Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 and group; You're very welcome. We are all here to help each other. I am like you about trying another thigh, I will have 2 hurting thighs haaaaaaaaaaa. I am laughing because we think alike. I keep telling my husband " honey you need to think positive for it to work " Lo and behold he is telling me that now when I say it won't work. Go figure. I hope this works for you hon. I have been fortunate so far. My injection don't hurt. I have had about 6 injections so far. I have very fussy skin. It seems like I am allergic to a lot of things. I believe I read that when we get older we can become allergic easier. My mental health doctor told me to imagine no pain. I got a little upset with her at first. Thinking she is not in pain like I am. With a lot of thought I realized how do I know how much pain she is in? So I gave her stragedy a chance. I went throug the day imagineing no pain. Sometimes it works and sometimes it don't for me. Take care and God Bless. I am praying for a cure for arthritis. gentle hugs Clora ************************************************************** > > I want to say thank you to , Mimi, Dorreen, Clora, Sue, , Barbara, and Kami for your thoughtfulness, concern, and kind words you sent yesterday. > , thank you for the websites. I visited www.roadback.org/ and > intend on speaking with my chiropractor and rheumatologist, but it sounds good to me right now. Maybe it is what I have been searching for the past 17 years. I am just one person who strongly believes that the side effects of the drugs I have taken, and the list is long, do more damage to my internal organs although my swelling has went down dramatically. I have neck pain and headaches everyday. Stomach pain almost every night, but the pain related with the swelling is not present as much. It is a different type of pain now. It is the pain of my bones rubbing together or being fused together. Rather than my hands feeling like they were on fire, now they become frozen and turn blue. > So what the......I want to try the Antibiodic Therapy. > I assume many of you know exactly what I am talking about > Pain is always present although the degree of pain and where it is located changes by the minute, so I have to ask my self what pain I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 I think you're right Clora. Though instead of imagining no pain, I tell myself I have no time for it. My day is busy and my body must work to do my job. I don't know if that creates any injury but it certainly helps to deal with it better. Lots of movement, , always keep moving and tell yourself that there is no option for pain. It just isn't allowed. Brad > and group; > > You're very welcome. We are all here to help each other. I am like > you about trying another thigh, I will have 2 hurting thighs > haaaaaaaaaaa. I am laughing because we think alike. > > I keep telling my husband " honey you need to think positive for it > to work " Lo and behold he is telling me that now when I say it won't > work. Go figure. > > I hope this works for you hon. I have been fortunate so far. My > injection don't hurt. I have had about 6 injections so far. I have > very fussy skin. It seems like I am allergic to a lot of things. I > believe I read that when we get older we can become allergic easier. > > My mental health doctor told me to imagine no pain. I got a little > upset with her at first. Thinking she is not in pain like I am. > With a lot of thought I realized how do I know how much pain she is > in? So I gave her stragedy a chance. I went throug the day > imagineing no pain. Sometimes it works and sometimes it don't for me. > Take care and God Bless. I am praying for a cure for arthritis. > > gentle hugs > Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2008 Report Share Posted November 8, 2008 Brad and group; Thanks Brad sometimes its easier done than said. But at least we give it a try. Backwards lol I mean easier said than done. gentle hugs Clora **************************************************** > > I think you're right Clora. Though instead of imagining no pain, I > tell myself I have no time for it. My day is busy and my body must > work to do my job. I don't know if that creates any injury but it > certainly helps to deal with it better. Lots of movement, , > always keep moving and tell yourself that there is no option for > pain. It just isn't allowed. > > Brad > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2008 Report Share Posted November 10, 2008 Another note from a lurker. When I was first diagnosed, two years ago, I spent my time trying to figure out how to avoid the pain. Sleep more, sleep less, exercise more, exercise less. Eat different foods, don't eat certain foods. Trying to figure out how I could feel good one day and lousy the next. I'm sure you all know the routine. Then I decided I just wasn't going to find the magic cure or combination. That good days and bad days are all part of it. I also decided that it was my pain and I needed to accept it as part of me. It saves me alot of energy chasing my tale trying to figure out how to avoid the pain. Still doesn't mean I don't wish for a cure of this awful disease. Thanks for listening, Amy From: CLORA <clora4jesus@...> Subject: [ ] Re: Imagine no pain!!!!!!!!!!! Date: Saturday, November 8, 2008, 8:44 AM Brad and group; Thanks Brad sometimes its easier done than said. But at least we give it a try. Backwards lol I mean easier said than done. gentle hugs Clora ************ ********* ********* ********* ********* **** > > I think you're right Clora. Though instead of imagining no pain, I > tell myself I have no time for it. My day is busy and my body must > work to do my job. I don't know if that creates any injury but it > certainly helps to deal with it better. Lots of movement, , > always keep moving and tell yourself that there is no option for > pain. It just isn't allowed. > > Brad > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 Hi Amy - good thoughts you've written here. I'm tired of chasing my tail too. I am relearning how to live within my abilities. Its not always easy and the pain and fatigue take over some days, but I will not give up hope. I also wish for a cure. I pray it comes soon.....Doreen Another note from a lurker. When I was first diagnosed, two years ago, I spent my time trying to figure out how to avoid the pain. Sleep more, sleep less, exercise more, exercise less. Eat different foods, don't eat certain foods. Trying to figure out how I could feel good one day and lousy the next. I'm sure you all know the routine. Then I decided I just wasn't going to find the magic cure or combination. That good days and bad days are all part of it. I also decided that it was my pain and I needed to accept it as part of me. It saves me alot of energy chasing my tale trying to figure out how to avoid the pain. Still doesn't mean I don't wish for a cure of this awful disease. Thanks for listening, Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 Amy and group; Amy I know what you mean. What ever is best for you. We all find ways to deal or cope with pain. I heard that water therapy is good. I will be trying that. It can be fun, if one likes the water. What works for one may not work for another. I do like to know what is out there though. I am glad you came in to chat with us. I hope we hear from you again some time. God bless and take care. gentle hugs Clora ********************************************************* > Another note from a lurker. When I was first diagnosed, two years ago, I spent my time trying to figure out how to avoid the pain. Sleep more, sleep less, exercise more, exercise less. Eat different foods, don't eat certain foods. Trying to figure out how I could feel good one day and lousy the next. I'm sure you all know the routine. Then I decided I just wasn't going to find the magic cure or combination. That good days and bad days are all part of it. I also decided that it was my pain and I needed to accept it as part of me. It saves me alot of energy chasing my tale trying to figure out how to avoid the pain. Still doesn't mean I don't wish for a cure of this awful disease. > Thanks for listening, Amy > > > > From: CLORA <clora4jesus@...> > Subject: [ ] Re: Imagine no pain!!!!!!!!!!! > > Date: Saturday, November 8, 2008, 8:44 AM > > > > > > > > Brad and group; > > Thanks Brad sometimes its easier done than said. But at least we > give it a try. Backwards lol I mean easier said than done. > > gentle hugs > Clora > > ************ ********* ********* ********* ********* **** > > > > > I think you're right Clora. Though instead of imagining no pain, I > > tell myself I have no time for it. My day is busy and my body must > > work to do my job. I don't know if that creates any injury but it > > certainly helps to deal with it better. Lots of movement, , > > always keep moving and tell yourself that there is no option for > > pain. It just isn't allowed. > > > > Brad > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 I don't know what happened, but I almost don't have to imagine life without pain now! I've been doing amazing with the FMS and the inflammatory knee arthritis! A little over a month ago, I began walking on my treadmill for 20 minutes a day. Each day, I walked a little more. I went from walking a mile a day, to 4. Now I am up to 9 or 11 miles a day! I've not skipped a day in the past two and a half months. My knee doesn't hurt, I'm no longer taking my sulfasalazine (since I'm sure it contributed to my 9 months of bronchitis). I sleep really well, my mood and attitude is way better than when I sat and focused on my pain. My anxiety is incredibley disappeared. I'm eating healthy. Protein, whole grains, veggies and fruit. I have so much energy now. My doctors kept telling me for years that if I could get moving, my muscles and joints would hurt less. For the longest time, I could never force myself to walk through the pain but now that I have started I cant stop! The only pain I felt is when my arms hurt from trying to use the leafblower! Nature's way of just letting me know I still have an illness and still have some issues to work on! > > From: CLORA <clora4jesus@ ...> > Subject: [ ] Re: Imagine no pain!!!!!!!! !!! > @gro ups.com > Date: Saturday, November 8, 2008, 8:44 AM > > > > > > > > Brad and group; > > Thanks Brad sometimes its easier done than said. But at least we > give it a try. Backwards lol I mean easier said than done. > > gentle hugs > Clora > > ************ ********* ********* ********* ********* **** > > > > > I think you're right Clora. Though instead of imagining no pain, I > > tell myself I have no time for it. My day is busy and my body must > > work to do my job. I don't know if that creates any injury but it > > certainly helps to deal with it better. Lots of movement, , > > always keep moving and tell yourself that there is no option for > > pain. It just isn't allowed. > > > > Brad > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 , That is so awesome... I wish I could get up to one mile, not to mention 11 Wow! See, there is hope out there yet! Thanks for sharing > > > > From: CLORA <clora4jesus@ ...> > > Subject: [ ] Re: Imagine no pain!!!!!!!! !!! > > @gro ups.com > > Date: Saturday, November 8, 2008, 8:44 AM > > > > > > > > > > > > > > > > Brad and group; > > > > Thanks Brad sometimes its easier done than said. But at least we > > give it a try. Backwards lol I mean easier said than done. > > > > gentle hugs > > Clora > > > > ************ ********* ********* ********* ********* **** > > > > > > > > I think you're right Clora. Though instead of imagining no pain, > I > > > tell myself I have no time for it. My day is busy and my body > must > > > work to do my job. I don't know if that creates any injury but it > > > certainly helps to deal with it better. Lots of movement, , > > > always keep moving and tell yourself that there is no option for > > > pain. It just isn't allowed. > > > > > > Brad > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Hi : OMG---- your post is so wonderful, and I am so very happy for you. I have been thinking about you, and was concerned because I didn't see any of your posts. Before I left for Mass., I knew how sick you were, and doing poorly. I am thrilled you are going out, and imagine, walking all those miles daily on the tread mill!!! You must be on top of the world!!!!! I know how sick you were with U.R.I.'s all the time, and I am happy that you are doing so well now. If you could see me now, you would see the biggest smile on my face, I am so damn happy for you. I am glad your Bronchitits is gone, what a miracle that is! Imagine, all that from the Sulfasalazine........ I am thrilled your knee is also doing good. Imagine, hardly any pain!!!!! There is hope for everyone!!! I needed to hear some good news, and yours has made my day. I hope your Mom is doing good also. I have missed hearing from you, and glad you are back posting. Give Bella a hug and kiss from me. Keep up the wonderful work, and continue with your new " life " . Just such joyous news. God Bless you always, and remember, I care about you. Hugs, Barbara > > I don't know what happened, but I almost don't have to imagine life without pain now! I've been doing amazing with the FMS and the inflammatory knee arthritis! A little over a month ago, I began walking on my treadmill for 20 minutes a day. Each day, I walked a little more. I went from walking a mile a day, to 4. Now I am up to 9 or 11 miles a day! I've not skipped a day in the past two and a half months. My knee doesn't hurt, I'm no longer taking my sulfasalazine (since I'm sure it contributed to my 9 months of bronchitis). I sleep really well, my mood and attitude is way better than when I sat and focused on my pain. My anxiety is incredibley disappeared. I'm eating healthy. Protein, whole grains, veggies and fruit. I have so much energy now. My doctors kept telling me for years that if I could get moving, my muscles and joints would hurt less. For the longest time, I could never force myself to walk through the pain > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 happy hollidays everyone i know i havent posted in a while but i have been very busy with this big case going on with my brother but i finaly have some time to right. i do have some good advise dont date anyone online dont meet anyone online they could hurt you. my brother is in jail for raping girls that he met online its so gross he would meet them on match.com and plentyof fish.com invite them to his house drug them and rape them. its so sick thankfully i ran away from home at age 11 for being abused and i can bet all my medical problems go back to that. anyway i am doing ok i go to the pain clinic now for my pain and i take humira and aziothiaprine twice a day. im glad my health is under control while i deal with what my brother did to me and those girls online. i will need all my strength. From: Barbara <bcreedon@...> Subject: [ ] Re: Imagine no pain!!!!!!!!!!! Date: Thursday, November 13, 2008, 6:58 PM Hi : OMG---- your post is so wonderful, and I am so very happy for you. I have been thinking about you, and was concerned because I didn't see any of your posts. Before I left for Mass., I knew how sick you were, and doing poorly. I am thrilled you are going out, and imagine, walking all those miles daily on the tread mill!!! You must be on top of the world!!!!! I know how sick you were with U.R.I.'s all the time, and I am happy that you are doing so well now. If you could see me now, you would see the biggest smile on my face, I am so damn happy for you. I am glad your Bronchitits is gone, what a miracle that is! Imagine, all that from the Sulfasalazine. ....... I am thrilled your knee is also doing good. Imagine, hardly any pain!!!!! There is hope for everyone!!! I needed to hear some good news, and yours has made my day. I hope your Mom is doing good also. I have missed hearing from you, and glad you are back posting. Give Bella a hug and kiss from me. Keep up the wonderful work, and continue with your new " life " . Just such joyous news. God Bless you always, and remember, I care about you. Hugs, Barbara > > I don't know what happened, but I almost don't have to imagine life without pain now! I've been doing amazing with the FMS and the inflammatory knee arthritis! A little over a month ago, I began walking on my treadmill for 20 minutes a day. Each day, I walked a little more. I went from walking a mile a day, to 4. Now I am up to 9 or 11 miles a day! I've not skipped a day in the past two and a half months. My knee doesn't hurt, I'm no longer taking my sulfasalazine (since I'm sure it contributed to my 9 months of bronchitis). I sleep really well, my mood and attitude is way better than when I sat and focused on my pain. My anxiety is incredibley disappeared. I'm eating healthy. Protein, whole grains, veggies and fruit. I have so much energy now. My doctors kept telling me for years that if I could get moving, my muscles and joints would hurt less. For the longest time, I could never force myself to walk through the pain > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 My heart breaks for you and your brothers victims...... My assumption is your brother was someones victim first. It is not an excuse but many abused children become abusers. God Bless and protect you.... Raniolo From: Barbara <bcreedon (DOT) com> Subject: [ ] Re: Imagine no pain!!!!!!!! !!! @gro ups.com Date: Thursday, November 13, 2008, 6:58 PM Hi : OMG---- your post is so wonderful, and I am so very happy for you. I have been thinking about you, and was concerned because I didn't see any of your posts. Before I left for Mass., I knew how sick you were, and doing poorly. I am thrilled you are going out, and imagine, walking all those miles daily on the tread mill!!! You must be on top of the world!!!!! I know how sick you were with U.R.I.'s all the time, and I am happy that you are doing so well now. If you could see me now, you would see the biggest smile on my face, I am so damn happy for you. I am glad your Bronchitits is gone, what a miracle that is! Imagine, all that from the Sulfasalazine. ....... I am thrilled your knee is also doing good. Imagine, hardly any pain!!!!! There is hope for everyone!!! I needed to hear some good news, and yours has made my day. I hope your Mom is doing good also. I have missed hearing from you, and glad you are back posting. Give Bella a hug and kiss from me. Keep up the wonderful work, and continue with your new " life " . Just such joyous news. God Bless you always, and remember, I care about you. Hugs, Barbara > > I don't know what happened, but I almost don't have to imagine life without pain now! I've been doing amazing with the FMS and the inflammatory knee arthritis! A little over a month ago, I began walking on my treadmill for 20 minutes a day. Each day, I walked a little more. I went from walking a mile a day, to 4. Now I am up to 9 or 11 miles a day! I've not skipped a day in the past two and a half months. My knee doesn't hurt, I'm no longer taking my sulfasalazine (since I'm sure it contributed to my 9 months of bronchitis). I sleep really well, my mood and attitude is way better than when I sat and focused on my pain. My anxiety is incredibley disappeared. I'm eating healthy. Protein, whole grains, veggies and fruit. I have so much energy now. My doctors kept telling me for years that if I could get moving, my muscles and joints would hurt less. For the longest time, I could never force myself to walk through the pain > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Tara and group I imagine no pain every day. I know some day I will never be in pain I will be in glory land with a new body and a new name. I remember when I was a child how I use to run, jump and play all day during summer time, than back to school lol. I am so sorry Tara. I hope you get the help you need for what you went through. Some of the things I see and hear are so un-believable but true. How does one go on? There is a way we just have to find it. I found mine and I will pray you find yours. I am putting your brother in my prayer book. I pray over it every night. It is so sad how cruel people can be. I only want to be kind and caring to everyone. My beliefs my not be yours and that is ok. I just like to tell everyone how I get through my pain. I know what you went through I went through it too. I ran away from home when I was 14. Half of my family was messed up and the other half was perfectly fine. Even though one messed up our familys name I still love and pray for him. God will be his judge. He has repented and lives a new life after 30 years in prison. I wouldnt go around him now, but I forgive him. God bless and take care Gentle hugs Clora *************************************************************** > > happy hollidays everyone i know i havent posted in a while but i have been very busy with this big case going on with my brother but i finaly have some time to right. i do have some good advise dont date anyone online dont meet anyone online they could hurt you. my brother is in jail for raping girls that he met online its so gross he would meet them on match.com and plentyof fish.com invite them to his house drug them and rape them. its so sick thankfully i ran away from home at age 11 for being abused and i can bet all my medical problems go back to that. anyway i am doing ok i go to the pain clinic now for my pain and i take humira and aziothiaprine twice a day. im glad my health is under control while i deal with what my brother did to me and those girls online. i will need all my strength. > > > > From: Barbara <bcreedon@...> > Subject: [ ] Re: Imagine no pain!!!!!!!!!!! > > Date: Thursday, November 13, 2008, 6:58 PM > > > > > > > > Hi : > > OMG---- your post is so wonderful, and I am so very happy for you. I > have been thinking about you, and was concerned because I didn't see any > of your posts. > > Before I left for Mass., I knew how sick you were, and doing poorly. I > am thrilled you are going out, and imagine, walking all those miles > daily on the tread mill!!! You must be on top of the world!!!!! > > I know how sick you were with U.R.I.'s all the time, and I am happy that > you are doing so well now. If you could see me now, you would see the > biggest smile on my face, I am so damn happy for you. I am glad your > Bronchitits is gone, what a miracle that is! Imagine, all that from the > Sulfasalazine. ....... I am thrilled your knee is also doing good. > > Imagine, hardly any pain!!!!! There is hope for everyone!!! I needed > to hear some good news, and yours has made my day. > > I hope your Mom is doing good also. I have missed hearing from you, and > glad you are back posting. > > Give Bella a hug and kiss from me. Keep up the wonderful work, and > continue with your new " life " . Just such joyous news. > > God Bless you always, and remember, I care about you. > > Hugs, > > Barbara > --- In @gro ups.com, stephanie <stephieann2@ ...> wrote: > > > > I don't know what happened, but I almost don't have to imagine life > without pain now! I've been doing amazing with the FMS and the > inflammatory knee arthritis! A little over a month ago, I began walking > on my treadmill for 20 minutes a day. Each day, I walked a little more. > I went from walking a mile a day, to 4. Now I am up to 9 or 11 miles a > day! I've not skipped a day in the past two and a half months. My knee > doesn't hurt, I'm no longer taking my sulfasalazine (since I'm sure it > contributed to my 9 months of bronchitis). I sleep really well, my mood > and attitude is way better than when I sat and focused on my pain. My > anxiety is incredibley disappeared. I'm eating healthy. Protein, whole > grains, veggies and fruit. I have so much energy now. My doctors kept > telling me for years that if I could get moving, my muscles and joints > would hurt less. For the longest time, I could never force myself to > walk through the pain > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 That's such a sad story, Tara. I hope you are going to be OK. Not an MD On Sun, Nov 23, 2008 at 9:45 AM, tara bowman <tara_bowman2003@...> wrote: > happy hollidays everyone i know i havent posted in a while but i have been > very busy with this big case going on with my brother but i finaly have some > time to right. i do have some good advise dont date anyone online dont meet > anyone online they could hurt you. my brother is in jail for raping girls > that he met online its so gross he would meet them on match.com and plentyof > fish.com invite them to his house drug them and rape them. its so sick > thankfully i ran away from home at age 11 for being abused and i can bet all > my medical problems go back to that. anyway i am doing ok i go to the pain > clinic now for my pain and i take humira and aziothiaprine twice a day. im > glad my health is under control while i deal with what my brother did to me > and those girls online. i will need all my strength. Quote Link to comment Share on other sites More sharing options...
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