Re: what we do is what we can

[Guest guest]

Hi all. Well it was fun having a nice discussion about to dress or not to dress.

I hope no one got upset or took offense. Kudos to us as a group to be able to

present all sides without hard words or feelings.

Don't we all wish we could talk to our families and medical providers and get

sane discussions.

I have a rare often hereditary disease that often afflicts women at puberty.

Icould see it happening to one of my nieces. I tried to talk to my sister so she

could make her aware but my sister cut me off with the following statement. " I

don't believe in sitting around and talking about being sick " .

It shocked me. Granted when I was first diagnosed I probably talked about it too

much. The illness is not life threatening but is certainly life changing and I

was in shock for a while. I don't have direct contact with my niece so I am

really sad because there is so much she could do to avoid ending up like me, in

chronic painful pain.

All well hope for a perfect world. Anyway thanks everyone for chiming in.

Candy