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HI, THIS IS A GREAT GROUP HERE. I AM SO GLAD THAT I FOUND IT A FEW

WEEKS AGO TOO. I AM SORRY THAT YOU ARE NOT DOING GOOD. THIS IS THE

PLACE TO BE TO TALK TO OTHERS. ALOT OF US IM EACH OTHER WHEN WE CATCH

EACH OTHER. I DO NOT KNOW IF THERE IS A FORMAL CHAT OR NOT.

CINDY

> From your description this sounds like the place I'd like to be. I've

> been sick for about 5 years now. Been dx'd for 3. Having a rough go

> of it right now. Does this group have a live chat session? Maybe I'm

> just not finding the right place to " point & click " ! I've never

> joined a chat group before so this is all new to me!

> Thanks,

> mjbachman

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MARCY, AGAIN, WELCOME TO THIS WONDERFUL AND WACKY GROUP. THEY ARE A

LIFE SAVER TO ME AND HELPED ME TREMENDOUSLY. IT SURE SOUNDS LIKE YOU

HAVE BEEN AROUND THE BLOCK WITH LOTS OF HORRIBLE THINGS HAPPENING TO

YOU. I AM SO SORRY ABOUT YOUR DAD AND LOSING HIM. KEEP IN TOUCH.

CINDY

> Hi Sharon - Just call me Marcy. Thanks to you and all who have welcomed me

into the group. The number of postings is hard to keep up with and probably will

be until I catch the thread of all the conversations. Am enjoying trying to

figure out what's going on though. That'll take your mind off what's ailin ya

for sure!

> Maybe it would be appropriate to give you all a bit of background information

on me although I really don't want to bore anyone.

> As far as CFIDS: Most likely about the same as most of you. Been sick about 5

years. Been diagnosed a little over 3. Have lots of joint and muscle aches. Also

have migrain headaches - some severe with my sight leaving - then severe pain -

usually have to go to doc or hospital for shots which I hate. Usually lose about

3 days per episode. Depression hits on and off - just aiming for more good days

than bad like us all. Not able to work right now (bummer) but keep hope that

I'll get well enough to get back in the game. Prior to getting sick I had a

printing business for about 10 yrs. Got really sick when a fire to the bldg.

next to mine burned / when they demolished the bldg next to mine they caused

structural damage to mine / my bldg. condemned (did I say I lived there at the

time) / had insurance - both parties insured by same co. / ins. co. denied my

claim / caused big lawsuit / lost bldg. / lost lawsuit / lost most of business /

almost lost mind / lost health. That's the really short version.

> Into the edge of about 3 yrs of fighting for my bricks, my dad (89) (who

adopted me - what a hero) became ill. He'd never ever even been sick. Went

through about 2 yrs of a horrible battle for him. Maybe I saw too much or just

on top of everything else it was too much. Anyway, we lost him right before

Christmas a year ago. The Grief for me has been overwhelming. I miss him so much

but I'm doing better now - just have it hit on occassion now. Seems like I woke

up from a bad dream to find my emotions & health somewhat messed up. So I'm

working on it!!!

> As for daily stuff - I live in a zoo!!!! Really! Husband, 2 boys (they're

great - 13, 16), 4 dogs, 5 cats, 1 bird, 2 horses and looking hard for the

partridge in the pear tree! Used to have salt water and fresh water tanks too

but too much to maintain. Miss them though. Mostly, I use humor to survive.

>

> OH DEAR - I JUST REMEMBERED TO USE CAPS - SORRY FOR ABOVE - TRY TO REMEMBER

FROM NOW ON.

>

> THANKS TO ALL WHO WELCOMED ME. IT'S NICE TO BE ABLE TO TALK TO PEOPLE WHO CAN

TRULY RELATE TO WHAT YOU GO THROUGH WITH THIS DD!!!!!!!

>

> I'LL BE LURKING TRYING TO GET INTO THE SWING OF THINGS ........ MEANWHILE,

PRAYERS FOR ALL WHO ARE HAVING A ROUGH GO AND HOPEFULLY I'LL BE ABLE TO

CONTRIBUTE FROM TIME TO TIME.

>

> GOD BLESS YOU ALL,

> MARCY

>

> Hello

>

>

> >From your description this sounds like the place I'd like to be. I've

> been sick for about 5 years now. Been dx'd for 3. Having a rough go

> of it right now. Does this group have a live chat session? Maybe I'm

> just not finding the right place to " point & click " ! I've never

> joined a chat group before so this is all new to me!

> Thanks,

> mjbachman

>

>

>

>

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Guest guest

WHAT'S SANE?????? IT'S MUCH MORE FUN THIS WAY.

HUGS

SHARON

When your up to your butt in alligators, it's hard to remember your 1st

objective was to drain the swamp.

Sharon

Re: Hello

LMAO YOU TELL HIM CINDY !!! THERE ARE NO SANE PPL HERE. LUV JO

                              

http://community.webtv.net/jowaca/JOSFAVORITEPICTURES

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-----BEGIN PGP SIGNED MESSAGE-----

kini12943us came up out of the brain fog long

enough to scribble:

> UM, BUBBA, YOU ARE NOT THE ONLY " SANE PERSON " IN THIS GROUP. I BEG TO

> DIFFER, JUST BECAUSE YOU NOW HAVE A POSITION AT THE CFF CLUB YOU ARE

> LETTING IT GO TO LITTLE BUBBA'S HEAD, LOL

>

WORKING AT THE CFF CLUB MEANS LOTS OF STUFF GOES TO LITTLE BUBBA'S . . .

WELL, WHAT YOU SAID.

HUGS TO ALL . . .

ALLAN ++ BUBBA SWAMI

CEO, BUBBA SWAMI JESTER CO.

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  • 1 year later...

In a message dated 10/7/03 10:00:47 PM Pacific Daylight Time,

sandra.quackenbush@... writes:

<< Lillie was such a good friend. >>

...I am so sorry to hear about your friend. My sympathies to you and

Lillie's family.

Love & Friendship,

Ellen

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  • 3 weeks later...

Hi Joyce .

I live in Florida .. believe me ..

I dont think it would make a difference ..

in Florida during the summer time (from April to November) ..

we have rain just about every day ..

its raining now .. and my joints are killing me!

Oh ..

emails .. if you send emails to LUPIES-owner

just the owners will see the message..

if you want the whole group to see and to be able to reply to your message

then you need to use LUPIESegroups

smiles.. but at least in Florida .. we dont have snow!

Mrsgreen001@... wrote:

Yesterday, I was

in such pain, it was probably the rain. I feel better today, because

it is sunny, thinking of moving to florida, do you think it would help?

Love, Joyce

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  • 4 years later...

K. Spoke to my doctor. Got Levaquin. Feel real crummy. Chest is so tight. Wondering about Zena and Irene. , thank you so much for sharing the pictures of your new grand daughter. She looks like she is singing while you and Mike are holding her..... Made my day...... Leanne

Never miss a thing. Make Yahoo your homepage.

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Leanne

Glad you got levaquin. Please take care and not let this worsen on

you. Time for you to look out for yourself and all us to nag you.

>

> K. Spoke to my doctor. Got Levaquin. Feel real crummy. Chest is so

tight.

>

> Wondering about Zena and Irene.

>

> , thank you so much for sharing the pictures of your new

grand daughter. She looks like she is singing while you and Mike are

holding her..... Made my day......

>

> Leanne

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

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Leanne, I am glad you are feeling better and the Levaquin is working for you. Whenever my chest feels tight, I use my neubulizer and it really helps. I don't always use it on a regular basis but only if I need it. It helps to expectorate!

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

> >> > Hi everybody,> > > > Thanks for the well wishes. I'm back at work today. Probably not > for a full day but I was going stir crazy at home..... All that > laying around and thinking.... I'm pretty lucky because I've never > run a fever and the only major complaint I have is that my chest is > so tight. It's harder to breathe. I think I headed it off at the > pass with the Levaquin. My daughter who is 21 also got sick > and she's been running a fever over 102 for three days. She doesn't > live with me which is a good and bad thing. I want to take care of > her, but I wouldn't have been able to.....> > > > I love you all and I agree with Joyce, we have to live each day > to its fullest. Each day is a gift from God. Find the beauty. It's > there somewhere!! Today is a cold day in Chicago but the sun is > shining brightly. I'm thankful to be alive and I'm thankful for this > wonderful group of caring, compassionate, personality-plus, loving > people!! > > > > You are all in my thoughts and prayers. > > > > Leanne uip 1/03 Illinois> > > > > > ---------------------------------> > Never miss a thing. Make Yahoo your homepage.> >>

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Hi Leanne, I can't keep up with all the messages on my email. Leave me connected but do not send any more email. Thanks Grey

hello

Hi everybody,

Thanks for the well wishes. I'm back at work today. Probably not for a full day but I was going stir crazy at home..... All that laying around and thinking.... I'm pretty lucky because I've never run a fever and the only major complaint I have is that my chest is so tight. It's harder to breathe. I think I headed it off at the pass with the Levaquin. My daughter who is 21 also got sick and she's been running a fever over 102 for three days. She doesn't live with me which is a good and bad thing. I want to take care of her, but I wouldn't have been able to.....

I love you all and I agree with Joyce, we have to live each day to its fullest. Each day is a gift from God. Find the beauty. It's there somewhere!! Today is a cold day in Chicago but the sun is shining brightly. I'm thankful to be alive and I'm thankful for this wonderful group of caring, compassionate, personality-plus, loving people!!

You are all in my thoughts and prayers.

Leanne uip 1/03 Illinois

Never miss a thing. Make Yahoo your homepage.

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Grey

You may go to " My Groups " in the upper right corner of this page and

change your message delivery system to " No Emails " . Then you can read

on the web only. You can also select " Daily Digests " as an option.

>

> Hi Leanne, I can't keep up with all the messages on my email.

Leave me connected but do not send any more email. Thanks Grey

> hello

>

>

>

> Hi everybody,

>

> Thanks for the well wishes. I'm back at work today. Probably not

for a full day but I was going stir crazy at home..... All that

laying around and thinking.... I'm pretty lucky because I've never

run a fever and the only major complaint I have is that my chest is

so tight. It's harder to breathe. I think I headed it off at the

pass with the Levaquin. My daughter who is 21 also got sick

and she's been running a fever over 102 for three days. She doesn't

live with me which is a good and bad thing. I want to take care of

her, but I wouldn't have been able to.....

>

> I love you all and I agree with Joyce, we have to live each day

to its fullest. Each day is a gift from God. Find the beauty. It's

there somewhere!! Today is a cold day in Chicago but the sun is

shining brightly. I'm thankful to be alive and I'm thankful for this

wonderful group of caring, compassionate, personality-plus, loving

people!!

>

> You are all in my thoughts and prayers.

>

> Leanne uip 1/03 Illinois

>

>

> --------------------------------------------------------------------

----------

> Never miss a thing. Make Yahoo your homepage.

>

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Hi Grey, Drop a post to us once in a while and let us know how you are.

Love and Prayers, Peggy

Florida, ipf 6/04

Worry looks around.

Sorry looks back,

Faith looks up.

Hi Leanne, I can't keep up with all the messages on my email. Leave

me connected but do not send any more email. Thanks Grey

hello

Hi everybody,

Thanks for the well wishes. I'm back at work today. Probably not for

a full day but I was going stir crazy at home..... All that laying

around and thinking.... I'm pretty lucky because I've never run a

fever and the only major complaint I have is that my chest is so

tight. It's harder to breathe. I think I headed it off at the pass

with the Levaquin. My daughter who is 21 also got sick and

she's been running a fever over 102 for three days. She doesn't live

with me which is a good and bad thing. I want to take care of her,

but I wouldn't have been able to.....

I love you all and I agree with Joyce, we have to live each day to

its fullest. Each day is a gift from God. Find the beauty. It's

there somewhere!! Today is a cold day in Chicago but the sun is

shining brightly. I'm thankful to be alive and I'm thankful for this

wonderful group of caring, compassionate, personality-plus, loving

people!!

You are all in my thoughts and prayers.

Leanne uip 1/03 Illinois

Never miss a thing. Make Yahoo your homepage.

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