Need Advice. What should I say to my doctor to get the results I need.

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> I have been on pretty much the same level of pain medication (the bare minimum

to cover my pain) for the past 5 years. Every now and again I overdo things and

have a flare up, and that's reasonable considering how low I'm expected to stay

on the pain meds.

However, recently I posted about my physical medicine doctor who gave me a botox

shot. He really messed things up and then refused to return my calls. I

contacted my pain management doctor for help, as in more meds or some advice how

to manage the pain, and instead got some muscle relaxants that caused me severe

dry mouth and did nothing for my pain.

Two days ago, I went to the neurosurgeon who now wants to do brain surgery on me

because of my increased pain which is caused by this botox disaster. I don't

want the brain surgery. But, I do want some way to explain my out of control

botox-induced pain.

The neurosurgeon pressed on the area where the botox had taken effect and

paralyzed my trapezius muscle and I nearly passed out from pain. He said, " See

your pain doctor for meds. "

Please if anyone can tell me what I can say to my pain doctor to get him to

understand. I'm not overly emotional and usually keep a straight face, so I

appear not to be in pain. Even when the neurosurgeon pressed into my trapezius

and it felt to me like I was being burned by a hot curling iron, all I did was

squint my eyes hard as I felt my eyes roll up in my head.

Hopefully, this high botox-induced pain will be over in a few months, but until

then, I really need my pain doctor to listen to me. I need some pain medication

until and only until my botox'd muscle comes back to life and then, again, I

hope that the new botox-induced pain will be gone then.

I do not feel that it is not safe for me to walk around in this heavy pain, I

literally lose consciousness at times kind of like a black-out from drinking too

much. The pain just blacks me out, and I lose track of what I am doing.

Overall, I guess I am ok, and my brain is functioning somehow, I don't trip or

fall, or drive my car into things, I just have no memory of doing them. Does

that make any sense? Like I'll be driving and I get where I'm going, but I

don't remember how I got there. Personally, I don't think that can't be good.

But how to explain all this to my pain management doctor who doesn't seem to get

it? Are there any words that I need to speak? In his opinion, if I can

function in life, like grocery shop and work and drive, etc then I am taking

more than enough pain medication. Because in his opinion, if I was in pain, I

would not be able to do any of these things.

Honestly, I don't feel OK doing any of those things, but I can't afford to go on

disability, I am the sole-supporter of my family and I do not qualify for any

type of disability or other social service. I need my insurance, which is one

of the main reasons why I work.

Any advice would be appreciated.

Thank you in advance.

Jade