Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 In a message dated 2/13/99 1:19:42 PM Eastern Standard Time, Leugene@... writes: << I had an allergic reaction to Doxycycline last week after having taken it off and on for 8 years! I >> Cyd, WHAT HAPPENED???? I've been on and off Doxy for several years myself! ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 There is also another cream for diaper rash and skin irritation called Acid Mantle. It's been on the market for many years but is hard to find. Privately owned pharmacies will order it for you. For those of you who can't tolerate zinc oxide, this may work. This cream was recommended by Dr. Schroeder (dermatologist) in Fishkill, N.Y. For those members in the Mid-Hudson Valley, he is an excellent dermatologist. However, don't let him sell you skin care products since they are too harsh for rosacea patients unless you have tough skin. Re: New Member >Hi Jen, and welcome! >Desitin is a zinc oxide cream found it the baby section. It is usually used >for treating diaper rash, but for some rosacea patients it works well on >redness and little bumps. It works very well for me, and has made it so >that rosacea isn't the first thing I think about every morning or the last >thing every night. It is such a relief to almost have my life back! >Kerry > > >------------------------------------------------------------------------ >Fresh flowers are the perfect way to say " I love you " . >Shipped direct from the grower, Proflowers.com has >arrangements from $29.95 plus S & H. >Click here: http://offers./click/216/0 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 There is also another cream for diaper rash and skin irritation called Acid Mantle. It's been on the market for many years but is hard to find. Privately owned pharmacies will order it for you. For those of you who can't tolerate zinc oxide, this may work. This cream was recommended by Dr. Schroeder (dermatologist) in Fishkill, N.Y. For those members in the Mid-Hudson Valley, he is an excellent dermatologist. However, don't let him sell you skin care products since they are too harsh for rosacea patients unless you have tough skin. Re: New Member >Hi Jen, and welcome! >Desitin is a zinc oxide cream found it the baby section. It is usually used >for treating diaper rash, but for some rosacea patients it works well on >redness and little bumps. It works very well for me, and has made it so >that rosacea isn't the first thing I think about every morning or the last >thing every night. It is such a relief to almost have my life back! >Kerry > > >------------------------------------------------------------------------ >Fresh flowers are the perfect way to say " I love you " . >Shipped direct from the grower, Proflowers.com has >arrangements from $29.95 plus S & H. >Click here: http://offers./click/216/0 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Hi, I was told by my derm. that ocular rosacea can develop after a person has had (untreated) rosacea. He said that was the main reason to continue the Doxycycline. I had an allergic reaction to Doxycycline last week after having taken it off and on for 8 years! I go to the derm. again next Thursday to (hopefully) find another medicine to take for my ocular rosacea. Cyd Re: New Member >Hi Jen, > I also have full facial flushing.I know that the heat aggravates it >(along with my nerves!) but It also is bad in very cold weather. What type of >tests did you have done? Does your entire face swell or just parts of it? This >conditon is just so frustrating that the more info that you have the more you >might be able to piece together some common traits that we all have and >hopefully find something that will help. > Desitin is a diaper rash ointment that some in the group have tried >with good results. They say it helped with the redness and bumps associated >with rosacea. I didnt have such a good result, but you never know what might >work. Desitin has zinc oxide in it that has been known to eliminate redness >and rashes. > I also have a problem with my eyes and was told it is Blepharitis/dry >eyes. My eyes are swollen and red/itchy,sometimes burn. Im not sure of the >connection with Occular rosacea(Im waiting on a response from another group >member for that one). >I believe developing occular rosacea is a result of having rosacea. > Anyway welcome to the group and good luck.Bill > >------------------------------------------------------------------------ >Fresh flowers are the perfect way to say " I love you " . >Shipped direct from the grower, Proflowers.com has >arrangements from $29.95 plus S & H. >Click here: http://offers./click/216/0 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Hi, I was told by my derm. that ocular rosacea can develop after a person has had (untreated) rosacea. He said that was the main reason to continue the Doxycycline. I had an allergic reaction to Doxycycline last week after having taken it off and on for 8 years! I go to the derm. again next Thursday to (hopefully) find another medicine to take for my ocular rosacea. Cyd Re: New Member >Hi Jen, > I also have full facial flushing.I know that the heat aggravates it >(along with my nerves!) but It also is bad in very cold weather. What type of >tests did you have done? Does your entire face swell or just parts of it? This >conditon is just so frustrating that the more info that you have the more you >might be able to piece together some common traits that we all have and >hopefully find something that will help. > Desitin is a diaper rash ointment that some in the group have tried >with good results. They say it helped with the redness and bumps associated >with rosacea. I didnt have such a good result, but you never know what might >work. Desitin has zinc oxide in it that has been known to eliminate redness >and rashes. > I also have a problem with my eyes and was told it is Blepharitis/dry >eyes. My eyes are swollen and red/itchy,sometimes burn. Im not sure of the >connection with Occular rosacea(Im waiting on a response from another group >member for that one). >I believe developing occular rosacea is a result of having rosacea. > Anyway welcome to the group and good luck.Bill > >------------------------------------------------------------------------ >Fresh flowers are the perfect way to say " I love you " . >Shipped direct from the grower, Proflowers.com has >arrangements from $29.95 plus S & H. >Click here: http://offers./click/216/0 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 In a message dated 2/13/99 8:53:37 PM Eastern Standard Time, Leugene@... writes: << I went to the Dr. who said I was having an allergic reaction. He says a person's system can reach it's limit of a certain med. after a time. >> Cyd, Thank you so much for this info!! I am only going to take Doxycycline when I really NEED it! ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 In a message dated 2/13/99 8:53:37 PM Eastern Standard Time, Leugene@... writes: << I went to the Dr. who said I was having an allergic reaction. He says a person's system can reach it's limit of a certain med. after a time. >> Cyd, Thank you so much for this info!! I am only going to take Doxycycline when I really NEED it! ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 , I started out feeling slightly dizzy and nauseated within a couple of hours of taking the Doxycycline. I thought I had a stomach " bug " , so kept taking the med. On the third day of this, I took a dose as usual. Within an hour , I broke out in hives and started vomiting. I went to the Dr. who said I was having an allergic reaction. He says a person's system can reach it's limit of a certain med. after a time. I go to the dermatologist next Thursday to look for a new antibiotic. Cyd Re: New Member >In a message dated 2/13/99 1:19:42 PM Eastern Standard Time, >Leugene@... writes: > ><< I had an allergic reaction to Doxycycline last week after > having taken it off and on for 8 years! I >> > >Cyd, > WHAT HAPPENED???? I've been on and off Doxy for several years myself! > > >------------------------------------------------------------------------ >Fresh flowers are the perfect way to say " I love you " . >Shipped direct from the grower, Proflowers.com has >arrangements from $29.95 plus S & H. >Click here: http://offers./click/216/0 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 , I started out feeling slightly dizzy and nauseated within a couple of hours of taking the Doxycycline. I thought I had a stomach " bug " , so kept taking the med. On the third day of this, I took a dose as usual. Within an hour , I broke out in hives and started vomiting. I went to the Dr. who said I was having an allergic reaction. He says a person's system can reach it's limit of a certain med. after a time. I go to the dermatologist next Thursday to look for a new antibiotic. Cyd Re: New Member >In a message dated 2/13/99 1:19:42 PM Eastern Standard Time, >Leugene@... writes: > ><< I had an allergic reaction to Doxycycline last week after > having taken it off and on for 8 years! I >> > >Cyd, > WHAT HAPPENED???? I've been on and off Doxy for several years myself! > > >------------------------------------------------------------------------ >Fresh flowers are the perfect way to say " I love you " . >Shipped direct from the grower, Proflowers.com has >arrangements from $29.95 plus S & H. >Click here: http://offers./click/216/0 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Thanks everyone for the support - I'll keep on with the uphill battle!! Am now using Noritate and have been on Minocycline for about a year - it really helps with the bumpiness, if not with the flushing. I tried Metrogel - it was OK at first but then didn't seem to be enough. The antibiotics don't seem to help my eyes though. I think I'll give the Desitin a try - I must have missed that one when my kids were at the diaper stage! Jen ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Thanks everyone for the support - I'll keep on with the uphill battle!! Am now using Noritate and have been on Minocycline for about a year - it really helps with the bumpiness, if not with the flushing. I tried Metrogel - it was OK at first but then didn't seem to be enough. The antibiotics don't seem to help my eyes though. I think I'll give the Desitin a try - I must have missed that one when my kids were at the diaper stage! Jen ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 Original Article: /list/rosacea-support/?start=1752 _____________________________________________________________________ Dear Priscilla, Almost 50 is not ugh! I should know--I am 50 but still feel like I'm 30. Hot flashes agravate my rosacea, too. I have been trying to find ways to reduce them. So far, drinking LOTS of water, keeping a small battery-powered fan on top of my computer (where I spend 8-10 hrs/day), deep breathing when I feel my face heating up, and completely avoiding the sun, alcohol, and caffeine have made a big difference in their frequency. I never thought I could give up these things but when you accept having to completely alter your lifestyle, it really is possible. I'm actually feeling healthier and more in control of things than ever. My Dad had really severe rosacea and I have always dreaded getting it. He never knew about food triggers, but at last count I have identified 27. I am very fair-skinned and blush easily. I try to avoid situations that make me blush, which means I have become something of a recluse. I use metrogel alone, and so far have found it speeds up the development and disappearance of the bumps. Doesn't help the redness, though. I can't believe how long it takes to heal. I have oily skin so it doesn't dry it out much. I don't want to take antibiotics either if I don't have to. I tried black cohosh for the hot flashes, but it caused me to have a 2 month long non-stop period. No way! Guess these herbs and meds affect everyone differently. I am convinced that the cumulative effect of blushing somehow sets you up for rosacea. One good thing about it (if you can call anything about it good) is that in avoiding your food triggers, you usually have to give up the foods you're most likely to overindulge in. I have lost 22 pounds since last September when this thing began to kick in. There are so many good ideas being presented in this forum. Some of them are bound to work for nearly everyone. Good luck! Ann _______________________________________________________________________________ > Hello everyone. I have been looking at the posts for several days now, very interesting and helpful. > > I was diagnosed with rosacea about 10 years ago and have been on and off antibiotics and I feel they to more harm than good. I also was using metrogell, but that was irritating my skin. The dermotologist switched me to metrocreme but that did not make it any better. I have not been back to the derm for several months because I don't want to go back on antiobiotics or use the creme or gel and those seem to be the only treatments that the derms give. > It was suggested to me to try taking evening primrose oil. Two 500mg twice a day. I went to my local health food store and they were very helpful. They agreed that the evening primrose oil should help, but that I probably will not see results for 5 to 6 months. I figure what have I got to lose it has only been 10 years. > > I was also wondering about something I have not seen addressed, I am now almost 50 years old (ugh!) and have been experiencing hot flashes and so I feel that this has aggrevated my cea. Any one else experiencing this? > > Priscilla > ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 Hi Priscilla! YES there is a connection btwn. heat and red-hot rosacea cheeks! If I get too close to a space heater or fireplace or if I skip my hormones and have a hot flash my cheeks look like I'm ready to be head clown at the rodeo! dawn Original Article: /list/rosacea-support/?start=1752 > Hello everyone. I have been looking at the posts for several days now, very interesting and helpful. > > I was diagnosed with rosacea about 10 years ago and have been on and off antibiotics and I feel they to more harm than good. I also was using metrogell, but that was irritating my skin. The dermotologist switched me to metrocreme but that did not make it any better. I have not been back to the derm for several months because I don't want to go back on antiobiotics or use the creme or gel and those seem to be the only treatments that the derms give. > It was suggested to me to try taking evening primrose oil. Two 500mg twice a day. I went to my local health food store and they were very helpful. They agreed that the evening primrose oil should help, but that I probably will not see results for 5 to 6 months. I figure what have I got to lose it has only been 10 years. > > I was also wondering about something I have not seen addressed, I am now almost 50 years old (ugh!) and have been experiencing hot flashes and so I feel that this has aggrevated my cea. Any one else experiencing this? > > Priscilla > ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 1999 Report Share Posted February 19, 1999 Ann - That is Great that you lost 22 lbs, so some good things do come out of this disease. Priscilla ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 Subnewton, I had allergy testing done for both normal allergies - dust, molds, that kind of stuff - and for chemicals. With the chemical testing, I did get back a few positives and it helped me. There was a website for a while on the net that listed hundred of common chemicals, their other names and the kinds of products you would expect them to be in. Boy, that was a wonderful website. It closed though. Anyone have another one? It was worth it's weight in gold. Anyway, I don't have much faith in testing for food allergies - too many false positives and it's really easier to track them yourself. For chemicals, it was helpful cause chemicals go under several different names - they are harder to track. Once I had one name, I could find out the others and avoid my allergy triggers easier. I had the same problem you are having with getting off minocin. I kept flaring. I finally took biaxin and, for the life of me - while I don't understand why, it broke that pattern. I was on 500 mg. 2x a day for about 3 1/2 weeks. I don't know if you are using an antihistamine yet, but they can help. Esther ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 1999 Report Share Posted March 8, 1999 Hi Marji and Suzanne, I have the blepharitis also, but haven't had to treat it since I found my triggers for it. The worst for me is light (sunlight and fluorescent lights-these lights are everywhere, thus my story about always wearing a big straw hat) and chemical triggers (mine is the stuff that's on new clothes at the store). I am fortunate enough currently to be staying home with my children most of the time, so the flare-ups when I go shopping or sit under fluorescent lights etc... are very obvious. If you work with (or under) your triggers regularly, it may be very hard to identify them. Have you had any success putting your finger on triggers? I wish you both luck in treating this-it's so uncomfortable! BTW my derm said that fluor. lights did NOT affect rosacea, but he was WRONG, WRONG, WRONG-nobody has all the answers...so we're all working together. Looking forward to your contributions-welcome! Kerry ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 1999 Report Share Posted March 8, 1999 Hi Marji and Suzanne, I have the blepharitis also, but haven't had to treat it since I found my triggers for it. The worst for me is light (sunlight and fluorescent lights-these lights are everywhere, thus my story about always wearing a big straw hat) and chemical triggers (mine is the stuff that's on new clothes at the store). I am fortunate enough currently to be staying home with my children most of the time, so the flare-ups when I go shopping or sit under fluorescent lights etc... are very obvious. If you work with (or under) your triggers regularly, it may be very hard to identify them. Have you had any success putting your finger on triggers? I wish you both luck in treating this-it's so uncomfortable! BTW my derm said that fluor. lights did NOT affect rosacea, but he was WRONG, WRONG, WRONG-nobody has all the answers...so we're all working together. Looking forward to your contributions-welcome! Kerry ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 1999 Report Share Posted March 10, 1999 <000e01be69ea$f96ebb40$da01fcd-@townley> wrote: Original Article: /list/rosacea-support/?start=2253 > Hi Marji and Suzanne, > I have the blepharitis also, but haven't had to treat it since I found my > triggers for it. The worst for me is light (sunlight and fluorescent > lights. If you work with (or under) your triggers regularly, it may be very hard to identify them. Have you had any success putting your finger on triggers? > Kerry > Hi Kerry and everyone, My eyes are getting worse and worse. Do you think a computer screen could have an impact similar to florescent lights? I haven't been able to identify any other triggers except for heat and sun. Dawn ad ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 << I have probably tried everything under the sun to try and cure this, from laser surgery on my nose to the natural approaches to the derm. approaches, >> Have you, or anyone, tried treating cea with the treatment for the H. Pylori - the same meds as for treating stomach ulcers? ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2000 Report Share Posted January 23, 2000 New member > Hello to all VBGer's and RNYer's out there. My name is Beth and I'm 7 years post-op from the VBG as well as the RNY. I initially had the VBG but it didn't work out too well, and when it came time to take out my gallbladder, due to stones, the surgeon decided to do the revision to the RNY (with my permission of course!) > > We had support groups with the doctor and his office staff of psychologists and dieticians each month. I'm glad that they now have on-line OSSG support groups that you can find out more about the procedure that you have. > > I've had my up's and down's over the years, but want to join this list in hopes of enlightening anybody else of my experiences over the 7 years. You may personally contact me at beth12@... or via this list if you have any personal questions that I can answer. > > Good luck to everyone in their procedures! > > Beth > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 Dear Beth-- I also started out with vbg and then had to be converted to rny due to medical and post-op complications which almost cost me my life several times. For the most part I have to say that I'm very happy with the rny--the failed vbg prohibited me from eating solids at all--but I continue to lose weight even though I shouldn't anymore. My questions to you are: was your vbg unsuccessful due to lack of weight loss or excessive loss such as in my case? And when did you finally reach your set point, the place where you stopped losing altogether? I'm starting to get a bit concerned again, as are my docs, because I eat and eat to the point of nausea, and barely can stabalize, let alone re-gain any of the excess. I'm considered by all the pros to be at least 13 pounds underweight (it varies from doc to doc). I'm also told that I MUST eat more, though I simply cannot get in more than about 1200 cals/day, no matter how hard I try. The past week or so I've been up and down within a range of about 3-5 pounds and today am back down again. Urgh....it seems like a real losing battle (pardon the pun!) Thanks for joining the list. We look forward to hearing from you. --El Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2000 Report Share Posted February 15, 2000 One thing that helps me with body pain is Ibuprofen. I take 2 tabs every three to four hours. Some days it doesn't cut the pain but sometimes it takes the edge off the pain so that I can tolerate it. Stretching helps to loosen up. Exercise is great to stay limber and be able to move more comfortably through the day. & wrote: > > > I would like to welcome Kathy to our list. This is her introduction. > <Hello, > My name is Kathy , Iam a 30 year old female who > just last month was diagnosed with Fibromyalgia. I > live in Fitchburg,Ma. I am also a Mother of 3 > beautiful children.(justina 14,elmer 13,and danielle > 4).I am hopung to get some tips on dealing with the > everyday aches and pain that goes with this disorder.> > > -- > > Mom to Bear, Wife to > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2000 Report Share Posted February 22, 2000 greystck@... writes: << I was actually stunned to find there were in fact others out there like me. I wouldn't wish this on anyone >> I think if you start researching, you'll find a Lot of us out there. I've been 'lurking' for a while but Understand your post Completely. The Internet is a Great Library and easier then walking those steps. <<The constant, searing, burning sensations... sometimes sleepless nights... I got the 'Flu' Ten years ago and I'm still Waiting to 'Get Over It'. I feel the pain 24/7 also, which contributes to More pain because I can't get Restful Sleep which means that the Cycle goes on and on. I have 18 of 18 Tender points and I describe the Worst of it at the Bottom of my Spine: It's like a softball filled with Burning Coal, the Fire Never goes out, sometimes dims, But usually gets hotter and causes so much pain I just want to Cry. The pain in my arms gets so bad that lifting a Glass is impossible and Walking around the house is the best I can usually muster. If I knew what I know now, :>), I would keep a Journal of my Illness. I would list the things my brain wants to do (used to do) and list what I actually do. You may come to realize at some Point that you Can't work regardless of the Bills and all, actually that you're Unable to work. I was 40 when I first got sick and within a Months knew I couldn't. I had to take a Cut in Pay to a fourth of my Income on Social Security. They don't care what the Name of a Disease is, Only how if affects your Inability to Work 40 hours, 5 Days a Week. The list DISINISSUES covers that if you think you'll have to go in that direction. It sounds like you're seeing a Rheumatologist if he diagnosed the tender points. I was surprised that after Months of seeing 'All' those 'other' Docs he could find 18 of 18 tender points and Let me Know it wasn't ALL in my Head. I was depressed when he said 'I would have to live with it' and that at 'Some' point I wouldn't get Worst, it would Level Off. I used to believe him. I had to 'Move' home to my Parents house because I couldn't handle everything in my Apartment and for a few years I got rest when I needed and Didn't hurt as much but 'Things Happened' and now I've gone back too " To Much Activity " and consequently am suffering severely for it. I know discribing FM is difficult so I just tell People it's Like have Arthritis only in your Muscles but for me it's so much more. Good luck at the Pain Clinic, I don't know what they do but Please let us know, My Doctor 'Recommended' I go because of the Meds I take (Tylenol w/Codiene #4 and Fiornal) just so I could function at the Basic level but I was afraid they would take away my 'Crutches' that allow me to walk at all so I haven't gone so far. Tricia 10 Years CFIDS/FM CMV/Stealth Viruses Buena Park, Ca. A Clean Home is the Sign of a Broken Computer (or a Cure) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2000 Report Share Posted February 22, 2000 You have come to the right place, Keryn. We are here to help you. I am 23 yo and there are days that I feel 100. I understand. This is a hard illness and there are no quick fixes. It is a lot of trial and error with meds and therapies. Massage therapy is said to help as is chiropractic work. I have not tried them but hope to have massage therapy soon. We are glad to have you here & wrote: > > > Hi everyone, > > My name is Keryn and I am 27 years old as of Dec 3. I have had > relatively > chronic pain for the past 5 years w/o the need for meds really. I did > not > want to go down that track at all. However, the past 5-6 months or so > the > pain had finally gotten to the breaking point where I had to go on > narcotics > (Lortab and Soma to be exact). I have to take quite a deal to get any > relief > from the pain at all. It was only a few months ago that any doctor even > told > me about fibromyalgia. I have pretty much got around 17 tender points > of the > ones charted. I just got my MRI back and surprise, it was negative. My > next > step is to see a chronic pain specialist. I have no clue what, if, or > how > they can help me. I just know that I am getting very frustrated. I hurt > all > the time, am exhausted, depressed (or would be more so without being on > my > anti-depression med called Celexa), and feel alone. At 27 I literally > and > physically feel as though I am 100 most days. My main pain areas when > not > touched are my neck, upper shoulders, upper back, and at the base of > the > skull. Pretty much everything else hurts when touched, and my hips, > knees > and shins are starting to hurt more and more daily without being > touched. I > have to miss a great deal of work going from doctor to doctor. > Specialist to > specialist, and with each turn I keep hitting dead ends. I have found > no > relief to my pain at all, and just a lot of confusion and frustration. > So I > thought I would turn to others who seem to be in the same boat and see > what > has helped or not helped them ... I was actually stunned to find > there > were in fact others out there like me. I wouldn't wish this on anyone, > but > it does feel good to know I can talk to people who KNOW what I feel > like. > The constant, searing, burning sensations... sometimes sleepless > nights... > bosses who do not understand and who are getting more agitated by the > day. I > do not know how much longer I can work, but then what can I do? I > currently > live with my Mum (who is like my best friend).. so that helps in some > capacity, but I still have bills, and I need insurance.. especially > with all > of this going on right now... > > When not in pain I love to read, watch movies, spend quiet time with > friends, laugh (although that seems to be happening less and less > lately), > play with my 2 cats, and sleep when possible. I try to keep a positive > outlook.. I mean at least I am alive and breathing ... it just gets > so > hard... anyhow.. I know this is probably a depressing intro letter.. > but > let's just say today has been a bad day physically. I have had the flu > the > past few days, so on top of the normal excruciating pain I had to deal > with > the pain of the flu. I just hope I haven't bummed anyone out. I look > forward to meeting new people and learning new things. > > Thanks! > Keryn > > -- > :0) > An argument with your spouse is a loving moment lost forever. > Mom to Bear, Wife to > > ------------------------------------------------------------------------ > Get your money connected @ OnMoney.com - the first Web site that lets you > see, consolidate, and manage all of your finances all in one place. > http://click./1/1636/1/_/_/_/951222029/ > ------------------------------------------------------------------------ > > VIP > Add or view links about fibro/CFS. > http://www.onelist.com/links/ > > TO unsubscribe. > Go to: http://www.onelist.com/ Log in: > Go to this list: Click on your name: Select your choice. > > LIST OWNER:oa2@... -- :0) An argument with your spouse is a loving moment lost forever. Mom to Bear, Wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 You came to the right place. I know that you will love it here. Where do you live? My name is and I am 22yo. I live in Ontario, Canada with my husband of almost two years and our dog. I have CFS and Fibro. Along with that I also have a fainting disorder called Orthostatic Intolerance. We are glad you are here. Update us when you feel like it! tlong@... wrote: > From: tlong@... > > Hi; > My name is LaQuinta and I have fibromyalgia, CFS, and suffer from > chronic depression which I have lived with most of my life. I also > have other illnesses that I live with. I have had two serious > accidents one which left me with some brain trauma, geez isn't that a > bummer since my brain stays in a fog most of the time. There are > times when I am unable to be on-line but will answer when I can. I > battle each day as I know all of you do to just keep on board. I > hope to be a good addition to the group and be a help too. Right now > I am struggling with several factors but don't want to overwhelm the > group. I am here trying to find understanding and hopefully answers I > can't seem to find elsewhere. I thank you for listening and God's > blessings on all of you. > Warmly LaQuinta > PS I am not sure how all this works so I may make some mistakes but I > know you will help me. > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > http://click./1/936/3/_/442796/_/953870132/ > ------------------------------------------------------------------------ > > VIP > Add or view links about fibro/CFS. > http://www.onelist.com/links/ > > TO unsubscribe. > Go to: http://www.onelist.com/ Log in: > Go to this list: Click on your name: Select your choice. > > LIST OWNER:oa2@... -- :0) An argument with your spouse is a loving moment lost forever. Mom to Bear, Wife to Quote Link to comment Share on other sites More sharing options...
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