Guest guest Posted July 17, 2001 Report Share Posted July 17, 2001 For many of you that look at this website alot you might know us. My name is Ja'nice Rendleman and my daughter is Paige a 17 month old. She was just recently in the hospital with a 2 week long static epileptic seizure and was placed in a pentobarb coma for those two weeks. During the last week of our stay at Children's Mercy Hospital in Kansas City the doctors told us Paige would die. We took her home with hospice care. It's a miracle but Paige is still with us and doing so much better. We are no longer suctioning her and she is becoming more and more aware of her surroundings each passing day. As a mito mom I'm here to tell you don't give up and try everything. I have noticed changes in Paige since being put on the mito cocktail. Although it is very expensive as far as my out of pocket for her med's but it is worth every penny of it. Paige is not back to where she was but we are getting closer everyday. I want to thank you all for your prayers and uplifting emails we are here if anyone would like detail info on Paige's seizure med's and other. She is having little to no seizures since coming home and is very stable today! I don't check the website everyday but if you'd like to email me direct (diamondgeorg@...). Ja'nice Rendleman mom to Paige a 16 month old with seizure disorder, failure to thrive, sever hypotonia, g-tube, fundo, and developemental delays. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2001 Report Share Posted July 18, 2001 I am so glad that she is on the road to recovery and that she beat the odds. We will continue to pray for your special angel! Alison an amazing mito child story For many of you that look at this website alot you might know us. My name is Ja'nice Rendleman and my daughter is Paige a 17 month old. She was just recently in the hospital with a 2 week long static epileptic seizure and was placed in a pentobarb coma for those two weeks. During the last week of our stay at Children's Mercy Hospital in Kansas City the doctors told us Paige would die. We took her home with hospice care. It's a miracle but Paige is still with us and doing so much better. We are no longer suctioning her and she is becoming more and more aware of her surroundings each passing day.As a mito mom I'm here to tell you don't give up and try everything. I have noticed changes in Paige since being put on the mito cocktail. Although it is very expensive as far as my out of pocket for her med's but it is worth every penny of it. Paige is not back to where she was but we are getting closer everyday.I want to thank you all for your prayers and uplifting emails we are here if anyone would like detail info on Paige's seizure med's and other. She is having little to no seizures since coming home and is very stable today!I don't check the website everyday but if you'd like to email me direct (diamondgeorg@...).Ja'nice Rendleman mom to Paige a 16 month old with seizure disorder, failure to thrive, sever hypotonia, g-tube, fundo, and developemental delays.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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