Re: Sunflower oil - cause of seizures???????

[Guest guest]

The only thing I can think to suggest is not to be tempted to make too many

changes too quickly.... makes it really hard to pinpoint what's causing what.

I feel for you..... I know it's really frustrating!

Patti

Sunflower oil - cause of seizures???????

Hello

Well I spoke too soon. is having a bad time again and I am

wondering whether it is the sunflower oil.

I would appreciate any information about this possibility. It is now a week

since I started her on it. Since then she has been so good cognitively and

socially, but she is having different seizures - and they are getting

worse. Last night she had another long absence at about 7pm.

Today she had another seizure at 5.45am - she woke up for the toilet and

felt funny so got back in bed, there she had a generalised seizure. I heard

her making the strange noises and she was in bed, but when she got up later

she told me that she had had a seizure because she had felt funny and gone

back to bed.

This morning she has two more unusual seizures one at 11.30 and one at

12. They were both the same. She called out 'Mum', (so she must have

known she was going into a sz) then held her head and her head went down in

the chair (she was sitting on the couch).

Her ketones and blood sugar are her normal levels so I wonder if it could

be either withdrawal from the supermarket canola, or a reaction to the

organic sunflower causing this? What do I do?????????

Many thanks,

Jill

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[Guest guest]

Hi Jill,

My daughter Mallorie had been on Flax oil for about a month and was

doing great on it. She quit having clusters of myoclonics (she began

only having single shakes). We also saw cognitive improvements. Then

we introduced a balanced oil that had sunflower and flax. She had one

dose of the oil in the am then one late afternoon. By around 5 that

evening she had her first tonic seizure ever. This continued to the

next day (I gave her another small dose of the oil that am). So I

stopped the sunflower/flax balanced oil and she quit having the tonic

seizures. I tried the oil again and the same thing happened. Then a

couple of weeks after that she started having tonics again while only

on the flax oil. So we stopped that. A week later I tried a small

amount of flax and she had a big tonic seizure. Then a few weeks

later she began having tonic clonics.

At the time it seemed like the oils were causing the big seizures but

since they started again later after the oils were stopped we are not

so sure. The reason I thought the oils were causing them is because

they started the same day we introduced sunflower oil.

If introducing the sunflower oil is the only change you have made

lately it could very well be the reason. It is frustrating to see

some very good things happen when using some of the healthy oils and

then to see some bad seizures. I hope that you can get things settled

down with .

(Mallorie's mom 3 1/2 due to start the diet on Thursday)