Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 >My husband and I both suffer with chronic pain. I was diagnosed with RSD in 2001 and he has been diagnosed with Fibromyalgia, along with being an amputee. We have been through many hurdles together over the past 9 years, and I guess the biggest one is like Jade has asked, about making friends, outside of online friends. Hi Sue Welcome to the group. I'm sorry to read that you and your husband have chronic pain. I have always preferred books, and watching movies (Go Netfix!) to being around people. My husband used to be involved in several sports, and was an EMT and a nurse. He was a very active person. Now he has chronic pain too, (arthritis, and heart problems). He has always been a reader too. Perhaps, it's because I worked as a nurse for so many years. Once I came home I was very tired of people. I do miss the years when it was just my two kids and I. We had so much fun together. This is my second marriage. I waited until my kids were adults before I remarried. All I can suggest is to find something that you each love, and try to find a group that does too. Do you enjoy quilting, scrap booking, or some other type of crafts? I know there are classes in many of these that meet for short time periods. You could always invite a friend or two over to watch sports, or a movie. Order a pizza, or bake a frozen one. Heck, even popcorn is enough. This way you can limit the time of the visit, so you two won't be so exhausted. When the program is over, lead them into leaving by saying how nice it was to have them over etc. We hope you will come again soon. Show an interest in other people's lives. If you call someone on the phone, spend time talking about them. Don't let yourself focus the conversation about your pain. Talk about anything but your pain. This might help you forget about it for awhile. Once again, welcome to the group. Kaylene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 Hi Sue, Welcome to the group! I'm sorry you have gone through so much. Yes it is not fun when so-called friends are nowhere to be found when anyone is limited in any way. It means they weren't true friends to begin with. I also have RSD, I have it head to toe. I know I'm very rare, so when I see a new doctor who either has never heard of it happening, or has heard of it but never seen it, or even has seen it several years prior, they want to poke and prod me to where I feel like I've been hit by a semi truck when I leave. Anyway, welcome Love, Becky in NM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 Greetings Sue , I completely understand how both of you feel my wife has diabetes and sleep apnea and I have fms besides depression and etc but we have both accepted or fate as it is ,far as friends go and family yes it is hard for them to understand if its something they cant see then they don't understand. where do you live state wise we are in Ks if you near let me know its always a good thing to know people on line then go from there, we've met some but they have moved out of state probably to Arizona lol >Sue wrote: My husband and I both suffer with chronic pain. I was diagnosed with RSD in 2001 and he has been diagnosed with Fibromyalgia, along with being an amputee. We have been through many hurdles together over the past 9 years, and I guess the biggest one is like Jade has asked, about making friends, outside of online friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 Welcome to the group. I also have a disabled husband who has severe anxiety along with other things and would rather stay home on his computer than go out. Having a partner who really understands what we go through when we are in pain is a bonus. Again welcome to the group. Blessed be, Ms.Katurah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 , Thanks for the warm welcome. We live in IA, and as most people say, why would you live somewhere where it is so cold in the winter, etc., but we love it here and have tried to adapt to the cold. And yes, it is very hard for people whether they are family, friends or strangers, to understand the pain we go through, because there really is nothing for them to see on the outside. No matter how much you try to explain it they will never understand until they have something like it themselves. Sue wrote: > Greetings Sue , I completely understand how both of you feel. Quote Link to comment Share on other sites More sharing options...
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