finally going to start!!!!!

[Guest guest]

We are starting the diet next Thursday!!!!!! The dietician called me this

morning to make sure that date was OK. I had been waiting to hear from the

doctor to see if we could start Mallorie on the diet instead of trying Felbatol.

I still haven't heard from the doctor's office but the dietician said they

called her to get it set up! She said she has been administering the diet for 8

yrs and that their success rate is the same as Hopkins (1/3 seizure free,

1/3 improved, 1/3 not successful). Does this sound like most keto centers?

I am so excited and am so glad that this group is here you have all helped so

much to answer my questions and give ideas while we have waited to see if the

diet was an option for Mallorie.

For those of you who use stevia as your sweetener could you tell me which brand?

I use NOW packets but they have a little carb. I found the liquid NOW brand but

it says 18% alcohol. Is that a problem since it takes so little to sweeten with?

I know I will have more questions in the days to come. Also any pointers that

would help to know before we start?

Thanks,

(Mallorie's mom)

[Guest guest]

Good one ,

Will be keeping everything crossed for you and Mallorie. No, your centre's

success rate is not the same as ours, which is only an 8% success rate (over

95% reduction in seizures), so you're already one step ahead of us!

Re the stevia, we had 2 false starts, liquid one contained grapefruit

extract (no no with some AEDs), and the1st powder contained maltodextrin

(saw 2 seizures the one and only day we used it).

Hopefully 3rd time lucky, supposedly pure stevia extract powder, don't think

it's causing any problems.

Hill in NZ

finally going to start!!!!!

> We are starting the diet next Thursday!!!!!! The dietician called me this

morning to make sure that date was OK. I had been waiting to hear from the

doctor to see if we could start Mallorie on the diet instead of trying

Felbatol. I still haven't heard from the doctor's office but the dietician

said they called her to get it set up! She said she has been administering

the diet for 8 yrs and that their success rate is the same as Hopkins

(1/3 seizure free, 1/3 improved, 1/3 not successful). Does this sound like

most keto centers?

>

> I am so excited and am so glad that this group is here you have all helped

so much to answer my questions and give ideas while we have waited to see if

the diet was an option for Mallorie.

>

> For those of you who use stevia as your sweetener could you tell me which

brand? I use NOW packets but they have a little carb. I found the liquid NOW

brand but it says 18% alcohol. Is that a problem since it takes so little to

sweeten with? I know I will have more questions in the days to come. Also

any pointers that would help to know before we start?

>

> Thanks,

> (Mallorie's mom)

>

>

>