY EASTER.

TONI

[Guest guest]

HI BETSY,

DON'T WORRY IF IT TAKES AWHILE TO WRITE BACK. SOMETIMES I CAN'T POST FOR SEVERAL DAYS. TYPING IS ONE OF MANY THINGS THAT HURTS TO DO. I JUST WANTED YOU TO KNOW THAT I CARE AND HAVE BEEN PRAYING FOR YOU.

I FEEL BAD BECAUSE I HAVEN'T WRITTEN TO HELEN FOR A LONG TIME. LAST WEEK WAS MY LAST AT MY JOB, SO I HAVE BEEN FEELING SORRY FOR MYSELF. THE OWNERS DIDN'T EVEN SAY GOODBYE OR NICE JOB, NOT EVEN A CARD. THAT'S LIFE. WE DON'T ALWAYS GET WHAT WE THINK WE NEED.

I AM HOPING TO START WORKING ON MY HEALTH. I TAKE WAY TO MUCH PAIN MEDS RIGHT NOW. I DON'T LIKE THE WAY THEY MAKE ME FEEL. THE FIBRO FOG IS BAD ENOUGH, THEN ADD PAIN KILLERS TO THE MIX AND IT MAKES IT WORSE.

I NEED TO GET GOING, I'VE TYPED ALL I CAN FOR NOW. GOOD LUCK TOMORROW. I WILL BE PRAYING AND THINKING ABOUT YOU.

GOD BLESS,

TONI (COFFEEBARISTA)

[Guest guest]

TONI, I AM SO GLAD TO SEE THAT YOU HAD A GOOD DAY TODAY!!!! WE WANT TO

KNOW THAT GOOD, THAT BAD, AND THE UGLY. AND NO, I DO NOT MEAN CLINT

EASTWOOD. THAT IS WONDERFUL THAT YOU ARE GOING TO GET SOME BENEFITS.

WHAT DO YOU TAKE FOR YOUR PAIN?

CINDY

> HI EVERYONE,

>

> I WANTED TO TELL YOU ALL THAT I'VE HAD A PRETTY GOOD DAY. IT SEEMS THAT ALL

> I DO IS TALK ABOUT HOW AWFUL THINGS ARE AND HOW MUCH I HURT.

>

> THE LAST FEW DAYS HAD BEEN REALLY BAD. MY PAIN WAS MAKING ME VERY HARD TO

> LIVE WITH, BUT TODAY WHEN I GOT UP, THE PAIN WAS A LITTLE BETTER. I WENT TO

> ADULT AND FAMILY SERVICES AND THEY SAID THEY MIGHT BE ABLE TO HELP WITH THE

> RENT. WE ARE 3 MONTHS BEHIND. ALSO THE GUYS WHO OWN THE PLACE I WAS RUNNING

> CHECKED WITH ME TO SEE IF I WAS OKAY. I THINK THEY REALLY MEANT IT. IF YOU

> REMEMBER, THEY HURT ME BECAUSE WHEN I LEFT NONE OF THEM SAID A THING. AND

> LASTLY, THE EMPLOYMENT OFFICE HAD AT FIRST SAID I DID NOT QUAILFY FOR

> BENEFITS, BUT REVERSED THEIR DECISION AND NOW I WILL GET SOME MONEY.

>

> THIS HAS BEEN A GOOD DAY. BUT I HAVE TO STOP. MY ARMS ARE BURNING NOW. I

> STILL CAN'T TYPE VERY MUCH, BUT SOME DAY I WILL.

>

> TONI

[Guest guest]

JO,

I DID ALSO HAVE SYMPTOMS LIKE CRAMPS AFTER MY SURGERY, BUT THAT DIDN'T LAST LONG, THEN THEY STOPPED ALTOGETHER. I NEED TO CHANGE DOCTORS REAL BAD BECAUSE I THINK HE IS GOING TO CAUSE ME PROBLEMS WITH MY CLAIM. HE KEEPS MAKING MISTAKES ON EACH LETTER HE SENDS TO EVERYONE CONCERNING MY CLAIM OR BENEFITS. I HAVE TO TAKE THEM IN AND SINCE I DON'T HAVE A CAR ANY LONGER IT IS VERY HARD TO HAVE TO KEEP GOING BACK JUST TO SHOW HIM THE LETTERS. HE DOESN'T KEEP ANY COPIES IN MY FILE, SO I HAVE TO MAKE COPIES SO HE CAN SEE HIS ERRORS.

THE VERY FIRST LETTER IS SENT WAS TO EMPLOYMENT OFFICE AND VOCATIONAL REHAB, SO I COULD QUALIFY FOR UNEMPLOYMENT AND RETRAINING OF SOME KIND. HE MADE SO MANY ERRORS THAT NOW I CAN'T GET UNEMPLOYMENT CHECKS AND ALMOST LOST MY CHANCE WITH VOC REHAB. I THINK I HAVE THINGS OKAY AT REHAB, BUT I HAD TO ASK FOR A HEARING FROM THE EMP. OFF. AND I AM NOW WAITING TO HEAR FROM THEM. THEY ARE NOT IN AMY HURRY TO FIX IT. THIS DOC IS COSTING US MONEY WE DESPERATELY NEED. MY HUSBAND IS STILL NOT GETTING MONEY. HIS PARENTS HAVE PAID THE RENT THE TWO MONTHS, BUT THEY CAN'T DO IT ANYMORE.

SORRY I GOT LONG WINDED AGAIN,

TONI

[Guest guest]

TONI IF THEY LEFT YOUR OVARIES IN YOU CAN HAVE PMS. THEY STILL

OVALULATE(?) EVEN THOU YOU HAVE NO PLACE FOR THE EGGS TO GO. I HAVE A

COUPLE OF FRIENDS FROM MY MILITARY DAYS WHO HAVE CRAMPS LIKE THEY ARE

GOING TO START THEIR PERIODS THEIR DRS PUT THEM ON BIRTH CONTROL TO STOP

THE CRAMPS AND IT WORKED. BUT I HOPE YOU ARE GOING TO HIM TO STRAIGHTEN

OUT THE MISTAKES HE MADE IT MIGHTLOOK A LITTLE STRANGE TO A DISABILITY

REVIEW BOARD IF THEY CHECKED IT OUT REAL CLOSE. LUV JO

                              

http://community.webtv.net/jowaca/JOSFAVORITEPICTURES

HI ALL,

I HAVE TO TELL YOU ABOUT THE DOCTOR I HAVE BEEN GOING TO FOR MY FMS, CFM, MPS, ETC.... I TOOK SOME FORMS IN ON MY LAST VISIT, WHICH WAS LAST THURSDAY, FOR MY DISABILITY CLAIM. HE SAID HE WOULD FILL THEM OUT AND RETURN THEM TO ME. HE WAS QUICK ABOUT IT. I RECEIVED THEM THE NEXT DAY IN THE MAIL. BUT I THINK HE WAS TO FAST WITH THEM. HE WAS CORRECT WITH MOST OF MY DD'S, BUT LEFT OUT SOME IMPORTANT ONES, LIKE MY MYTRO VALVE PROLASPE AND A FEW MORE. BUT THE ONE THAT MAKES ME THINK HE ISN'T PAYING ATTENTION TO ME, IS THAT TWO ANSWERS ABOVE SAID I HAD A HYSTERECTOMY, WHICH I DID SOME YEARS AGO AT A VERY YOUNG AGE. THEN HE TURNS AROUND AND SAYS I AM SUFFERING FROM PMS. WHAT DO YOU THINK? I REALLY NEED TO SEE A RHUEMY DOC, BUT KNOW IN MY AREA ARE TAKING PATIENTS WITH MY DD'S.

SORRY I WENT ON FOR SO LONG. I'M NOT HURTING AS MUCH TODAY, BUT STILL HAVE NOT VOICE. I THINK MY HUSBAND LIKES THAT.

TONI

[Guest guest]

YOU ARE NOT LONG WINDED YOU HAVE READ MY POSTS RIGHT? I KNOW WHERE YOU

ARE COMING FROM THOU. IT TOOK ME 2 YEARS TO GET MY VA DISABILITY STARTED

AND I LIVED OFF THE SAVINGS I HAD IN THE BANK. IT WAS A GOOD THING I

KNEW HOW TO BUDGET AND SAVE MONEY BACK THEN OR I WOULD HAVE BEEN IN

TROUBLE. HAVE YOU TRIED TO GET ON HUD? THEY WILL HELP YOU PAY YOUR RENT

AND GIVEYO A UTILITIES CHECK UNTIL YOR HUSBAND OR YOU CAN FIND A JOB

AGAIN. THEY DO HAVE WAITING LISTS. ALSO TALK TO THE REHAB PPL THEY MAY

BE ABLE TO HELP YO U ALSO. HOPE THIS HELPS SOME. LUV JO

                              

http://community.webtv.net/jowaca/JOSFAVORITEPICTURES

JO,

I DID ALSO HAVE SYMPTOMS LIKE CRAMPS AFTER MY SURGERY, BUT THAT DIDN'T LAST LONG, THEN THEY STOPPED ALTOGETHER. I NEED TO CHANGE DOCTORS REAL BAD BECAUSE I THINK HE IS GOING TO CAUSE ME PROBLEMS WITH MY CLAIM. HE KEEPS MAKING MISTAKES ON EACH LETTER HE SENDS TO EVERYONE CONCERNING MY CLAIM OR BENEFITS. I HAVE TO TAKE THEM IN AND SINCE I DON'T HAVE A CAR ANY LONGER IT IS VERY HARD TO HAVE TO KEEP GOING BACK JUST TO SHOW HIM THE LETTERS. HE DOESN'T KEEP ANY COPIES IN MY FILE, SO I HAVE TO MAKE COPIES SO HE CAN SEE HIS ERRORS.

THE VERY FIRST LETTER IS SENT WAS TO EMPLOYMENT OFFICE AND VOCATIONAL REHAB, SO I COULD QUALIFY FOR UNEMPLOYMENT AND RETRAINING OF SOME KIND. HE MADE SO MANY ERRORS THAT NOW I CAN'T GET UNEMPLOYMENT CHECKS AND ALMOST LOST MY CHANCE WITH VOC REHAB. I THINK I HAVE THINGS OKAY AT REHAB, BUT I HAD TO ASK FOR A HEARING FROM THE EMP. OFF. AND I AM NOW WAITING TO HEAR FROM THEM. THEY ARE NOT IN AMY HURRY TO FIX IT. THIS DOC IS COSTING US MONEY WE DESPERATELY NEED. MY HUSBAND IS STILL NOT GETTING MONEY. HIS PARENTS HAVE PAID THE RENT THE TWO MONTHS, BUT THEY CAN'T DO IT ANYMORE.

SORRY I GOT LONG WINDED AGAIN,

TONI

[Guest guest]

TONI

WE ALL KNOW WHAT YOU ARE

GOING THROUGH WITH YOUR

DOCTOR--BEEN THERE AND DONE

THAT

SEND THE PAPERS IN TO WHEREEVER THEY HAVE TO GO

BUT MAKE A COPY FOR YOURSELF

AND PUT A NOTE ON THE NOTES

STATING THE OTHER PROBLEMS

YOU HAVE HE FORGOT TO MENTION

I THOUGT IT WAS ONLY DOWN HERE

IN FLORIDA THE DOCTORS ARE

JERKS LOL

BETSY

HI ALL,

I HAVE TO TELL YOU ABOUT THE DOCTOR I HAVE BEEN GOING TO FOR MY FMS, CFM, MPS, ETC.... I TOOK SOME FORMS IN ON MY LAST VISIT, WHICH WAS LAST THURSDAY, FOR MY DISABILITY CLAIM. HE SAID HE WOULD FILL THEM OUT AND RETURN THEM TO ME. HE WAS QUICK ABOUT IT. I RECEIVED THEM THE NEXT DAY IN THE MAIL. BUT I THINK HE WAS TO FAST WITH THEM. HE WAS CORRECT WITH MOST OF MY DD'S, BUT LEFT OUT SOME IMPORTANT ONES, LIKE MY MYTRO VALVE PROLASPE AND A FEW MORE. BUT THE ONE THAT MAKES ME THINK HE ISN'T PAYING ATTENTION TO ME, IS THAT TWO ANSWERS ABOVE SAID I HAD A HYSTERECTOMY, WHICH I DID SOME YEARS AGO AT A VERY YOUNG AGE. THEN HE TURNS AROUND AND SAYS I AM SUFFERING FROM PMS. WHAT DO YOU THINK? I REALLY NEED TO SEE A RHUEMY DOC, BUT KNOW IN MY AREA ARE TAKING PATIENTS WITH MY DD'S.

SORRY I WENT ON FOR SO LONG. I'M NOT HURTING AS MUCH TODAY, BUT STILL HAVE NOT VOICE. I THINK MY HUSBAND LIKES THAT.

TONI

[Guest guest]

TONI

WE ALL KNOW WHAT YOU ARE

GOING THROUGH WITH YOUR

DOCTOR--BEEN THERE AND DONE

THAT

SEND THE PAPERS IN TO WHEREEVER THEY HAVE TO GO

BUT MAKE A COPY FOR YOURSELF

AND PUT A NOTE ON THE NOTES

STATING THE OTHER PROBLEMS

YOU HAVE HE FORGOT TO MENTION

I THOUGT IT WAS ONLY DOWN HERE

IN FLORIDA THE DOCTORS ARE

JERKS LOL

BETSY

HI ALL,

I HAVE TO TELL YOU ABOUT THE DOCTOR I HAVE BEEN GOING TO FOR MY FMS, CFM, MPS, ETC.... I TOOK SOME FORMS IN ON MY LAST VISIT, WHICH WAS LAST THURSDAY, FOR MY DISABILITY CLAIM. HE SAID HE WOULD FILL THEM OUT AND RETURN THEM TO ME. HE WAS QUICK ABOUT IT. I RECEIVED THEM THE NEXT DAY IN THE MAIL. BUT I THINK HE WAS TO FAST WITH THEM. HE WAS CORRECT WITH MOST OF MY DD'S, BUT LEFT OUT SOME IMPORTANT ONES, LIKE MY MYTRO VALVE PROLASPE AND A FEW MORE. BUT THE ONE THAT MAKES ME THINK HE ISN'T PAYING ATTENTION TO ME, IS THAT TWO ANSWERS ABOVE SAID I HAD A HYSTERECTOMY, WHICH I DID SOME YEARS AGO AT A VERY YOUNG AGE. THEN HE TURNS AROUND AND SAYS I AM SUFFERING FROM PMS. WHAT DO YOU THINK? I REALLY NEED TO SEE A RHUEMY DOC, BUT KNOW IN MY AREA ARE TAKING PATIENTS WITH MY DD'S.

SORRY I WENT ON FOR SO LONG. I'M NOT HURTING AS MUCH TODAY, BUT STILL HAVE NOT VOICE. I THINK MY HUSBAND LIKES THAT.

TONI

[Guest guest]

BETS, THANKS FOR THE IMFORMATION. I REALLY NEED ALL THE HELP I CAN GET. I'M SORRY SO MANY OF YOU HAVE HAD A ROUGH TIME GETTING BENEFITS, BUT IT SURE HELPS TO HAVE PEOPLE WHO KNOW WHATS IT'S LIKE AND CAN GIVE POINTERS.

TONI

[Guest guest]

BETS, THANKS FOR THE IMFORMATION. I REALLY NEED ALL THE HELP I CAN GET. I'M SORRY SO MANY OF YOU HAVE HAD A ROUGH TIME GETTING BENEFITS, BUT IT SURE HELPS TO HAVE PEOPLE WHO KNOW WHATS IT'S LIKE AND CAN GIVE POINTERS.

TONI

[Guest guest]

Congrats on your upcoming tr! Be sure to take Phazyme for the gas,

comfey baggy clothes, strongest over the counter Motrin in case pain

killers make you sick or just don't quite last until it's time for

more, plastic baggies and waterproof tape to cover your incision in

the shower, a small pillow to hold to your tummy on the shuttle etc,

pads (these work great inside the front of your panties to prevent

your pants rubbing you like crazy) and shave the night before!

Otherwise they will do it at the hospital. Take reading material and

a phone card! I flew up from Dallas on a Wednesday, flew home on

Saturday and was back on work, slowly, the following Tuesday for 1/2

days. I had my TR on 08/29/02 and my EDD is 08/19/2003! Best money I

ever spent in my life!! I'd do it all over again in a heart beat!

Keep us posted and here's wishing you great lengths and loads of baby

dust!

Jenn 29 TX

DH 27

DS 11

DS 9

> Hello,

> Its been a while since I have written to the board, wondering

if we have

> had any babies, or success stories? I am anxiously awaiting my

reversal this

> friday the 20th, however I am VERY nervous!!! Anyone whos had there

surgery

> have any advice??

>

> Sincerely,

> ( NY )

>

>

>

[Guest guest]

Good Luck on your surgery. Take comfy clothes and some anti-gas medication.

Please let us know how it goes.

(no subject)

Hello,

Its been a while since I have written to the board, wondering if we have

had any babies, or success stories? I am anxiously awaiting my reversal this

friday the 20th, however I am VERY nervous!!! Anyone whos had there surgery

have any advice??

Sincerely,

( NY )

[Guest guest]

  this is tiffany i had m.s for 6 years i have not got to talk to anyone yet

but i think your right they just want to sell there meds thats how they make

there money

________________________________

To: mscured

Sent: Tue, December 8, 2009 5:53:06 PM

Subject: (no subject)

 

>Is it just me,,or are the different MS societies who are suppose

>to help MS sufferers, using a " full court press " as a last ditch

>effort to raise donations before the CCSVI treatment becomes mainstream?

It is an interesting dichotomy isnt it. You would think or hope that

these organizations were formed for the benefit of MS but then

they become their own entity and organism trying to fight for

survival, even at the expense of their original mission.

So you shouldnt be surprised at all, it is just like a pharmaceutical

company doesnt actually want to find a cure for anything, they

just want to find a medicine to " manage " the disease.

I don't think these organizations want a cure either.

[Guest guest]

There is a type of yogurt that you make yourself, a part of the Specific

Carbohydrate Diet. You can google it for instructions how. It is fermented for

over 24 hours so that most of the casien is fermented out of it. It is chalk

full of healthy bacteria. BUT.... still not all can tolerate it! If not,

fermented veggies are the way to go or fermented coconut kefir water as is

specified by the Body Ecology Diet. No casien in 'that' one for certain!

Fermented foods give you LOADS of beneficial bacteria, far more than any type of

commercial probiotic can...

Janice

From: Abri328@...

Sent: Sunday, August 15, 2010 5:27 PM

To: mscured

Subject: (no subject)

I was rereading Mcdougal's book. The 3 basic things are avoiding

dairy, sugar, and controlling your fat intake. I have a question though. He

recommends eating yogurt? Isn't that dairy? I'm confused!

Tina</HTML>

[Guest guest]

There is a type of yogurt that you make yourself, a part of the Specific

Carbohydrate Diet. You can google it for instructions how. It is fermented for

over 24 hours so that most of the casien is fermented out of it. It is chalk

full of healthy bacteria. BUT.... still not all can tolerate it! If not,

fermented veggies are the way to go or fermented coconut kefir water as is

specified by the Body Ecology Diet. No casien in 'that' one for certain!

Fermented foods give you LOADS of beneficial bacteria, far more than any type of

commercial probiotic can...

Janice

From: Abri328@...

Sent: Sunday, August 15, 2010 5:27 PM

To: mscured

Subject: (no subject)

I was rereading Mcdougal's book. The 3 basic things are avoiding

dairy, sugar, and controlling your fat intake. I have a question though. He

recommends eating yogurt? Isn't that dairy? I'm confused!

Tina</HTML>

[Guest guest]

I know this may sond strange but it wrked for me, after a three day blinding

headache,I was told to go to the ER,when  I went there they said it was a

Migraine headache. I told them I get Migraines and this is no migaine.

 I went home with a great idea given to me from one of the patients in the ER.

    Th girl said to wrap a heating pad arund your head and turn it onto the

highest temperature you can stand. I did it and it worked. I felt a " crackling

sensaton " in my head ,and the headache was gone.

  I told my neurologist about it and he just " looked kind of weird at me " , I

told him since it worked on me and I hadn't gotten any other migraines since

then too!

 Sometimes the best reidies are the old ones. I've been Migraine Headache free

since 1998. I only had one headache that I can remember and it wasn't a migraine

either.