Re: Fibromyalgia?

[Guest guest]

Hi Tamara--My mom has fibro and chronic fatigue syndrome. She takes celebrex

for hers and she has to exercise. When her pride and joy passed away in

May(Huey, her cocker spainel), so quit playing tennis. She has always been very

active in tennis, and when she did that, her fibro got so bad, so could hardly

move. So, the key to hers is moving--walking, running, something that you enjoy

that'll keep you active. Otherwise, your bones will really ache and ache. Keep

me posted on what your blood work shows and I hope it's nothing bad.

Smiles--Amie

Fibromyalgia?

I went to my doctor appt today to find out if all the

pain I have been having is due to arthritis and the

doctor thinks it is fibromyalgia. Now I know that

there are a few people on this list who also have

this. What are you doing for it....is there anything

to do for it....what causes it....what does this mean?

I was just shocked when she said she thought it was

this. They took blood to rule out lupus and a couple

other things, so I should know for sure soon.

Thanks all.....

Tamara

=====

Tamara

mom to :

Ebony, 4 yrs -- asd, ADHD, bi-polar

, 1 year

wife to:

Terry, love of my life

__________________________________________________

[Guest guest]

Thanks Amie. I just went on line to check it out and

the more I read about it the more I think that this is

definetely what I've got. I have always thought that

it was just the beginnings of arthritis because my mom

has arthritis really bad. But this sounds so much

like what I have. I am tired always, I can't sleep

soundly, I wake up tired and stiff and sore. I have

headaches a lot, the irritated bowel syndrome, and

depression with are also associated with this is all

there. I feel kinda like I did when someone said the

autism word and I looked it up on the computer and it

was just like OMG. This is totally Ebony. Now it's

me. Fibromyalgia is totally me. I recognize myself

when I read about it. It's really wierd for me to

have a name for this.

Thanks again.

Tamara

--- Amie Lehman wrote:

> Hi Tamara--My mom has fibro and chronic fatigue

> syndrome. She takes celebrex for hers and she has

> to exercise. When her pride and joy passed away in

> May(Huey, her cocker spainel), so quit playing

> tennis. She has always been very active in tennis,

> and when she did that, her fibro got so bad, so

> could hardly move. So, the key to hers is

> moving--walking, running, something that you enjoy

> that'll keep you active. Otherwise, your bones will

> really ache and ache. Keep me posted on what your

> blood work shows and I hope it's nothing bad.

> Smiles--Amie

>

> Fibromyalgia?

>

> I went to my doctor appt today to find out if all

> the

> pain I have been having is due to arthritis and the

> doctor thinks it is fibromyalgia. Now I know that

> there are a few people on this list who also have

> this. What are you doing for it....is there

> anything

> to do for it....what causes it....what does this

> mean?

> I was just shocked when she said she thought it was

> this. They took blood to rule out lupus and a

> couple

> other things, so I should know for sure soon.

> Thanks all.....

> Tamara

>

>

> =====

> Tamara

> mom to :

> Ebony, 4 yrs -- asd, ADHD, bi-polar

> , 1 year

> wife to:

> Terry, love of my life

>

> __________________________________________________

>

[Guest guest]

Tamara,

That is one of a long list of diagnoses my little sister was given. She

takes tons of pain meds. She's also the one who went blind and who's 2YO was

just diagnosed with PDD.

Hmm...

Sissi

Kids' Page

http://www.isoa.net/~nitetrax/dillon.htm

Boone's Art

http://www.isoa.net/~nitetrax/bart.htm

[Guest guest]

Tamara,

I have fibromyalgia and though I don't have the extra diagnosis I believe I have

the chronic fatigue as well...more often than not they go hand in hand. I wish

I could help you by telling you what I am doing for it that is helping but at

this point I am doing nothing...just trying to live with it the best I can. I

am sensitive to a lot of meds and anything I take for my fibro is going to knock

me out so I wouldn't be able to take care of Brocky. I'm stuck between a rock

and a hard place. Exercise is very important if you're able to do it without

causing even more pain. The greatest source of information I have found so far

is a book by Devin Starlanyl...but I can't tell you the title because I'm not

home...I'm at my mom's on her computer because ours crashed and I have no idea

when it'll be up and running. I'm in the process of reading/skimming all 470

pieces of mail in my inbox and then going nomail until we get our computer

fixed. I THINK the book is something like The Fibromyalgia and Myofascial Pain

Syndrome Handbook and it has tons of information in it. I think it cost

somewhere around 20 or 25 dollars but you might find it at your library. Once I

get my darn computer up and running again I would be more than happy to chat

with you if you would like. I am going nomail on my mailing lists (there IS one

for fibromyalgia too if you're interested...it's also on yahoo and I believe it

is called something like fibromyalgia-cfs if you want to look for it...they are

also very nice people and very helpful) but you can email me privately at

Mommy@... but I can't guarantee how long it will take for me to

answer...hopefully we'll be up and running by Monday.

ANYWAY...hope the book title or the mailing list info helps...talk to you later!

Jen in Iowa

Fibromyalgia?

I went to my doctor appt today to find out if all the

pain I have been having is due to arthritis and the

doctor thinks it is fibromyalgia. Now I know that

there are a few people on this list who also have

this. What are you doing for it....is there anything

to do for it....what causes it....what does this mean?

I was just shocked when she said she thought it was

this. They took blood to rule out lupus and a couple

other things, so I should know for sure soon.

Thanks all.....

Tamara

=====

Tamara

mom to :

Ebony, 4 yrs -- asd, ADHD, bi-polar

, 1 year

wife to:

Terry, love of my life

__________________________________________________

[Guest guest]

Hi,

I haven't been able to figure out what pain I have. I can't even have my hubby

hug me because it hurts for him to do that.

The doctor told me that after radiation and chemo that I could have bone pain. I

have no idea what that is suppose to feel like.

Seems like I get rid of my brain tumor and then I develop other things that have

to be taken care of because of the radiation and chemo.

Pain is pain to me. I think I have pain in my joints.

I know I have some type of arthritis, esp in my back, but I keep getting

cramps and pain in my feet and cramps in my legs both front

and back.

The doctor thinks I could be dehydrated and I do take zyrtec or benadryl

sometimes for allergies but I am constantly drinking water

or decaf ice tea.

I had really bad knee pain the first few weeks of radiation or chemo,

I can't remember which but it was VERY painful that I couldn't stand

it and I didn't know what to take for it.

 

Granada/WI 

[Guest guest]

,

I do not know much about radiation and chemo other than watching family and

friends go through it. It can be extremely painful. You should talk to

your oncologist or primary care doctor about the pain. They will be able to

tell you if what you are feeling is or is not related to the radiation or

chemo.

If you have not read it, I highly recommend Lance Armstrong's book called:

It's Not About The Bike. I am not a sports fan and knew nothing about

cycling. But a friend gave it to me when I had cervical cancer. It is very

informative and inspirational even to a couch potato like me. One of the

things I remember most is how hard the chemo was on him. He describes how

his cycling taught him to ignore pain, but he found the chemo to be very

painful.

Sorry for your pain. Check in with your doctors before jumping to another

diagnosis.