Wally etc.

[Guest guest]

How's Wally?? Has anyone heard? I hope much better.

Jane,

I'm just jumping in here, but if it's Bulander

you're talking about, she doesn't have PF. At the

" Living With IPF " seminar 2 years ago, the top docs

said to take NAC tabs vs. capsules. I was told that,

but didn't know why. Sounds like Joyce has the answer.

Brett,

I'm hoping you and your brothers will find the best

way possible to lean on each other throughout the

events to come. I can't help hoping that all of you

would sit down and have a talk - you need each

other in more ways than one. Just my 2 cents. I

realize it takes time to process this nasty information.

By the way, your daughter is adorable!

P,

I hope the new medicine works for you. Juggling all

these meds can be very trying. I hope you'll have only

the desired results, and no crummy side effects. Did

you say they are keeping you on the Tracleer, though?

Hang in there.

Irene,

As usual, your treatment was/is unspeakable. I'd like

to stuff their heads into that same trash can. I think

you must be bulletproof to still be here! I also

think has a tremendous idea that you try to

contact the hospital's patient advocate if there's such

a thing. Goodness knows it's way past the point of

any doubt that you've been treated poorly. I mean,

these people have actually caused you harm! grrrrr.

I'm concerned about the rapid weight loss (wish I

could take it off me and put it on you - oooh, didn't

mean to be gross, but you know what I mean!). Did

you lose like that before when you had a similar

episode?

Kerry,

Thanks for the encouragement. It is very discouraging

when you have to do rehab in your own home, and to

recover after walking from the study to the living room,

VERY slowly on 15L. I think I'm going to be with you on

the recumbent bike thing. That wasn't really the doctor's

favorite idea, since breathing for me now is aerobic, but

I think I need it for the leg strength. And, so far it's the

only thing that I can do - slowly - and maintain sats around

90. So, peddle on! We do have to fight, that's for sure.

, I'm assuming you feel better. I hope your sense of

smell isn't hindered at all!!!

Leanne, my nurse told me today that the flu is really going

around here. I hope that isn't what you have. Do you have

any fever? I hope you don't - you sound miserable enough!

Liquids and rest, girl, liquids and rest. What.... YOU, in a

stressful job???? 8-)

Oh, I know I'm forgetting people. But I've got to try to get

some sleep.

Hugs and blessings,

Gwynne IPF 7/04 listed for transplant 3/07 & 2/08 Texas