Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 --- wrote: >I am 44 years old, I was born with Phenylketonuria <PKU>, I was recently diagnosed and put on meds for Fibromyalgia as I go thru day to day with chronic pain. I have a difficult time with mobility on some days, well most days. As stress, weather etc. effects me bad. >Is there anyway I can get some help or some sort on what this Fibro is like? Anyone have it? Hi Welcome to the group. I find that taking a hot bath, or hot shower when I first wake up helps start the day. It seems backwards, but gentle exercise, like gentle stretching in the morning after your hot bath. I have another neuropathy pain problem in addition to Fibromyalgia, and I enjoy swimming in the local hot springs when I can afford it. I cannot stand to be cold. It is essential to try to get 8 hours of good sleep each night. Poor sleep is primary cause of fibromyalgia pain. If you have difficulty sleeping, have a sleep study done. Many people have sleep apnea, or other problems that they didn't even realize that had. I do not recommend that you take Ambien, nor any of the hypnotics to help you sleep. They don't give you a true sleep and can have many dangerous side affects. Trazadone is a mild and inexpensive anti-depressant that can help with sleep. It doesn't do much for depression, but will help you sleep. I also take ibuprofen, other NSAIDS can be helpful, but as you know not at the same time. <smile> I take it on a regular schedule, but I have to be careful that it doesn't upset my stomach. I take Lyrica, for neuropathy pain problem, which some people take for Fibromyalgia. It is expensive, and can affect your concentration, and other problems. There are several other anti-seizure medications than can help. I used to take Neurontin, but it gave me vertigo, poor concentration, and hot flashes. Hopefully, these will help you. There should be a few members who can recommend useful books you can read about Fibromyalgia too. Kaylene Quote Link to comment Share on other sites More sharing options...
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