Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Hi, I Hope Everyone will have a Great Week! For those who aren't feeling better, I hope they will feel better soon. Hasn't been much change in my condition. 6 days remaining for colonoscopy day. Ain't looking forward to it. Yuck the preparation, I can have popsicles in between, ok popsicles looking forward to that lol! No change in pain either, only new thing in pain is severe sharp kniffing stabbing pains. Had solid food only reason was because I was going to pass out at work. Drinking liquids or eating solids now...they both hurt. At least in the beginning I was able to drink liquids. I just go with the flow whether it hurts or not, I will have something to eat, if I feel I'm going to pass out. It will go in but there's no guarantee it will come out the other way. Weight has been stable for now! I got in touch with dr's office, explained what happenned on Tuesday and it was completely unfair and I got in touch with patient advocate and I asked them. Do I need to have a lawyer present each time, I come to your ER and they're going to get in touch this week. As far as we're concerned nothing much can be done until colonoscopy. I'm still waiting to see if I will be given Prednisone until the colonoscopy day. As far as I'm concerned, I still have a long way to go and to suffer with pain. Thanks for listening Irene PF 03/07 Raynaud's Disease 09/07 Crohn's Disease 03/95 Canada Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Irene,... I'm so sorry there is no change for you and the waiting is surely way over the top of difficult. Guess it's a waiting game for you. I'm floored at the medical care you receive......or lack of!! Hang on. Hugs to you Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there! A little update.... Hi,I Hope Everyone will have a Great Week! For those who aren't feeling better, I hope they will feel better soon.Hasn't been much change in my condition. 6 days remaining for colonoscopy day. Ain't looking forward to it. Yuck the preparation, I can have popsicles in between, ok popsicles looking forward to that lol! No change in pain either, only new thing in pain is severe sharp kniffing stabbing pains. Had solid food only reason was because I was going to pass out at work. Drinking liquids or eating solids now...they both hurt. At least in the beginning I was able to drink liquids.I just go with the flow whether it hurts or not, I will have something to eat, if I feel I'm going to pass out. It will go in but there's no guarantee it will come out the other way. Weight has been stable for now!I got in touch with dr's office, explained what happenned on Tuesday and it was completely unfair and I got in touch with patient advocate and I asked them. Do I need to have a lawyer present each time, I come to your ER and they're going to get in touch this week.As far as we're concerned nothing much can be done until colonoscopy. I'm still waiting to see if I will be given Prednisone until the colonoscopy day. As far as I'm concerned, I still have a long way to go and to suffer with pain.Thanks for listeningIrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95Canada Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Sher....Thanks for the Hugs. You're sure right about the waiting game....There are 2 choices: either I'm going to collapse within the next few hours or by Sunday night, if nothing is done sooner. I will Hang on as much as I can! Irene ---- Original Message ---- To: Breathe-Support Sent: Mon, 25 Feb 2008 12:30 pm Subject: Re: A little update.... Irene,... I'm so sorry there is no change for you and the waiting is surely way over the top of difficult. Guess it's a waiting game for you. I'm floored at the medical care you receive......or lack of!! Hang on. Hugs to you Mama-Sher, 69, IPF 3-06, OR. Don't fret about tomorrow, God is already there! A little update.... Hi, I Hope Everyone will have a Great Week! For those who aren't feeling better, I hope they will feel better soon. Hasn't been much change in my condition. 6 days remaining for colonoscopy day. Ain't looking forward to it. Yuck the preparation, I can have popsicles in between, ok popsicles looking forward to that lol! No change in pain either, only new thing in pain is severe sharp kniffing stabbing pains. Had solid food only reason was because I was going to pass out at work. Drinking liquids or eating solids now...they both hurt. At least in the beginning I was able to drink liquids. I just go with the flow whether it hurts or not, I will have something to eat, if I feel I'm going to pass out. It will go in but there's no guarantee it will come out the other way. Weight has been stable for now! I got in touch with dr's office, explained what happenned on Tuesday and it was completely unfair and I got in touch with patient advocate and I asked them. Do I need to have a lawyer present each time, I come to your ER and they're going to get in touch this week. As far as we're concerned nothing much can be done until colonoscopy. I'm still waiting to see if I will be given Prednisone until the colonoscopy day. As far as I'm concerned, I still have a long way to go and to suffer with pain. Thanks for listening Irene PF 03/07 Raynaud's Disease 09/07 Crohn's Disease 03/95 Canada Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008  Irene... I'm beginning to sound repetitive but keep on keepin' on girl! Since you can't help the medical God will help you wait....... More hugs. Mama-Sher, 69, IPF 3-06, OR.Don't fret about tomorrow, God is already there! A little update.... Hi,I Hope Everyone will have a Great Week! For those who aren't feeling better, I hope they will feel better soon.Hasn't been much change in my condition. 6 days remaining for colonoscopy day. Ain't looking forward to it. Yuck the preparation, I can have popsicles in between, ok popsicles looking forward to that lol! No change in pain either, only new thing in pain is severe sharp kniffing stabbing pains. Had solid food only reason was because I was going to pass out at work. Drinking liquids or eating solids now...they both hurt. At least in the beginning I was able to drink liquids.I just go with the flow whether it hurts or not, I will have something to eat, if I feel I'm going to pass out. It will go in but there's no guarantee it will come out the other way. Weight has been stable for now!I got in touch with dr's office, explained what happenned on Tuesday and it was completely unfair and I got in touch with patient advocate and I asked them. Do I need to have a lawyer present each time, I come to your ER and they're going to get in touch this week.As far as we're concerned nothing much can be done until colonoscopy. I'm still waiting to see if I will be given Prednisone until the colonoscopy day. As far as I'm concerned, I still have a long way to go and to suffer with pain.Thanks for listeningIrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95Canada Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Thanks Sher, Irene ---- Original Message ---- To: Breathe-Support Sent: Tue, 26 Feb 2008 12:46 pm Subject: Re: A little update....  Irene... I'm beginning to sound repetitive but keep on keepin' on girl! Since you can't help the medical God will help you wait....... More hugs. Mama-Sher, 69, IPF 3-06, OR. Don't fret about tomorrow, God is already there! A little update.... Hi, I Hope Everyone will have a Great Week! For those who aren't feeling better, I hope they will feel better soon. Hasn't been much change in my condition. 6 days remaining for colonoscopy day. Ain't looking forward to it. Yuck the preparation, I can have popsicles in between, ok popsicles looking forward to that lol! No change in pain either, only new thing in pain is severe sharp kniffing stabbing pains. Had solid food only reason was because I was going to pass out at work. Drinking liquids or eating solids now...they both hurt. At least in the beginning I was able to drink liquids. I just go with the flow whether it hurts or not, I will have something to eat, if I feel I'm going to pass out. It will go in but there's no guarantee it will come out the other way. Weight has been stable for now! I got in touch with dr's office, explained what happenned on Tuesday and it was completely unfair and I got in touch with patient advocate and I asked them. Do I need to have a lawyer present each time, I come to your ER and they're going to get in touch this week. As far as we're concerned nothing much can be done until colonoscopy. I'm still waiting to see if I will be given Prednisone until the colonoscopy day. As far as I'm concerned, I still have a long way to go and to suffer with pain. Thanks for listening Irene PF 03/07 Raynaud's Disease 09/07 Crohn's Disease 03/95 Canada Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
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