To Do or not to Do, That is the Question

[Guest guest]

Ok....same study Jane is talking to Emory about.

I made contact with several yesterday and tentatively have

appointment at University of Chicago on April 9 for all their testing

in their ILD center and then consideration. I appear to have only one

real issue that could make me ineligible and that is my creatinine

level (kidney function), which is borderline.

Also, at the least I'd get a very thorough check out by an excellent

facility as they accept nothing as fact coming in. They diagnose the

disease from start including reading the biopsy slides themselves.

The things I like about the Sildenafil study is only 12 weeks that

you might be on a Placebo, then everyone who wants gets the real

thing. Plus its already an approved medication for PH as Revatio in

the same dosage so side effects well known. And of course one side

effect made them billions under the name Viagra.

This could potentially involve 8 trips to Chicago or so over a six

month period. Closest location to me is Tulane, but I just feel

better about the UofC ILD clinic. Anyone have experience with Tulane?

Who is on Revatio for PH and what experiences have you had?

Who else is considering this trial at other places?

Anxious to hear any comments.

[Guest guest]

Bruce,

Glad you have an appointment for the study. The study at Emory lasts 6

months.

Jane UIP/IPF 12/1998 Dalton, Georgia

>

> Ok....same study Jane is talking to Emory about.

>

> I made contact with several yesterday and tentatively have

> appointment at University of Chicago on April 9 for all their testing

> in their ILD center and then consideration. I appear to have only one

> real issue that could make me ineligible and that is my creatinine

> level (kidney function), which is borderline.

>

> Also, at the least I'd get a very thorough check out by an excellent

> facility as they accept nothing as fact coming in. They diagnose the

> disease from start including reading the biopsy slides themselves.

>

> The things I like about the Sildenafil study is only 12 weeks that

> you might be on a Placebo, then everyone who wants gets the real

> thing. Plus its already an approved medication for PH as Revatio in

> the same dosage so side effects well known. And of course one side

> effect made them billions under the name Viagra.

>

> This could potentially involve 8 trips to Chicago or so over a six

> month period. Closest location to me is Tulane, but I just feel

> better about the UofC ILD clinic. Anyone have experience with Tulane?

>

> Who is on Revatio for PH and what experiences have you had?

>

> Who else is considering this trial at other places?

>

> Anxious to hear any comments.

>

[Guest guest]

Jane

Yes, its the exact same study.

Its in about 8 facilities including those Tulane, Birmingham,

National Jewish.

> >

> > Ok....same study Jane is talking to Emory about.

> >

> > I made contact with several yesterday and tentatively have

> > appointment at University of Chicago on April 9 for all their

testing

> > in their ILD center and then consideration. I appear to have only

one

> > real issue that could make me ineligible and that is my creatinine

> > level (kidney function), which is borderline.

> >

> > Also, at the least I'd get a very thorough check out by an

excellent

> > facility as they accept nothing as fact coming in. They diagnose

the

> > disease from start including reading the biopsy slides themselves.

> >

> > The things I like about the Sildenafil study is only 12 weeks that

> > you might be on a Placebo, then everyone who wants gets the real

> > thing. Plus its already an approved medication for PH as Revatio

in

> > the same dosage so side effects well known. And of course one side

> > effect made them billions under the name Viagra.

> >

> > This could potentially involve 8 trips to Chicago or so over a six

> > month period. Closest location to me is Tulane, but I just feel

> > better about the UofC ILD clinic. Anyone have experience with

Tulane?

> >

> > Who is on Revatio for PH and what experiences have you had?

> >

> > Who else is considering this trial at other places?

> >

> > Anxious to hear any comments.

> >

>