Guest guest Posted July 16, 2001 Report Share Posted July 16, 2001 For those of you who are interested...Dr Korson and I spoke when he was at the New England UMDF meeting in May. His plans are to open a Mito Clinic at New England Medical Center in September which will treat both adults and children. They plan to do research, diagnostic and treatment there and WILL do " live " biopsies according to our conversation. Alice > We saw Dr. Mark Korson in Boston. He used to be at Children's but now is at > New England Medical Center in Boston. He was very good. We had already > been to Cleveland to see Dr. Cohen. If you want anymore info, feel free to > email me anytime. > Shari > > Re: need some support.... > > Have your doctors indicated what disease(s) they suspect in Zach? Has he > had a fresh muscle biopsy? Correct me if I'm wrong, but we were told that > this was necessary to definitely rule out mito. All my son's tests came > back normal until we had a fresh muscle biopsy done and this showed defects > in mitochondrial oxidative phosphorylation. No ideas about the car trip. > Good luck! > > Lori > need some support.... > > > > Zachs fatty acid test came back normal.. Now they want to send us to > > Boston for more testing. He wants us to see the metabolic specialists > > there. For us its a 3 hour trip and zach can't tolerate more then an > > hour and a half in the car. We're from upstate ny. After an hour he > > gets tired. I plan on sitting some in the back w/ him. His sister > > wont be there so that will be ok. I just get carsick if i sit the > > whole time. Any suggestions for trips like these? > > > > > > > > Please contact mito-owner@y... with any problems or questions. > > > > Quote Link to comment Share on other sites More sharing options...
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